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Showing content with the highest reputation on 12/17/2024 in all areas

  1. My cluster symptoms began after a traumatic brain injury with loss of consciousness However, there were other mitigating factors as well: other concussions, 2 cervical spine surgeries including a fusion (followed by an eventual 3rd surgery and 2nd fusion post-CH as a result of the TBI), sleep apnea, male, etc. But no prior drug use, heavy alcohol use, smoking, or family history of CH So I personally believe there may be a strong connection between brain injury and/or spinal injury and cluster. But the exact mechanism in play may unique to each person.
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  2. Migraine buddy includes clusters these days It actually has great functions of adding meds or other ways that gave some relief or not. most ways of aborting are already in the app, so it's really easy to add them in a log. If it's not in there, you can create it yourself it's definitely worth a try. I think it's really helpful to keep track All I have to do is try to remember start/end times so i can put it in when it's over
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  3. Hi Chris, I don't know of any specific to CH but I know there have been some posts on here with folks attempting to create one and I think one other that had successfully created one. In the very beginning of my joy ride when being told I had migraine, I used an app called migraine buddy which was good for tracking dates, medications and pain scale but I soon got tired of it and switched to a self created excel log which I also tired of at some point in my journey. I guess I just felt like looking back at all the bangers made me depressed which I was already really good at doing especially when in a cycle which seemed to be the time I was most apt to visit the log. Anyhow, tracking can be a good thing especially if you are trying to gauge your next doomsday and get in front of it.. Lastly you can use the search bar at the top of each forum page and plug in key words like App and a bunch of past discussions will come up for you to review.
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  4. Yup jeebster, made this old man's eyes leak as well!! Absolutely wonderful and well written testament @LaurenAla! So very sorry for your loss!! As BeJeeber’s said, our supporters are our hero's......clusters are equally devastating for both the clusterhead and the supporter!! Thank you so much for sharing ya'lls journey with us Lauren...... ....Fair winds and following seas Lukas...
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