Bejeeber

Oh OK little pocket pal yorkies - I bet they're good for helping keep your spirits up. Plus you probably don't have to walk very far with them to give them lots of running exercise. LOL about the plant seeds. If she has any cows in her backyard, maybe you can ask about picking some mushrooms back there. 8-) One guy on here did have cows in the yard and realized he only needed to step out there to snag some busting supplies. [smiley=vrolijk_1.gif]

OK, first of all, that was FUNNY Fabac. ;D I think the way you dealt was ingenious - hard to think of any way better'n that. She shouldn't be coming after you with a coke and some aspirin any more. Well I pray she doesn't while you're on your walk (vicious dogs ordered to ATTACK).

Thanks FG, I'm also interested in what a president's reception is, but knowing where and when is definitely good info too!Â

Ha, I thought I'd try my hand at some Potter style brevity in a reply there. That "no" is just as far as I've seen here or heard, but I'm not exactly 100% in the loop or a source of late breaking info for BOL-148 developments.

No. [Edited due to the fact that I was WRONG]

Can someone inform lil' 'ol ignoramio bumpkin me what exactly a president's reception is in the case of this conference?Â

Wow, that just rocks like no other - you made this, didn't you? [smiley=thumbup.gif]

Agreed, and in my opinion, none higher than CHfather, who I'm very glad to see just offered his typically super helpful info tailored to your specific situation Luigi. There are large numbers of members here who have adopted busting (and also the D3 regimen) with success when decades of pharmaceuticals have ceased to work for them, only to wish they'd known of these alternative approaches and been able to pursue them first. Welcome. Here's a Newsweek article on the subject of busting which I think is a good one: http://www.newsweek.com/treating-cluster-headaches-psychedelic-drugs-81473

Oh no no no no NOOOOOO! :o

I like that idea! Then there's Giuseppi who was extremely successful with carrying an E tank with a demand valve in his patrol car with him everywhere he ummm.....patrolled.....and would pull over real quick whenever a CH was about to hit. Of course if you're navigating winding mountain roads maybe pulling over real quick isn't always such a realistic option....

That sux. Ooh that sounds like it might not blow - thanks for the hedzup.Â

My experience with Stadol supports Potter's fairly brief commentary. This synthetic opioid didn't work for me, and when I've seen the subject come up I don't recall anyone reporting having a successful experience with it for CH. I think of it as being one of those buncha drugs that was being tried out for CH 20 + years ago, but has mostly fallen by the wayside now due to it's failure.. So I'm sorry Spiny, but this one sounds to me like a swing and a miss form your neuro. :'(

Well now that is the bona fide zinger right there, for a chronic CH'er to get such results. WooDAWGY, man it would be cool if you could make the upcoming conference. Granted it's a bit of a hike from California, but hey you're so close to the Ontario airport there, and Nashville can be fairly nice this time of year (no guarantees though ). CONGRATS on that astounding 90% decrease.Â

Yeah, since it has some branching piece of spaghetti that looks like it goes over the top of the eyeball, that does look to me like it could be it. Good find, Didge. 8-) [side note: my CH, including shadows, has been very mid trigeminal focused - right behind the eyeball, sometimes radiating down to upper teeth. I didn't even know the temple/upper trigeminal could be so heavily involved in a CH attack until I read about the experiences of others with it here.]

I point my eyes dowward as if I'm looking down, then press at the top center of the 'ol eyeball. Well the top, but maybe not the exact center, a little off to the side towards the ear on that side of the head. For me, it's a matter of just pressing around in that region until BINGO, nerve hit. Takes about 1 second to find, it's a pretty big and easy to find target for me. See how long you can stand pressing it. Let's all try it. C'mon it's a fun and wholesome activity for the whole family to enjoy! Hey I just tried it again and I think the reason I vibrate the fingertip is that it's the only way I can keep the nerve continuously lit up, otherwise it's just a quick twinge, then gone when pressing. I call this spot a nerve, but I'm willfully ignorant about physiology and stuff, so I don't really know if that's what it is... And my next experiment just revealed that on the non CH side of my head the nerve spot is more towards the center of the head, so I suppose this could be variable from individual to individual. PLUS I've found that after a certain amount of activating this nerve the pain/creepy itching associated with doing this can go away, not to be easily re-activated, and that can be the point for me where the shadow also shuts off. This shutting off tends to be temporary, doesn't necessarily last as long as an hour. End of rant on the Jeebs Jibulator tm shadow squashing procedure. For now.Â

Hi A-Chimp! Thanks for checking in about this subject here. I don't have experience with licensed massage therapy, but I know some others here do, and hopefully they'll see this and respond. I can just tell you that I have a pressure point or something on top of the eyeball on the affected side that when I press with a fingertip (thru the eyelid) I can feel a distinct nerve pathway - I bet everyone could feel it on this spot. ANYHOO I've been known to knock down CH shadows for a short time by pressing on it (in a vibrating reflexology kinda way, not sure if that's necessary though). It feels damn creepy, kind of like an "itchy" nerve, but it works for me. I think I may have tried it with an oncoming genuine whopper of a CH attack at one point, but gave up on it and went for other abortives. Thanks to busting, etc. I haven't had the "opportunity" to test it with anything more than a shadow since. I hope I never do have that opportunity again.Â

That is good idea! I buy stuff from amazon all the time, so I just followed the link and signed up for the CB donation smiles.[smiley=vrolijk_1.gif]

Although what you describe is pretty much exactly what I've experienced with the wake up hits at the peak of a non-busted cycle, despite using high flow 100% O2, I hope your soon to arrive mask, and possibly a higher flow than 15 LPM, can still help you achieve longer lasting aborts. Yeah who the hell would wanna do caffeine at 2 AM??!! Well maybe a super desperate headbanger might try it. I've seen several others report that for some ultra counter-intuitive reason, slamming an energy drink/shot before the O2 for a wake up hit will not only make the abort last longer, but somehow doesn't prevent them from going back to sleep (!). These are some of the same folks who have switched to using welding O2, due to the expense of medical O2.....

Hi wifey - I echo Fabac's sentiments, so sorry to hear of the loss of your husband, and we admire YOU. Regarding the neurostimulators, since I saw that they'll be covered at the conference, I've been waiting until then to get informed, so I'm sorry, I must plead ignorance at this time. :-? I have the feeling there'll be plenty of people able to offer input on that subject here after the conference.

Fabac, just in case you haven't run across this info tidbit, CH dosage of melatonin before bed is higher than ordinary dosage just for sleep. A common approach is to start at 9 mg, and work all the way up to 18 or even 21 mg if necessary. On the triptan injections end, I hope you'll be deploying lower (but still highly effective) doses a la the "extending your imitrex" tip: https://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1361807077

Thanks for reporting about this here par - looking forward to your next update(s). Glad to hear the mm has significantly lessened the severity and frequency of your CH - here's hoping you'll be able to extinguish the CH cycle entirely now!

Hi Brett, I have the feeling others may be along with some better ideas regarding how to proceed, but I can tell you that as hard as it is for me to personally imagine, switching sides is not an uncommon phenomenon. I know some CH'ers have been able to up the effectiveness of their busting if it starts flagging by switching to another busting substance - such as switching from vitamin M to Vit L, not that the L is exactly easy for everyone to get. Then there's the D3 regimen, and other miscellaneous ideas such as when Dan's M stopped working for him, he found occipital FACET nerve blocks would....

Dammit Ajax, will miss ya this year, but understood that the 20th anniversary duty calls. I think 20th is considered kind of a big deal? If 25th is the silver anniversary, then 20 is um, maybe zinc or something?Â

Jeez that's one stubborn case of CH you have brs82. :'( Reminds me a bit of the experiences of our forum member Heyupal, who incidentally has had his best luck recently with combo M&L busts. Here's that thread if it holds any interest for you: https://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1406929393 Looking forward to meeting ya at the conference, and ya might even want to compare notes when you're there with yet another stubborn chronic, Dan/Hipshot, who will be there (he's the Texan chap who has found success with the facet nerve blocks when nothing else was working). One more thing: I really appreciate seeing BostonHeadacheDoc's detailed reply to this topic!

Whoa. Don't ever get stuck in a phone booth with that stinkity dude.