Bejeeber

What they said (including xBoss!), and an odd thing about the practice of aborting a wake up hit with the addition of an energy shot/drink/caffeine that the great and wonderful Spiny mentioned, is that many of us have noted we can still go back to sleep right after??!! Why? How? It's one of history's great mysteries.

Right? I could hardly believe it the first time I saw a CH'er reporting this phenomenon, but now color me desensitized.

Plus fast acting triptan injections in small doses tend to be orders of magnitude more effective than the slow acting pills. When all you have is pills though, if you're pretty confident of what the timing of an impending hit will be, taking the pill one hour before has been effective for some. Typically like "I always get hit an hour after falling asleep, so I'll take the pill right at bedtime".

Hi @Hoodoo, sorry to hear of the cycle gone rogue, but yep, it appears common for CH to establish what seems like an inviolable pattern of timings for cycles and/or hits, even for ultra consistent decades on end, then suddenly out of nowhere when you least expect it, pull the old switcheroo on you. This can even go for which side you get hit on. Glad to hear it is starting to respond to the O2 and triptans again though - I too would definitely consider that a very hopeful sign. For future reference, I wouldn't be surprised if adopting the full power user O2 approach (if you haven't already) could help you still be able to abort stronger hits.

I don't think you're infringing @sls08221, thanks for the report - I find all reports about the Jesus shot interesting. And while we're on the subject of the shot for non CH ailments - the wife of the chronic CH'er guy who had success with it told me she was so impressed with his results, she got it for issues (I think musculoskeletal) that were making her miserable, and she reported gaining impressive relief too.

Now that Spiny has seconded the RC, I'm going to third it.

Understood about the major concern regarding possible negative effect of busting on mental health. Last I checked it can be a real risk, especially with family history, and is not to be taken lightly. Makes me wish even more for studies on non-hallucinogenic versions like BOL (which there currently is pretty much no availability of) to be undertaken in a big way, with the hope that besides there being great CH killing potential there (which we already pretty much know), it could also be shown to be effective at pushing the happy button.

Also, I hope it's safe to assume your boxing hobby doesn't involve you being hit in the head.

The psychedelics used for preventing CH cycles can indeed also have the side effect of making you happier. Of course YMMV. Personally I'm convinced they've generally lightened my mood. And this "mushrooms make ya happy" deal is moving beyond conjecture, with all the scientific attention now being heaped upon the subject. Like this bit from Web MD / New England Journal of Medicine / London Imperial College: Study: 'Magic Mushrooms' May Be Best Drug for Depression

100% agreed here after decades of forum monitoring - between the two of us @jon019 we probably have going on 50 years of forum monitoring action.

Until someone better acquainted with your dilemma pops along here, I'll just mention that when without insurance or prescription, lots of CH'ers have switched to using welding O2 (it is reputedly the same stuff). This was the result of my quick googling for "welding tanks delivery brooklyn", though I don't actually know whether any of these suppliers deliver like the medical O2 places generally do:

Other than the back thing @Amy123, your symptoms sure do sound classic, and very much like my experience, at least when I was "starting out". Yep, not just a neurologist, but a headache specialist neurologist is your ticket in the doctors dept. So many Ch'ers have been disappointed that a garden variety neurologist can be about as informed about CH as your GP is! You could consider seeking out a telemedicine appointment with an expert. You've probably seen that lot of CH'ers just scoot right around the roadblock of no access to medical O2 and get welding O2 (which is the same stuff) with no need for prescription. Maybe not as easy in a small town. That 6mg triptan you got (injection I presume) was actually 4mg too much. I've been shocked that I, like countless others, can routinely abort attacks (if caught at onset), with 2mg injections. Injections are the fastest, most effective way to abort with a triptan, and splitting doses into 2mg allotments sure helps con$erve supply and lessen side effect risk. I wouldn't recommend waiting until off of pred to start the D3 regimen, I think you should hop on it yesterday. If the D3 doesn't completely prevent your next cycle, busting very often can , and the combo of the two can pack a powerful anti-beast punch, but for best results you do wanna initiate the busting prior to when you expect the will beast pop back for a return visit.

Glad to see you're getting such good advice on here Bosco. I'm going to agree with and comment further on a few of the recommendations: Yep, pred can indeed supply a couple weeks break, but one more thing to watch out for with it is that some of us find the CH can then come back with a vengeance. What looked like a D3 auto-response that you received may have actually been a personal response from the world's top expert on D3 regimen for clusters, if it came from "XXX". It is my impression that the CH'ers most successful at suppressing it, and often shutting it down for long periods of time - like years on end - have mostly abandoned the pharma for the very effective busting, etc. An energy shot will have that much less junk to consume in it than an energy drink. Topomax is pretty much universally reviled among those who have been on it, precisely for the cognitive hit you noted, not to mention its general ineffectiveness

My couple of Pfizer jabs (months ago) didn't kick up my episodic activity any.

I recall being shocked when first hearing of CH'ers experiencing a side switch, but I guess like many others, I've seen enough such reports that they provoke pretty much zero shock value any more, and even seem fairly common. Sorry to hear you went through that ordeal @kat_92 - if it was an MSG or similar food culprit, here's hoping it can be avoided easily enough going forward for prevention of a repeat. I could understand you becoming pretty gun shy about ingestion of soy sauce now!

Ah, searching the forum now and seeing how individuals such as our reality checking uber expert @CHfather have been keeping an eye on the nitrous and how one CH'ers abortive may be another's trigger with it.

Thanks Vipul!

Hi Vipul, would you be able to post the ingredients and their strengths (like 2x, 3x etc.) for the homeopathic meds you were given?

Wow, @spiny, clearly you've been through the epi ringer too, and have some seriously convincing evidence after those various procedures that points right at the epi being the culprit. I actually had the beloved colonoscopy without any sort of sedation or nothin', in order to avoid provoking any CH. Painful? Yes, but of course a relative walk in the park compared to Mr. You-Know-Beasty-Who.

Thank you for the cautionary tales @xBoss- that is some seriously messed up dentistry provoked hell. And @Ricardo, WOW, somehow I had missed or forgotten along the way the thing about laughing gas being an abortive???!!! I recall being given nitrous oxide as a grade school kid while getting some baby teeth molars removed, and man I was partying! I think it ended up being a serious inspiration for seeking out the party smokes when I could get access a couple years later.

So it sounds as if there's the chance with some of these dentist visit induced horrors that the dentist actually poked a trigeminal branch or something, but epi is generally the most likely suspect for pointing fingers of blame at. And I think it may just now be dawning on me what "keister a Zomig" implies.

Yikes you guys, udderly nightmarish on both accounts. @xBoss, when you got kicked out of remission, would this have been at a point in the cycle where alcohol consumption was still safe enough, but (confirming worst fears ) the epi packed that much more of a trigger punch?

Thank you for that highly pertinent report from the trenches Mr. jon! If I could knock out an epinephrine induced one off hit with a triptan while not triggering a cycle, I'd consider that a big win. It sounds like in your scenario that when you came to, the attack may have been well underway though, with no chance to catch it near onset.....

Like, if you're in a remission place where your ordinarily major trigger alcohol doesn't set you off, would epinephrine potentially be that much more still of a trigger than alcohol?

As I search 'epinephrine' here and on f-book I see practically all of the most respected CH advisors warning of what a major trigger it can be, and I'd really be a fool not to take those warnings very seriously! With some impending sinus surgery (just an outpatient deal, something I think of as being no big deal), the only real concern I have is the epinephrine factor. I'm inspired to ask if many other episodic CH'ers in remission have had the lidocaine/epinephrine stuff injected without being set off CH-wise? Apparently epinephrine is favored for its ability to discourage too much bleeding with procedures around the head area with all it's vascular pressure and fondness for shooting streams of blood out as if propelled from a device such as a Super Soaker™ squirt gun.