Bejeeber

Hey Tim, I was there, didn't get a chance to meet you, but enjoyed your talk. [smiley=thumbup.gif]

Well John BeBee is a hero in so many ways to us clusterheads, so it's not exactly a surprise at all to hear how he rushed to your aid! AGREED. From what I've observed and experienced bumping up to higher flow can make the big 'ol difference. With 15 working for you sometimes, I bet the higher flow will REALLY work. 15 LPM, and even 25 LPM in high cycle, doesn't do jack for me, but 45 LPM does, so especially after seeing BB's O2 demo and talking to Dr McGeeney on the high flow subject, I'm thinking you'll be a prime candidate for the high stuff, you may want to consider a regulator that goes to 45 or so. 8-) That whole driving home experience sounds like something out of a movie - a very disturbing movie - between the 4 hits and the mind blowing close car crash encounter. Man it's great to have you on this forum now Michael. This is a genuine boon for us. I was glad big time to get a chance to talk to both you and your ma , and get some some of your insight on the hemp oil CBD subject.

HATE the thought of you being hit while driving home LadyLÂ , but agreed with all your sentiments about the conference.Â

Well she sure sounds like someone who is really nice, concerned and well intientioned, that's for sure. If she can go ahead and order some spores, then next time she brings over some cookies, also drop off a dozen grams of cracker dry mm, that would be a super sweet gesture. ;D Or best yet, she could ask around among friends and locate some pre-grown mm right away.Â

Color my previous "no" as definitely 100% WRONG now, thank gawsh. There is forward motion again with BOL-148, as revealed on 9/20/2014 at the clusterbusters conference. There will be the formality of toxicity tests, then a plan for initial trials in Europe. My impression was that "if lucky" the program to bring it to market it could take 5 years or so. No ironclad guarantees were issued regarding whether the efforts would ultimately be fruitful. Sorry I didn't retain more info about it, but I believe there is to be an announcement this monday 9/22/14 at http://www.savanthwp.com// The same company is working on a non-hallucinogenic version of ibogaine: http://www.savanthwp.com/SFBusinessTimes_Jan2013.pdf The only downside to me about any of this is that animal trials will be involved. Sorry, but IMO that is completely unnecessary and uncalled for with BOL-148 (it may be required by the FDA though....?)

Day 2: LORDY, 'twas as inspiring as all git out! Bob Wold mentioned in closing 4 of his favorite things that had transpired. 2 of those that I remember are these announcements: Personal note: I was fortunate to connect with a whole lotta CH'ers and supporters and am beyond grateful for that experience. Undoubtedly there are rowdy headbanging conference folk doing it up with some saturday night revelry as I type this. 8-)

OK, well let's add Racer1 onto the long list of luminaries who've had to cancel at the last minute, DANG. Fortunately it's still record attendance, and day 1 has been great and energizing. Well it was for those not on the receiving end of some CH hits, as THREE people in close proximity to me were as I sat during presentations. Dr. McGeeney says the potential new treatment for CH he's most excited about is the anti-CGRP antibodies that pharma is racing to develop. Well that's the way I remember that part anyway - anyone please correct anything I may have mangled there. BB subbed for Bill on the O2 breakout and did a fantastic job. Here's one idea I got from it - staying on 4-6 LPM with a nasal canula, and sleeping with it on, after a high flow abort of a high cycle wakeup hit, can potentially keep that next hit from coming back an hour or so later. I didn't notice anyone stepping in for Racer1 in the photo snapping dept. This up to the minute update from your conference correspondent BloggerMcJeebs.Â

Hi Formby, I just have a couple quick thoughts as I'm at my iPad before I have to bolt out the door here: RC (rivea corymbosa) seeds can potentially bust CH but without the kind of psychedelic tripping concerns associated with mushrooms. When o2 stops working, upgrading to higher flow, 100% O2 usually gets it working again! There's a specific vit D3 regimen that even skeptical ol me has to admit can be surprisingly effective for some. Are the attacks coming on both sides, but trading off, one side at a time? If they hit both sides at one time, well there are other conditions with a CH like intensity (and as far as I know, may be concurrent with CH) that may respond to other treatments. Hang in here, you've come to the right place.

Oh OK little pocket pal yorkies - I bet they're good for helping keep your spirits up. Plus you probably don't have to walk very far with them to give them lots of running exercise. LOL about the plant seeds. If she has any cows in her backyard, maybe you can ask about picking some mushrooms back there. 8-) One guy on here did have cows in the yard and realized he only needed to step out there to snag some busting supplies. [smiley=vrolijk_1.gif]

OK, first of all, that was FUNNY Fabac. ;D I think the way you dealt was ingenious - hard to think of any way better'n that. She shouldn't be coming after you with a coke and some aspirin any more. Well I pray she doesn't while you're on your walk (vicious dogs ordered to ATTACK).

Thanks FG, I'm also interested in what a president's reception is, but knowing where and when is definitely good info too!Â

Ha, I thought I'd try my hand at some Potter style brevity in a reply there. That "no" is just as far as I've seen here or heard, but I'm not exactly 100% in the loop or a source of late breaking info for BOL-148 developments.

No. [Edited due to the fact that I was WRONG]

Can someone inform lil' 'ol ignoramio bumpkin me what exactly a president's reception is in the case of this conference?Â

Wow, that just rocks like no other - you made this, didn't you? [smiley=thumbup.gif]

Agreed, and in my opinion, none higher than CHfather, who I'm very glad to see just offered his typically super helpful info tailored to your specific situation Luigi. There are large numbers of members here who have adopted busting (and also the D3 regimen) with success when decades of pharmaceuticals have ceased to work for them, only to wish they'd known of these alternative approaches and been able to pursue them first. Welcome. Here's a Newsweek article on the subject of busting which I think is a good one: http://www.newsweek.com/treating-cluster-headaches-psychedelic-drugs-81473

Oh no no no no NOOOOOO! :o

I like that idea! Then there's Giuseppi who was extremely successful with carrying an E tank with a demand valve in his patrol car with him everywhere he ummm.....patrolled.....and would pull over real quick whenever a CH was about to hit. Of course if you're navigating winding mountain roads maybe pulling over real quick isn't always such a realistic option....

That sux. Ooh that sounds like it might not blow - thanks for the hedzup.Â

My experience with Stadol supports Potter's fairly brief commentary. This synthetic opioid didn't work for me, and when I've seen the subject come up I don't recall anyone reporting having a successful experience with it for CH. I think of it as being one of those buncha drugs that was being tried out for CH 20 + years ago, but has mostly fallen by the wayside now due to it's failure.. So I'm sorry Spiny, but this one sounds to me like a swing and a miss form your neuro. :'(

Well now that is the bona fide zinger right there, for a chronic CH'er to get such results. WooDAWGY, man it would be cool if you could make the upcoming conference. Granted it's a bit of a hike from California, but hey you're so close to the Ontario airport there, and Nashville can be fairly nice this time of year (no guarantees though ). CONGRATS on that astounding 90% decrease.Â

Yeah, since it has some branching piece of spaghetti that looks like it goes over the top of the eyeball, that does look to me like it could be it. Good find, Didge. 8-) [side note: my CH, including shadows, has been very mid trigeminal focused - right behind the eyeball, sometimes radiating down to upper teeth. I didn't even know the temple/upper trigeminal could be so heavily involved in a CH attack until I read about the experiences of others with it here.]

I point my eyes dowward as if I'm looking down, then press at the top center of the 'ol eyeball. Well the top, but maybe not the exact center, a little off to the side towards the ear on that side of the head. For me, it's a matter of just pressing around in that region until BINGO, nerve hit. Takes about 1 second to find, it's a pretty big and easy to find target for me. See how long you can stand pressing it. Let's all try it. C'mon it's a fun and wholesome activity for the whole family to enjoy! Hey I just tried it again and I think the reason I vibrate the fingertip is that it's the only way I can keep the nerve continuously lit up, otherwise it's just a quick twinge, then gone when pressing. I call this spot a nerve, but I'm willfully ignorant about physiology and stuff, so I don't really know if that's what it is... And my next experiment just revealed that on the non CH side of my head the nerve spot is more towards the center of the head, so I suppose this could be variable from individual to individual. PLUS I've found that after a certain amount of activating this nerve the pain/creepy itching associated with doing this can go away, not to be easily re-activated, and that can be the point for me where the shadow also shuts off. This shutting off tends to be temporary, doesn't necessarily last as long as an hour. End of rant on the Jeebs Jibulator tm shadow squashing procedure. For now.Â

Hi A-Chimp! Thanks for checking in about this subject here. I don't have experience with licensed massage therapy, but I know some others here do, and hopefully they'll see this and respond. I can just tell you that I have a pressure point or something on top of the eyeball on the affected side that when I press with a fingertip (thru the eyelid) I can feel a distinct nerve pathway - I bet everyone could feel it on this spot. ANYHOO I've been known to knock down CH shadows for a short time by pressing on it (in a vibrating reflexology kinda way, not sure if that's necessary though). It feels damn creepy, kind of like an "itchy" nerve, but it works for me. I think I may have tried it with an oncoming genuine whopper of a CH attack at one point, but gave up on it and went for other abortives. Thanks to busting, etc. I haven't had the "opportunity" to test it with anything more than a shadow since. I hope I never do have that opportunity again.Â

That is good idea! I buy stuff from amazon all the time, so I just followed the link and signed up for the CB donation smiles.[smiley=vrolijk_1.gif]