Bejeeber

Amen.

I have the Bejeebiheebies if that helps any.

Wow, so for someone like him, it's: "Got cluster's? Go lay down in the deep end of your pool!" Or maybe it isn't "lay down" at the bottom so much, since last I checked as a kid you have to empty your lungs to pull that off, and that wouldn't be so O2 enriching? Maybe he uses some weights in order to stay deep with full lungs?

Some can do an afternoon nap??!! Wow that's practically an unfathomable concept to me (when in cycle). And while beer at least may the closest thing to a universal trigger (I unwittingly experienced its power once - never again), some find that a drink like vodka doesn't trigger them. I personally have no intention of 'trying it out' to find out, I'm just not that kind of risk taker - I guess since CH isn't just f**king around here, neither am I.

I'm moving this over to official Cluster-ville territory in hopes that might also help it gain more eyeballs and attention.

WOW. The potential of hyperbaric treatment has been on my radar for a long time, but your report about the deep depths scuba therapy is the coolest - that has to be the about the best surprise you have ever had! Will be interested to see if our long time CH'er (and also scuba diver I believe) @ThatHurtsMyHead has a take on this.

I'm afraid I don't, but want to say good on you for seeking this out, plus I'm posting here to help keep this bumped and getting attention.

Oh.

Yes, weird! And seemingly warranting investigation/research (?)

The most haunting song ever created right there (IMO). Stones at their peak, with the cool, and just passed, Charlie Watts on drums. I'll admit this is something I still cling to...speaking of demons.....as a way of justifying the existence of CH for myself, that I thoroughly deserved it for past evils committed (cruel behavior as a teenager, etc.), but while ruminating on this I also I like to add in there that I've paid the piper at this point and it's OK for the piper to now leave quietly!

LOL between this typical behavior during a hit, and our tendency to personalize CH as a beast or demon, I guess I can't blame anyone for considering literal demonic possession. At least when they remake the Exorcist we should be hired on as consultants/producers for the possession scenes.

True - I too have been happy on occasion to refer to the beast as a demon.

To me belief in demonic possession is the stuff of Salem Witch Trials, Dark Ages etc., so nope I don't personally believe CHs are a form of demonic possession. If I did believe in it though, I would think prayerwould help, and O2, etc. wouldn't?

Here's hoping whoever diagnoses you doesn't subscribe to the apparently still common (but outmoded pure B.S) notion that only males should be diagnosed with CH.

I too salute Spiny's bible dispensation above! I'll just emphasize a couple tidbits Doubly avoid alcohol - it is a HUGE trigger for so many. Holding an ice cube against roof of mouth while breathing freezing air from that blasting car air conditioner vent , until a soothing in comparison "ice cream headache" develops and CH disappears, has been an abort technique that has helped some, sometimes - if caught at onset. Lots of CHers have ditched the medical RX O2 in favor of welding O2 (which is reputedly the same stuff), available without prescription.

Congrats on the ditching of the Dopeymax, and on the awesomely accurate spelling of quercitin (I think).

Glad to see you're at least getting some truly stellar advice @BoscoPiko, and I know a lot of us fully endorse this sentiment: And this is about as chock full of irony as it gets :

Along with the O2 for aborting attacks I think you'll find busting and the D3 regimen for prevention are the most commonly and enthusiastically advised CH killing treatments here. Note none of those are actual meds. Count me as another headbanger who absolutely prefers to avoid the meds if at all possible (and it can be very possible with those powerful approaches), but who is not above resorting to them as a fall back in a real pinch. So even with my general anti-pharma viewpoint I still like to have a headache specialist lined up for prescriptions beyond O2 if necessary, and I figure it could be good for you to be able to consult with one. Glad to see you got a referral here from Racer1, I hope it works out!

Interesting. From the Zok website: How Zōk Works - Zōk provides relief by stimulating the tympanic membrane, which activates the trigeminal nerve and a number of cranial nerves inside the head through inner-ear pressure modulation, thereby providing instant alleviation of pressure and tension inside the head, which are associated with the symptoms of headaches and migraines

So sorry to hear of the continuing preventive fail . And when Sumatriptan nasal fails to provide a lasting abort I know that's the mark of a seriously heavy hit. I'm guessing that having your D3 level tested could provide some useful info here, and apparently it's possible to get such testing/results with some kind of home kit, not having to go through a doctor, but certainly the daddy of the D3 regimen, @xxx, would have the clearest insight on this, hence my attempt to send out the bat signal with wanton inclusion of @xxx in this post.

Politics. I would like to suggest a return to CH specific discussion here, while enjoying the political discourse elsewhere. I can see that so far there are some folks on similar political wavelengths offering views, but can assure that political views of members here - all very good people - are all over the map. The more political it gets, the more divisive it will be, while we CH'ers need to be sticking together during these ultra hot button political issues times.

I've gone the online shopping route too, for every single thing, even groceries, not that I'm imagining having groceries delivered is feasible for everyone.

Count me as someone who also finds @jon019's detailed response above to be an epic masterpiece of helpfulness. Now on the subject of episodic turning to chronic, dude don't worry about it! Easy for me to say as someone who couldn't bear such a going chronic thought during episodic bouts, and considered it to be the ultimate nightmare of nightmares concept, but has now made it through 40 (!) years of remaining episodic, with some seriously long remissions. When I've asked chronics how they could possibly think even for a second that it was preferable to when they were episodic, one of the reasons I've heard is the hits haven't been as strong while they're chronic. No guarantee that'd be the case for everyone of course, but it was something. Thing is, you appear to be on the verge of taming this MF with the various ultra effective non-pharma approaches that have been mentioned, so I think you should now be leaning much more towards a solid vision of life restored than horror unleashed!

Back in the saddle! THAT'S what I meant. DAMMIT I wish I could have conjured that.