Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 03/14/2024 in all areas

  1. The eye shifting is pretty normal for rem sleep which means Rapid Eye Movement iirc. But stress and the season can really be doing it. I would second the above with getting high flow o2 with a tank and not the concentrator, at some point that concentrator is not going to cut it, hopefully it doesn't get there, but better to be ready if it does.
    2 points
  2. This is a new addition to the headache center at Jefferson in Philly. We are excited to announce the launch of our new clinic dedicated to Cluster/ Trigeminal Autonomic Cephalgia (TAC). This clinic is specifically designed for patients like you who suffer from cluster headaches and other TACs, such as SUNCT and Paroxysmal Hemicrania. Our mission is to improve the lives of patients with Cluster/TAC headaches through research, advocacy, and effective treatments. We will provide comprehensive care to address both your physical and mental well-being. Since these conditions are not well understood, we're committed to raising awareness about Cluster/TAC headaches and educating the public. The cluster/TAC clinic is dedicated to providing exceptional clinical care with compassion. We're thrilled to have you join us on this journey. Please reply to this message or call us at 215-955-2243 if you're in cycle. Please reference the Cluster/TAC clinic in your call or message. Thank you, Your Care Team at the Jefferson Headache Center
    1 point
  3. Nice!!!! This 2023 editorial in the journal of the International Headache Society seems relevant (and is an interesting short read): https://journals.sagepub.com/doi/full/10.1177/03331024231212451?utm_source=facebook&utm_medium=social&utm_campaign=ihead2024&utm_content=ap_23pupgtmxz&fbclid=IwAR2YiwAM_00DoSP7j_0PP_hP5zkFXsf5GMpQqLp_3842NNAa0Um0h0L45Dk#body-ref-bibr16-03331024231212451 Would it help with awareness if these "headaches" were actually described as what they are, deep brain disorders?
    1 point
  4. Thank you. Yeah I have the tanks, not the concentrator. However I set it at 4lpm depending on where about I catch the beast arriving. I did research on the concentrator and found that is really not for our condition. Still waiting for my blood work results. I got through yesterday with just 1 minor attack. Lasted 5 mins. Lucky me. Does any one know if oxygen helps for panic attacks? I get them every Thursday morning cos my bro passed at midnight on a Wednesday and this keeps playing in my mind. Rushing to the hospital only to find a nurse telling me that 'are you here to see Mr Reddy? You do know that he passed away?' I just grabbed onto the table near me and started hyperventilating. Then she just pointed out the room they moved him to where I found my family crying. My dad in a wheelchair crying. My brother cold as I kissed his cheek. This scenario plays in my head every day but worse on Thursdays. I really don't know how to handle this and I'm afraid to go for my psychology appointments cos that not going to bring him back. It's going to bring back reality 10 fold. Juggling between this and the season is really fk up. I come here to this group cos you guys are the only ones that would truly understand give me sound advice which I appreciate so much. Thank you all fot the support.
    1 point
  5. I am at the end of a 3 week cycle, so the attacks are shorter and more shadow like, but I had one that was lasting around 8 hours with no relief and read on here to try ginger. I made ginger tea and the pain finally started to let up! I have now had a cup of ginger tea right when I start to feel the pain come on, or tightness in my neck, which is an indicator for me, and for the past few days and attacks it has stopped the pain and the attack by the time I finish the cup of tea. Who knows how long it will last, or if it will continue to work for the lesser/shadow pains but every small bit of help to reduce or stop pain is worth it. I have been using the pure ginger tea from yogi tea. Hope this helps someone, even if just a little!
    1 point
×
×
  • Create New...