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Showing content with the highest reputation on 03/15/2024 in all areas

  1. YES IT WOULD!!!! I personally remain adamant about never, ever, referring to a cluster attack as a "headache". The naming of this deep brain disorder is soooo long overdue for a change, and the h word must be strictly prohibited from inclusion in the new name!
    2 points
  2. Ok so one night I was in pain and didn’t know what to do with myself, so I threw myself in the shower and stood under the water hot or cold and let the water beat at the top of my spine and within 5 to 10 minutes the pain had completely disappeared, so I tried again next time and it worked and so on and so on and almost every time I feel a pain coming if I’m at home I’ll jump in the shower quickly and let the water beat at the top of my spine. it’s not a fix to get rid of them completely but it helps with the pain at that time, I get them everyday and night every few hours for an hour ish each time and has been going on for over 2 years so the relief from pain when I’m home is so good and I feel perfect afterwards. Please try this on your next attack and let me know if it works for you, I really hope it does, patiently waiting for someone to say it helps them too. xxx
    1 point
  3. This has been my go to since my first cluster 10 years ago. I start with a cold pack or cold wet wash cloth to my face or head and then usually end up in a hot shower. It works more than half the time although I have had nights where I have had 3+ showers before morning and have even fallen asleep in the tub as the pain receeded. It's usually my last resort as actually getting myself in the shower after the pain starts isn't easy.
    1 point
  4. This is a new addition to the headache center at Jefferson in Philly. We are excited to announce the launch of our new clinic dedicated to Cluster/ Trigeminal Autonomic Cephalgia (TAC). This clinic is specifically designed for patients like you who suffer from cluster headaches and other TACs, such as SUNCT and Paroxysmal Hemicrania. Our mission is to improve the lives of patients with Cluster/TAC headaches through research, advocacy, and effective treatments. We will provide comprehensive care to address both your physical and mental well-being. Since these conditions are not well understood, we're committed to raising awareness about Cluster/TAC headaches and educating the public. The cluster/TAC clinic is dedicated to providing exceptional clinical care with compassion. We're thrilled to have you join us on this journey. Please reply to this message or call us at 215-955-2243 if you're in cycle. Please reference the Cluster/TAC clinic in your call or message. Thank you, Your Care Team at the Jefferson Headache Center
    1 point
  5. ...hey, if it works it works! more typical for nsaids to help with shadows. you may have nailed it with the allergies connection. anything that causes inflammation, histamine release, vitamin D3 depletion, hormone releases can be triggers for us. my first few yrs antihistamines were helpful....many find help with Benadryl prior to sleep or even daily during certain cycle parts (will make you sleepy). note that while the nasal congestion could be an allergy symptom.....it is also absolutely typical of cluster autonomic symptoms. i used Tiger Balm inhaling to clear sinuses....didn't affect the hit but cleared the awful congestion that makes a hit even more miserable...
    1 point
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