Jump to content


Popular Content

Showing content with the highest reputation on 08/22/2018 in all areas

  1. 1 point
    Hello gang: I need to report in. I'm Checkin' in like Gunga Din. As I posted over a year ago: "However those of you who have let me whine here for the last decade or more know that I keep the [ triptan] injections handy - and I take a healthy dose of Verap. every day all year - I have the big big O2 tank in the hall all year - I have tried a visit to the Portuguese wizard, busting with shrooms, Chinese doctor and herbs - nothing but licorice water for a week, water water water, exercise rapidly, ice on the carotid artery, steroid dose pak, Cluster vitamin regimen, Opioids, benzos, advil, melatonin, a Shaman in the Navajo tradition, Hot water pads, every other god dam thing. In the end; every single cluster cycle required absolute submission to the Beast in varying amounts before I can see the light. " By chance, this year in April which is the inevitable early part of my annual cycle, my mother-in-law brought me a bottle of CBD oil made from Hemp - no cannabis no THC . Having tried all of the crazy stuff above I am open to anything. The beast came knocking one evening in April it was the first of the season that was more than a shadow. I assumed the position on the floor and got my ice bag. Then I took a full ml. of the CBD sublingual. The attack aborted in minutes. I used that small hemp oil vial in a bout 15 days. My research led me to understand the "Entourage Effect " of cannabanoids. (I don't like to drop links in this board so Google it) I got my medical card and bought a CBD compound which is "Whole Plant Medicine". Not enough THC to even contemplate the tiniest buzz, but medially, enough to keep the CBD in concert with the other the other therapeutic compounds in cannabis. I have not had another attack since April. This is the first year in 10 or more years that that has happened. I know CH Father has commented that the results and reports on CBD are all over the place and this I see as I have looked on the boards. However - having been here since the early days of the "old board" I just had to let you know of this amazing outcome. Now - I have felt the beast trying to break in on a few occasions, which to me only adds credence to the results I am having being attributed to the CBD. A PF summer -- who ever heard of such a thing ? I hope to keep reporting these positive results. Wishing you all well. TomSwift
  2. 1 point

    Neuro recommended Clusterbusters

    I only became a member on Clusterbusters for a couple of weeks, but I cannot tell you how important it has been to be a part of this community. Today I took my son to his first appointment with a neurologist specializing in headaches. Quiet, soft spoken and required a little probing from our end but we left with hope. I was so delighted that he actually recommended Clusterbusters as a resource for help. He shared all the options we had to us, wrote a script for O2 with no hesitation, imitrex, and spoke to us about busting with seeds and mushrooms too. He also spoke with great optimism about Aimovig which just got approved in Canada. He said he’s had cluster patients on it during trial with great success! There is hope!! I have to thank CHFather, Batch, and Clusterheadsurvivor for all their support and guidance. I don’t know what I would do without this forum and their support.
  3. 1 point

    Taurine! WOW!

    Really useful info, thanks Jon. I'll be sure to seek out "Wired" - im on 2000mg of taurine through supplements, and i feel like they might be helping lower the peak level of pain, so im going to continue on those. doctor didn't comment either way on the levels of various things im taking but 111 was quite alarmed at the magnesium (lowest dose of anything im taking) so looking into that a bit more. Only oddity so far is about half an hour after the oxygen the hunger hit big time - i usually have a small appetite but it reduced even further over the last 10 days, feel like something has been lifted - trying to stay keto however. Roll on the end of the cycle! FunTimes - yeah i think its an E Size, they said i'd get 2hrs ish off it, and that i can get next day delivery on another tank - they were also confused as to why only delivering one. I'll see how helpful they are when i re-order in a day or so. The relief that the oxygen has worked this well is huge - its been such a journey to get here i almost had it in part of my brain under things that wouldn't ever happen, or wouldn't work.
  4. 1 point

    Taurine! WOW!

    I use the 5hr energy drinks and keep them in the car, at work, at home and in my pocket. Small easy to carry around and they do the trick for me. I do not keep them cold and drink them at room temp. The first feeling I get I can sometimes drink one and push the cluster off totally. If you used 1/4th of your tank it sounds like you have a E size tank. I would ask for about 4 more of them and at least 2 M or M60 size tanks. My oxygen company is not the best at keeping track of how many tanks I have or they just dont care so if I order 4 tanks and only have 3 to return they still give me the 4 tanks. this is a good way to build up the stock pile you will need when the shit hits the fan!
  5. 1 point

    Taurine! WOW!

    My favorites are "Wired"...with something like 320 mg caffeine and 3000 mg taurine per 16 oz can. Half a can was all I needed per hit (drunk SO COLD and FAST it hurt)....and "NOS" because of all the energy drinks it tastes the least objectionable....actually, depending on your frame of mind, pretty good. Really, the brand doesn't matter....as long as you get at least 100 mg caffeine and 1000 mg taurine...the only difference is taste and cost. Get mine at grocery outlet stores for about $1/can....or 5 hr energy type 2 oz for 99 cents. Red Bull (relatively low in the ingredients you need) was the first and advertises heavily and therefore most expensive...you don't need to pay for that...….. They all come with sugar-free versions now...just beware of aspartame...which can be a trigger like glutamates. And, in my case, sometimes I needed the sugar.... as low blood sugar was a trigger..... Best Jon
  6. 1 point

    Taurine! WOW!

    Red Bull 250ml = 80mg of Caffeine so im currently racking up less than i thought but in the low thousands of mg. Oxygen turned up today - give only one bottle, and appears i used 1/4 of the tank to extinguish one headache - it does seem to work well though! I'll be asking for a larger cylinder, and two of them - when this one runs out which i guess will be a couple of days. I am looking forward to a proper nights sleep tonight, the first in a week and a half. Fingers crossed!