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Days Won
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Everything posted by Bejeeber
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Yep, that same scenario and result has been reported by others, hence the "stay stressed" mantra/slogan of some CH'ers.
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Ooh pro tip there for the pic uploads - thanks.
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You did it @BoscoPiko! So good to hear of this latest long battle with the beast finally won. I too am tempted to indulge in "jinx" beliefs, but really they are pure superstition and have no basis in reality right? Well I might even stop knocking on wood. Also congrats on getting pics to upload - that's something I've been unable to pull off lately. Your big chunky bear of a girl Abby is my idea of a REAL dog! Now excuse me while I go pet our....um...chihuahua.
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Stumped, worn out and looking to hear from other chronic’s
Bejeeber replied to Freud's topic in General Board
WHOA - that was my typical sort of mistake - I made the overly long leap of a stretch and interpreted "MJ juice" as "marijuana juice" - as in a THC/CBD tincture or some such. Thanks for setting me straight, and never mind now about the MJ juice!!! -
Stumped, worn out and looking to hear from other chronic’s
Bejeeber replied to Freud's topic in General Board
I have a family member who has become quite the insomniac - any particular version of the MJ juice you'd recommend? -
Intriguing concept! I haven't personally attempted such a switcheroo, so I got nuthin', but am now popping the popcorn for the viewing of any responses.
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Yep, this seems to have been a real game changer in itself for a lot of CH'ers.
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LOL that's the best one of the day. On the not-so-funny subject, when I'm talking about CH induced anxiety BTW, I tend to characterize one aspect of it at least as the 'ol PTSD-like terror / extreme dread of upcoming attacks.
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Glad to hear he's on the D3, sorry to hear of the anxiety and the attacks.. If he ever decides to go the busting route, a welcome side effect of that can be lasting anxiety reduction for some of us. I'm still betting he's most likely to be episodic (which would mean no need to be hiding out forever), plus my hope is he can achieve some prevention of cycles altogether, very much lessening the requirement to be managing attacks and stuff.
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I've tried stuff like converting a post to plain text in an external editor, scanning it for unicode characters, pasting it back in, splitting the message up, etc. but still with no love. Once it came down to the use of the word 'just' causing the error in posts of mine, but that was a moving target that no longer triggers an error. The only explanation left other than xBoss's is it's the beast f***ing with us.
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Stumped, worn out and looking to hear from other chronic’s
Bejeeber replied to Freud's topic in General Board
What they said. But now here I go blabbing my mouth off even though I'm not chronic, and you have probably long been very well aware of the Jesus Shot, but yeah last I heard it was (anecdotally) showing better results for chronics than episodics. I even tried searching the forums for Freud Jesus Shot, to confirm my assumption it's nothing new to you, but came up empty, so this is me saying the dumb thing. -
So sorry about the forum bug that is causing the error messages and preventing some posts from posting.....I've been encountering it too, and it is frustrating enough when out of cycle, but when experiencing chronic Kip 10's it has to be beyond infuriating. FWIW a tech person has been looking into it.
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Sorry to hear of the bad side effects, but glad to hear of this bit and hope you can get back to it ASAP! I've had the same impression as Spiny, seeing mixed results reported from CH'ers regarding the shot, with no wide consensus as to whether it is nice or evil for CH.
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Hi @A-Z, I only have an exceptionally anecdotal contribution regarding memory. I don't know how much it may be related to CH, but I considered my memory to be 'bad' until getting on Phosphatidyl Serine (which is touted for memory) years ago. I've been on and off it a few times since, and whenever I go off I notice the memory slipping again. Feeling very fortunate that the memory is significantly improved, though certainly not so miraculously much that it could be described as stellar - I know I've displayed some glaring lapses right here on this forum. I think there was just maybe a sideways kind of response to your question about mood. Some of us don't know if depression is related to CH, because busting has had the welcome side effect of lifting our moods, and with continued maintenance busting, this mood lifting can potentially go on for years! Count me as one. There have been a lot of CH'ers here struggling with depression though. I don't know if it is a higher percentage than John Q Public, or maybe a correlation has been made that I once knew of but have FORGOTTEN! OOF! I personally like the meditation action (or inacation? ). Just recently there has been more discussion here about the Wimhof breathing method, and I notice he says it goes really well with meditation. I tried it a bit last last night, and intend to try it some more. The really dumb thing is I can't pursue meditation when in a full on cycle though - it's a hellacious trigger for me, just like naps, night time sleep, and most anything else relaxing!
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Personally I would assume he's episodic and for now anyway, forget the fears of possibly being chronic. You of course have so much else to think about, and the 9 week duration of his CH so far doesn't indicate chronic. I have used imitrex a lot in the past, in a pinch, when I couldn't get an abort with O2. There's not a tremendous amount of love for it around here for it, or any other drug really, for good reason (potential side effects, etc.). I much prefer to blow an entire cycle away via busting and have done just that repeatedly, but if a cycle spins out of control on me I'm not willing to just take a CH hit when I have imitrex on hand and it is the only thing that is going to abort it. It is probably unheard of for someone to have used the tremendously impactful, game changing Extending your imitrex tip for injections with their very first dose ever, but hey your husband could, if he ever needs to go there with the trex. I think most would advise that if he's going to be on Verapamil, better to get on it sooner than than later, but I'll leave that to those with more verapamil experience than i.
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Hi Kimbers! I have to agree that as exceptionally unfortunate as it is for anyone to experience CH, it is decidedly fortunate for your husband to have had it diagnosed and addressed relatively early, and that you are helping him. Speaking of fortunate, I see Dallas Denny posted while I was writing this - you just got advice from a true RINGER there - I know I've listened very closely to what DD has had to say for over a decade now, and have always taken great stock in it. I can confirm a lot of us are quite familiar with prednisone tapers. I really hate to confirm this part, but yes after the taper down, the attacks can come back. They have always come back after a pred burst for me, but occasionally it will actually break the cycle for someone, so there's that ray of hope. Meantime good on you for not sitting on laurels - it is indeed time (IMO) to be doing this research, and pulling together a mighty arsenal for fighting back and potentially killing off the beast (one cycle at a time). Dallas Denny isn't kidding around about the the D3 regimen as a preventive, O2 as an abortive, and if he had mentioned busting as a powerful preventive, he wouldn't have been kidding around about that either! You hadn't asked yet if some of us really do find significant relief and get our lives back. The answer is yes.
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Amen.
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Role of structure of the nose in cluster headache
Bejeeber replied to Tony Only's topic in General Board
I have the Bejeebiheebies if that helps any. -
Wow, so for someone like him, it's: "Got cluster's? Go lay down in the deep end of your pool!" Or maybe it isn't "lay down" at the bottom so much, since last I checked as a kid you have to empty your lungs to pull that off, and that wouldn't be so O2 enriching? Maybe he uses some weights in order to stay deep with full lungs?
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Some can do an afternoon nap??!! Wow that's practically an unfathomable concept to me (when in cycle). And while beer at least may the closest thing to a universal trigger (I unwittingly experienced its power once - never again), some find that a drink like vodka doesn't trigger them. I personally have no intention of 'trying it out' to find out, I'm just not that kind of risk taker - I guess since CH isn't just f**king around here, neither am I.
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WOW. The potential of hyperbaric treatment has been on my radar for a long time, but your report about the deep depths scuba therapy is the coolest - that has to be the about the best surprise you have ever had! Will be interested to see if our long time CH'er (and also scuba diver I believe) @ThatHurtsMyHead has a take on this.