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Showing content with the highest reputation on 03/08/2024 in all areas

  1. The thing about the oxygen machine (concentrator) is that they are not pure oxygen the way O2 from a tank is. Some room air gets mixed in, so you might not get the same results. As FunTimes says, probably no harm in trying. I would suggest that if you are aborting in 7-10 minutes with the method you're using, you might be able to get a quicker abort with the more "standard" method using a higher flow rate of a deep inhale, holding it in your lungs for a couple of seconds, and then forcefully exhaling (rather than just holding the air as you wait for the bag to fill). But you've been at this for a while and maybe your method really is best for you.
    3 points
  2. I was dealing with my brother-in law and cancer. I was doing a lot of driving to and from appointments and hospitals for him. During this time I did not have an increase in clusters, They were about the same as always. After his passing the shit hit the fan and I got crushed every day. I can only say that stress and clusters can and will react to each of us differently. I typically have less when stressed out and more during relaxed times. That also go along with getting hits as I fall asleep, lay down and fall asleep and my body relaxes about an hour into that sleep and I wake up with a hit. As far at the oxygen concentrator goes I would see if you could maybe rent one for a week and test it out. If it works that is awesome and go get one. Again everything works a little different for everyone so if it works for you stick with it!
    2 points
  3. Thanks Bosco. Yes I've read the details about the vitamin combo protocol and the oxygen. Great info, though with oxygen, I surprised to read that you have to go through so much of it. I was hoping that a 3-foot (or so) tank would last for at least a month, if I only had one big attack per day. But even shaving off 5 minutes of the extreme portion of a CH would be wonderful. For me the most extreme clusters involve the high pain in the orbital/eye, and I think maybe the cold water/ACV swish localizes that pain to the upper gum section of the trig, or at least temporarily distracts from the other three zones of fire. Even placebo is effective, until it isn't!
    1 point
  4. So sorry to hear of your loss. It seems to be common that folks do get hit directly after falling asleep when in a cycle. Not sure about getting hit due to being startled awake. 4LPM is very very low so if it's helping you to abort there is a possibility I suppose that an oxygenator may work for you. As for the D3 I am assuming you are taking one 50,000 IU per week? If that's the case you should be just fine. The stress of losing a loved one could be elevating your cortisol levels which might be playing into your recent attacks. I hope this passes for you sooner than later!
    1 point
  5. Hi @BoscoPiko @FunTimes @CHfather Hi there Thank you for the co condolences. I always assumed I would go first since I'm 44 and he was 41. After he passed away I didn't grieve as I had to be strong for my family. It's a few months now so you could be right since the cycle just started. No I have been taking 50 000iu every single day out of panick cos I was driving him to and from his chemo and radiation and no one else could take him. I still am taking the same dosage. I never really noticed any side effects accept for itchiness at my ankle. Attacks are sporadic. One just hit me without warning on Tuesday. Other than that, I am getting the shadow before hand so I have time to abort with oxygen. The other thing is that am on benzos and the likes because of my hip replacements. Yet that doesn't provoke an attack. It's just the element of surprise and we'll I guess the picture in my mind of the last time I saw my brother alive at the hospital. The look he gave me while holding my hand. And I told him don't worry I need to leave now and I will be back first thing in the morning. Then received a phone call to rush to the hospital at 12.20 at night from my sister to come to the hospital. I rushed over and he was already cold when I got there cos they said he passed away exactly at 12 midnight. I have that picture painted in my head cos he was fine when I left the hospital. Made jokes even though the cancer they removed was on the side of his neck. Still he could talk. I'm such a mess. I need to resume my psychology appointments but I'm scared to relive everything. My baby bro. Yet everyone thought he was the bigger brother. Always had my back. Even through all my ch cycles. I wish it was me and not him cos of this nightmare of a condition. I feel lost and alone. I came here to vent a little cos it's only you guys that will understand. I appreciate all of you very much.
    0 points
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