Bejeeber

Ugh that seems like it sums the situation up pretty bluntly but accurately. :'( At this point, drawing from memorable Ricardo and Jeff quotes, this topic could be retitled "Patience and a buttload of hallucinogens vs surgeons just wanting to cut on peoples brains for money"

Hi Robert, I've seen plenty of other CH'ers over the years report onset following a head injury, so as you may know, you're definitely not alone there. Glad to see our preeminent CHfather is right on the case with his trademark condensed and spot on advice pointing to the most effective treatments.

What Jeff said about apologies, ashmologies. ;D

Sorry, coulda picked a better time to whip out some attempted pseudo tuff love. But not knowing when to shut the crappity smack up already, and having the distance of the Atlantic ocean to protect me from a vigorous and possibly well deserved face slapping , I'll close with this attempted zinger: When someone (like MG) has said "if I get to hungry, my body goes into panic mode. I can't think straight, I am incapable of making a decision, even about what to eat.", it reminds me of a certain low blood sugar related state, which can be called hypo-whatever, but is a real thing that a certain percentage of the non-diabetic population experiences, and for which (DOES THIS SOUND FAMILIAR?) tests/drugs/doctors may have little to nothing to offer. Glad to hear your Snicker barring is actually rare these days BTW. Jeez now I realize I coulda skipped launching into the entire misguided lecture series. ;D I'm still finding DrTy2's mention of low blood pressure intriguing. Of course there's often a good natural way to treat this sorta stuff, and besides pickles 8-), I'm recalling that licorice root is known as an effective treatment for low blood pressure...

Interesting - I saw some TV thingy once where low blood pressure patients were supposedly stabilizing their blood pressure by eating pickles (?!). And MG it has been long established that you have all the signs of being hypoglycemic (as am I) so ya think maybe it's time to get a wee bit smarter perhaps about eating ultra sugary crap like Snickers that spike the blood sugar level way back up in a real jiffy (weeeee!) but correspondingly tend to then induce a low blood sugar rebound (BOOO!) ? The nuts in there are good. It would be pretty basic common sense-ish for a hypoglycemic who has been lectured about this before to eat nuts but skip the honkloads of poison sugar. <End of tuff love lecture>

I'm sorry you were wrongly prescribed that, as so many CH'ers still are. 10 LPM with nasal canula is just pathetically ineffective for a large number of us, and it is not by any stretch of the imagination high flow 100% O2. The good news is there's a very good chance O2 could still work for you if administered effectively. So yay for that.Â

Doh! Alright so much for my oh so clever guesswork. I have to wonder if it's just a matter of consuming enough truffles (and there's one strain that's particularly strong - I wish I could remember it's name) in order to get to the same trip level (and therefore the same effectiveness) as with mushrooms.....? Sorry to be a pest, but did you try high flow, 100% O2? The outmoded, but still widely attempted low flow rebreather manner of administering O2 is weak. A joke. Doesn't work for me and countless others. 100% / High flow is way more effective.

Hi timmyy from the Netherlands . OK I'm just guessing about the Netherlands part since I know that's where psilocybin truffles are legal but mushrooms aren't. Happy to report truffles have indeed been good enough for others who have tried them. Psilocybin does work for the majority of CH'ers (and there have been some good reports from migraineurs too), so I'm not sure that at this point you should even be concerning yourself with how many times you bust before giving up. Fortunately it's common to get an indicator with the very first bust that things are improving, or at least starting to change. 8-)

What CHf said. 8-)

Hey Tig, good to hear from ya. A remission that lasts a couple years or more is fortunately pretty common for an episodic after 20 years or so with CH (as are the unfortunate extended bouts when in cycle, and the increased intensity). [Edit: DOH I just came back and realized I went all Deja Vu on y'all here, as I had made the same observaton in this very thread a week earlier]. Here's to some continued really extended remission time for you (we can always even hope for complete burnout, but I'm of the mind we should remain armed to the teeth with preventives / abortives for a quick response counter offensive in case a surprise attack comes our way). If it does come back at one point, now that you're hanging around here, I bet you'll pick up some powerful ways to deal with it. 8-)

Hi SOS, I sent a PM to you about imitrex pills, etc. before I saw there was this message board topic here, so what the heck, I'll go ahead and post the pills part here too for public consumption: - there's that trick that some CH'ers report where if you're expecting an attack at a certain time of night you take the ordinarily too slow acting imitrex pill one hour before, and it can prevent it from happening.....works especially well for those who are routinely hit about one hour after going to sleep. Also, I believe some have experimented with crushing pills or something to get them to work faster, maybe someone will chime in about that sorta thing.

Super interesting, this is.

Well that sounds like a common, familiar (but not guaranteed!) pattern for a long time CH'er, what with the remissions becoming longer, but when the beast does show up again, he decides to hang around longer and with increased ferocity. You sure sound like a prime candidate for busting. With any luck you won't have to find out though for another 5 or more years, with the remissions continuing to extend. Heck in 5 years the promised future will be here and we'll all be able to just hop in our hovercrafts or strap on our jet packs and pick up some vitamin M at the corner store. ;D If I go looking for side effects I hit WebMD, Mayo, etc., but I try not to look at them because they are a real downer , and I hope my prescription drug days can just be over anyways. I imagine you're well aware that prednisone is the mutha of all the horrible permanent side effect bad guys (if it has been taken at high doses for a duration longer than the standard short burst). I can attest to it's ability to mess with an immune system mightily, and others here can show you their hip replacement scars. :'(

Now that you mention it, I have some of that Russian potato booze laying about here, too, and wouldn't mind using it instead of rum. Does anyone know of a reason why the actual rum type of hard liquor might be important to use vs vodka?

Oh....looks like I need to go back and edit my post above to include you with Arizona and Hawaii! Hmmm if enough of us personally rebelled like that it could force a universal abolishment of the evil and insane "spring forward". 8-)

DST is basically the stupidest idea ever, even if it didn't unleash the beast on the CH'ers of the world. WHY are we still doing this daylight savings time utter BS??!! Arizona and Hawaii [and POTTER] have abolished it, so what are the rest of us waiting for? Can I get an amen?!

While CHf is strapping on his flak jacket, I think it's interesting to note how long this mamajuana goes back in native culture (several thousand years, like the use of RC, mushrooms, etc.,) without the alcohol component for much of it's history. I guess whether the original non-alcoholic version could still be effective for CH would be another of the bazillion and three things we're coming up with here to test out. I'll paste some background info below (copied from this site): http://www.natural-safe-hormones.com/mama_juana.html "This herbal combo has several thousand years of use in the native culture. The traditional use of this tonic combination takes several forms. About half use it as tea. About a quarter of the use is as tincture made with the local rum. (This is the form when the herbs are used as an aphrodisiac: the men commonly drink several shot glasses at a time.) The third way of using these herbs is to ferment them in water with sugar or honey. This "mabi" is sold from vendors carts like soda pop." Meanwhile I'll go out on a limb and predict not much flak will be received at ch.com. 8-)

Herbal combinations are definitely known to work synergistically, so I wouldn't be surprised if one single herb in there is NOT the "cure". I'm also not exactly holding my breath for an explanation via current medical science of exactly how or why mamajuana works, as last time I checked, the state of the science isn't yet quite up to understanding or explaining everything a single herb will do, let alone the needle in haystack scenario DrTy2 mentions regarding herbal combinations. Still, that would be an interesting experiment to split out each herb - several major universities should be launching extensive mamajuana studies right now. Still not holding breath. ;D

It's great to have you and your pharmacological expertise here DrTy2, and I too am very happy to hear how well the busting is working for you so far with this cycle.

Ooh, still AWESOME after all these weeks. I've got me eyes glued to this thread.

What alleyoop and CHf said - you know the home team here will always be rooting for ya Bonkers and Ron. If this works for Michael I'll be immediately buying stock in mamajuana , although I guess I'll have to get in line behind DD because I think the stock buying thing was originally his gag. ;D

That IS pretty much the ultimate LOL-worthy classic. Complete with perfect music and everything. ;D ;D - and I see there is even a petition to get the video of the LSD induced sports history event released for viewing: http://www.petitiononline.com/DockNoNo/petition.html

It's such a good thing to see a Cluster Headache - Natural Treatments group getting together in person like that there. How great would it be if these would start springing up in all kinds of different countries?! Considering the high level of participation of headbangers from the UK and the Netherlands on this message board, I'd say y'all are overdue there! (definitely a super high Canadian participation here - I think of the US and Canada as being kind of lumped into one continent, making it reasonably feasible for us both to attend the annual international ClusterBusters convention held in the US....?) Moxy, you can go ahead and organize the local UK meet and greet, I'm sure you wouldn't mind being volunteered for that now would you? ;D 8-)

Wow that's good to hear, it's one impressive and really well done spot for sure - granted it could be even perfecter if it's mention of O2 included the high flow thing, but I'm NOT complaining, this is a big 'ol win. What a payoff for all the efforts y'all are making out there. [smiley=thumbup.gif] Mucho gratitude to Kirt and everyone involved!

You Finnish headbangers are the coolest. 8-) Thanks for the photo! And who's that in the cowboy hat? I get this feeling it might be you.Â