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Showing content with the highest reputation on 12/18/2023 in all areas

  1. Well technically, it's sorta the same thing after all we are talking about "waking em up"
    2 points
  2. When I first heard Jeebs use that phrase at a conference dinner, I thought he was talking about something else entirely. My face is so red! (from embarrassment, I mean)
    2 points
  3. UT Houston is running a clinical trial of a modified version of Batch’s Vitamin D regimen. For more info, contact nctt.wec@uth.tmc.edu or phone 713-486-7771 https://conta.cc/3N9LVyv High-dose vitamin D plus multivitamin in the prevention of cluster headache: A randomized, double-blind, placebo controlled trial. Who: People with cluster headache (episodic and chronic both welcome!) between 18-70 years old who have cluster headache cycles lasting at least 6 weeks. What: A study to self high-dose Vitamin D (10,000 units per day) plus a multivitamin will reduce the number of attacks over 3 weeks. Where: We are enrolling anywhere in the United States (we will ship you the medication and use your local Labcorp for bloodwork). Why: Many cluster headache patents report that high-dose Vitamin D reduces the number of attacks. There has never been a controlled trial (until now)! How to get more information: Contact The Will Erwin Headache Research Center email: nctt.wec@uth.tmc.edu or phone: 713-486-7771
    1 point
  4. Dr. Larry Schor is a psychotherapist who has CH. He has spoken at many CB conferences and is an exceptionally good guy. I don't know whether he works with clients remotely, but it might be worthwhile to contact him and find out if he has any suggestions for you: http://www.carrolltoncounseling.com/ Yes, indeed. Take that step now, please, and let us know how it's going. There are some links in here -- https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ --to help persuade a doctor, but s/he should just know from looking at any standard online or printed medical reference that O2 is the #1 recommended abortive (along with injected triptans, but of course the difference in side effects is night and day). Some people here, including me, theorize that doctors' resistance to prescribing O2 is often not that they don't know about it, but (a) they don't have patients using high-flow O2 and don't know how to "manage" it; (b) they don't know how to write a prescription for O2 for CH; and/or (c) they figure Imitrex works just fine. (The prescription language is something like "Oxygen therapy for Cluster Headache: 15 minutes at 12-15 liters per minute with non-rebreather mask.") Welding O2 is a very reasonable alternative. I agree with Jeebs that some busting substances might improve mental wellbeing in physiological ways, and I would also say that oxygen has improved the mental wellbeing of many, many people with CH, taking away some of the dread that you describe. I get lost on this topic, but it's my understanding that some antidepressants might block busting and some do not. Could be wrong about that. I would suggest that you name the specific antidepressants involved and then maybe people can give some direct advice/guidance. (You can also use the search bar at the top right of every page to enter a term and see what people have said about it.)
    1 point
  5. @doctornugz Hey hi! I'm gonna start by just saying kudos to you for putting all your going though into words. Gosh do you remind me of myself when I first found this place to live. Seems you have been around but maybe have not interacted much (massively ok). I am so happy that you have gleaned as much as you have from this awesome sauce site! I would not assume that you did anything to fluff the bunny. CH is complicated and hard to keep in your pocket. It morphs to find holes. Never stop the D3 regimen..your body is only better for it. (I'm operating from my phone so please excuse typos and punctuation). You have options but you also need to read on here. I myself had an unpredicted attack today even though I've been clear for a week. Ginger and curcumin may help the shadows. I tried to skim your post but am sure I'm missing some of the important things. You're stronger than you know!
    1 point
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