Leaderboard

For the longest time, I used to get pain/tension right at the base of my skull on the right side and within minutes the beast smacked me upside the head. Been a few years since that has happened, but that kinda stopped when they went insane on me after stopping a drug the name I forgot but anecdotally has seemed to jack up a lot of people after stopping it. Likely it is because the low grade pain and ache from the shadows have overridden it for me, but you can use it as a signal to get your ass on the o2 and maybe hit before it even starts.

In celebration of Cluster Headache Awareness Day, join our board and staff on MARCH 24 at 12pm ET for an informal chat. (Yes, this is the Sunday after CH Day!) Register for this free event: https://conta.cc/42RVIjh

Sounds a bit like my experience, scrambled them for a month, including less hits and lighter ones, the next month was a random schedule but lessened, the three and fourth month they began getting steadier and came back fully by the end of the 4th month, mind you I had some home dhe injections for a few weeks after.

@Bill H. The new injection is emgality...like most cluster meds it works for some and doesn't for others. Medicare does cover O2 for clusters now and some here have reported success in getting it.......this change was just made in the last 12 to 18 months. @Bejeeber is in the Austin area.....Dr Burish and the Will Erwin institute in Houston are great cluster headache options Yep, if its been 13 years since you've been here it would have been the old orange yabb powered board. DD

Honestly, I picked up the phone and called the new member just as he asked me to do in his PM. We spoke at length about 25lpm regulators, Cluster Masks, the homebrew demand valve, D3, where to find more information and meeting other people with clusters. I listened to his story. I find that actually speaking to people when they request it, asking questions and providing timely answers has great benefit for someone that's just discovering our community. My "Messaged received and answered." post was to inform those that spend many thankless hours monitoring this board and providing life saving information (such as yourself, CHfather) that indeed someone had taken time to help in a way that wasn't readily apparent.