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Everything posted by Psiloscribe

  1. Its always best to discuss this stuff with your doctors. They know your health history and any risks that might pertain to you. Psilocybin is known to elevate blood pressure for about a 3 hour period. Most of the studies that have been done were studies that gave participants large doses where hallucinogenic effects were desired. From the ones I've seen, blood pressure went from an average of about 125 over 75 to about 140 over 83. Plus or minus a few points. Bob
  2. This is never a good thing for an organization that relies upon donations and the good intentions of others. There is a donate button on the bottom of these message board pages but for some reson they don't always work properly. Best thing to do is go to our website http://www.clusterbusters.com/donations.htm and donate from there or mail your donations to: Clusterbusters P.O. Box 574 lombard, Il 60148 Thanks Bob
  3. I try to keep all the fundraising stuff in one area but thought it was a good time for a reminder in the general section. I know a lot of people will be doing some shopping online and a great way to raise funds for CB is to use the IGive option. All the details can be found in the Fundraising forum threads but the link to join is http://www.iGive.com/Clusterbusters This site also lists all the available coupons for the stores so you can find some great bargains without waiting in line at 3am ;-) Thanks, Bob
  4. A very generous, anonymous Buster has offered to match any and all donations up to a total of $1000.00 between now and the end of the year. That means that your $10.00 donation becomes a $20.00, $25.00 becomes $50.00 etc. If you add in the tax deduction, that makes it almost free So, if you are so inclined,and decide to make a donation, now is a great time. Thank you. If you use paypal or a check, just mark it with "matching" and we will make sure it's handled properly. Bob
  5. I wanted to pass along some preliminary information so people can start planning. The 2011 Clusterbuster Conference will take place in Chicago over the September 16-18 weekend. The hotel information should be available soon. Doug and the committee are going over the results of the survey and are putting together an outstanding program. Hope to see everyone there More to follow. Watch this space Bob
  6. Just so everyone knows, this is an official Clusterbuster project that Tommy has undertaken for us. For those that know know him, Tommy is an original Buster so has been with us from the beginning. He is a Clusterbuster Trustee and has been our unofficial historian, helping us track data and build our files. Any help you can give him/us on this project is greatly appreciated. Bob
  7. It doesn;t make much difference. They tell you that because it can make you tired. if you're having night time hits and you're hoping this might help, I'd take it about an hour ahead of bedtime. It is considered rare but cycles can switch from one side to the other during a cycle. It can also change sides from cycle to cycle but but most people stick to one side or the other for the most part. Bob
  8. Hi Val, First off, congratulations on pushing theough the detox. We know it isn't easy. It can be even harder then breaking an addiction to drugs or alcohol in that it has elements of both physical and mental hurdles to overcome. Yes, some people are lucky enough to have similar results with only a dose or two. Congratulazioni. Goda di. Bob
  9. Thanks very much Matty Best way for dinations is to go here : http://www.clusterbusters.com/donations.htm if you want to donate online click on the donate button. Or checks can be mailed to Clusterbusters P.O. box 574 Lombard, IL. 60148 if you want it to go to BOL research, mark that on the donation or check. Bob
  10. Good thread topic and discussion. Thanks to all. The original theory behind the usual dosing strategy is based in several areas. It begins with the thought that it is the "whack" the dose provides that breaks the cycle. One of the first analogies, similar to the snow globe, is that our hypothalamus is like an old tube radio that goes out of sync and needs a "whack" to regain its tuning. Re-dosing the next day usually doesn't produce this "whack" so its not only wasting medicine but prolonging the next dose that will provide this whack to the system. Over the years, many people that don't
  11. For those wondering what is happening with research on BOL for clusters here is the latest. It was felt that the fastest track to getting the followup research funded and completed and getting BOL to the market was to form a new company to do just that. Hoping that one of the large pharmaceuticals would take up the case to replace their existing triptan market isn't likely to happen any time soon, although I'm open to a phone call A new company called Entheogen has been formed and its first priority is to get the funding needed to bring BOL to market as a cluster headache treatment. Fe
  12. Roger Waters comes to Cali in December. Sir up front and he'll loosen up those bones!! Or at least leave you comfortably numb!! Bob Rock on Ting....you are in charge of your happiness in life.
  13. I'm very sorry Tingling, Official words from a lawyer always have a purpose and the truth or how those words affect people have little to do with that purpose. Bob
  14. 02 as a preventive has been studied and in general doesn't work. Safety issues aside, using low flow with a nasal canula just won't counteract the changes caused by an oncoming attack. Bob
  15. You go visiting people during a cluster attack? Are you using imitrex tablets? If so the injections and nasal sprays don't take nearly as long to kick in...FWIW Some steroid injections can last longer than oral tablets. With the increased effects on your system come the increased side effects. There is no research that shows steroids break cycles. Almost every cluster sufferer here will tell you from experience that they can give you a short break but the cycles return and oftentimes stronger than before. Bob
  16. Quick changes such as air travel can trigger clusters, if you are in cycle. That said, flying to and landing in Denver at its altitude might be one of the safer places to land IMHO. Physically speaking, you should be good to go. On the spiritual side, don't let cluster fear guide your life any more than necessary. Its one thing to pass on a dinner or movie. Its another to pass on a trip that leaves plenty of opportunity to enjoy life. Our best memories are only moments in time. Its not usually "that week on the Islands." Its more likely to be, "that moment on the beach on the island.
  17. One gene down and 24,499 to go. Just happy they are looking!! Bob Thanks BobB
  18. When people are in cycle, the only pain that comes close to, or exceeds the cluster pain, is that which we feel from the lost time with our families. The shared goals and ambitions and family obligations we feel we've fallen short of holding up our part of the bargain. When the cycles end, the first thing we want to do is make up for lost time. Reconnect with the spouse and kids we've hidden from more often than a squirrel hides nuts. It takes time to repair some of the collateral damage a cycle can do. No one should ever feel bad about taking care of business at home when a cycle ends or
  19. Hi Ting, yes she is! As Matty said (thank you Matty) you should be very careful about how you proceed and what you put into that pure child of yours. I know you are very careful and thoughtful in these matters and you will make the right decisions for her. I would be very careful about using anything to treat her headaches at this point of her development. Yes I would be careful of even using oxygen. Neurolologically speaking she has pretty much completed physical growth but it continues to make adjustments based upon environmental factors. These are some of the things we can have an
  20. poet (p[ch333][ch8242][ch601]t) noun 1.a person who writes poems or verses 2.a person who displays imaginative power and beauty of thought, language, etc. Deny it if you must but it's always healthier to accept and take measured pride in one's own qualities and abilities. Bobw
  21. Happy Birthday Donnie Give me a call when you get a chance, Bob
  22. He can stay on the Magnesium. Good luck. Hopefully you'll see some change in those nasty nite time attacks soon.... hang in there, Bob
  23. New Scientist http://www.newscientist.com/article/mg20727764.000-psychoactive-drugs-from-recreation-to-medication.html "Meanwhile, in a study at Johns Hopkins University in Baltimore, Maryland, funded by the Beckley Foundation, Roland Griffiths and colleagues have seen positive results in their study into the use of psilocybin as an aid to psychotherapy to treat tobacco addiction. At Hanover Medical School in Germany, a team led by Matthias Karst has been investigating whether bromo-LSD - a non-psychoactive form of the drug - can be used to treat painful cluster headaches." Bob
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