Bejeeber

After having initially tried arms and legs, I'm a strong proponent of the belly site BostonHeadacheDoc mentioned for injection, and have used it exclusively for years (although I haven't had to use it recently thanks to busting and lengthening remissions). I learned about it at ch.com years ago where many CH vets have adopted it. It's certainly the most accessible injection site, and I've found it tends to be significantly less painful, especially when NOT using the auto injector. Win/win. 8-) I find that injecting to the side of he navel works well.

Just an idea....would it work for him to have the O2 set up and ready to go right there in his room, so he could sit up, grab the mask and go for it at 15 LPM the minute he wakes up, with no delay from rousting a middle man middle mom to operate it for him? Catching it as close to onset as possible is ultra crucial, as I see you already realize. A surprising number of headbangers find that also gulping an energy drink/shot helps the O2 work faster/better, and for some reason they're still able to go back to sleep afterwards (?!).

COOL. [smiley=thumbup.gif] 8-)

That is the most 100% true thing that's ever been uttered here. Case in point: Sansert never helped me at all. REALLY GLAD to hear how well it's working for y'all right now though, as you continue to seek out long term, non toxic solutions.

One thing I can tell you is this, the scenario below is extremely common, as reported by countless longtime CH'ers (such as myself): "Just when you think you have your CH behavior/cycles all figured out and predictable, they'll change like you never expected". Glad that it's a good behavior change so far for your son. Understood why you'd be on guard and in a high state of readiness right now though.

Hi Sweet, I do think it would be worthwhile - you could very well abort even the bad ones with a high enough LPM. Personally I tend to think of 15 LPM as a minimum for a starter set up (this may require getting a higher flow regulator than a given O2 supplies company will have on hand). Then again since you've been having some success with the machine, you may just find 12 LPM [of 100% O2 from a tank] to be effective..... You're on the right board for discussion of BOL-LSD trials, but I'm afraid I'm not up on the latest there.

It's probably plenty clear enough that you intended for that to read "1.5 units" but hey I'm not above persnickety nit picking over decimal places. I know another chronic feller who has consistently aborted hits for years with the 1.5 mg dose, four aborts per shot, just like you, ClusterChuck.

Sorry, I don't have a clue about that thumbs no workee phenomenon preceding an attack, but if you have a decent neurologist, it sounds to me like one the first things to bring up at the next visit.

NO, I can not.Â

That one is brilliant. I would insert "pain meds" or "pain killers" in there because I think those clearly telegraph the message. Maybe even insert the word mere in there also: Taking mere pain killers for clusters is like trying to swat a pterodactyl from the sky with a flyswatter! And the more I think about the painting CHf posted the image of, the more I think it, combined with a super punchy slogan below it, could be the ultimate branding.

The branding thingy is a good idear! And I like CHf's idea. This branding example is most excellent IMO: But wuh-ohhhhh, what have you unleashed now Cindy???!!! Cluster Headaches; Whose brilliant idea was it to call the most severely painful condition known to mankind a HEADACHE???!! Cluster Headaches; I'm not particularly fond of them at all! Cluster Headaches; NOT really any better than a poke in the eye with sharp stick! Cluster Headaches; Take that silly shotgun out of your mouth, "busting" may get rid of these with a lot less icky mess! Cluster Headaches; Sufferers are finding one of nature's mind blowing substances can keep them from wanting to blow their entire HEADS clean off! Cluster Headaches; Take 1.5g of dried mushrooms and call me in the morning

Austral, while I too of course completely understand and relate to the desire to stop at nothing, I appreciate your cautionary note and your advice to do some research and some risk weighing when considering this and all other CH treatments.

The water guzzling thing always seemed a bit sketchy and unsustainable to me, was never inspired enough to try it.

I had my remaining 2 wisdom teeth removed to help with my CH. It didn't work at all of course, and the world is littered with extracted teeth from hordes of CH'ers who hoped to find relief through dentistry, but failed. This is about the most classic wild goose chase I can think of related to CH. I even got hit when driving home from my teeth extraction appointment. I remember well those dry Santa Ana winds in Californy - good for air quality in the valleys, bad along the coast.

Whaaa??!! That is thoroughly AWESOME. Finally your way past due karma for helping so many CH'ers on Nat Geo has kicked in. [smiley=thumbup.gif] These new botox jabbing locations you've innovated are becoming interestinger and interestinger. Maybe your neuro oughta do a medical journal write up or something. Or maybe Dallas Denny and some other Texans 'round there oughta try the same treatment from him. Aw DAMMIT I just remembered Denny moved and is Oklahoma Denny now. "Oklahoma Denny" doesn't have the same kind of ring to it.

What CHf said! it is common indeed for the trigeminal nerve, which is the one affected with CH, to also light up those upper teeth at times. Countless headbangers - including myself - have had teeth extractions etc. done, believing a dental issue could be causing the CH symptoms, only to eventually realize it's the other way around.

I love the absolute hell outa that shirt. 8-) [smiley=vrolijk_1.gif] I had to crane my neck all sideways to get the right perspective on the photo, but it was a very small price to pay.Â

The freshness/potency guarantee that psychoactiveherbs makes for HBWR there is definitely good to see. I'm looking forward to seeing them officially do the same for RC.

Yes the Jeebs-O-meter is pegged indeed. [smiley=thumbup.gif] 8-) [smiley=thumbup.gif]

From what I understand, your doctor is right in the sense that when the shots are administered in the usual, conventional location(s), they are known to be ineffective for CH, but reputedly can work for migraine.

You've.....pioneered a new treatment....and it's seriously actually working. That's not exactly something that happens every day. Dam snazzy! [smiley=thumbup.gif] [smiley=thumbup.gif] Big big Kudos to your doc for recognizing the critical nature of your CH, getting you in there immediately, and being willing to do what it takes.

I think I too would be looking to the experts in natural treatments related to cortisol production. We've seen how the pharmaceutical based medical establishment can fail us in the CH prevention department, while the natural busting substances can aid us so powerfully. I would hope there may be some similar results to be found in nature vs meds for adrenal/cortisol recovery. So sorry to hear how the meds approach has completely failed Mika. :'(

To me the study CHf links to involving the 5 US test subjects is quite impressive, ESPECIALLY since they were intractable cases, mostly chronic, that nothing else was working for, and "all but one patient (S1) had experienced symptoms for more than 10 years". I think that is a big deal since these sound like exactly the types least likely to succeed with our currently available busting substances, yet they had remarkable results with BOL-148 (less remarkable for the one guy who chose to keep boozing it unabated). My thinking is YES, it would be reasonable to hope for top notch results. I hope I'm not just being overly optimistic. :-? If you could find a BOL-148 prescribing doc, you'd be blazing a trail and reporting back invaluable info regarding what could be expected from such a venture.

That is incredibly sick about Chris Hanna's facebook site. I went off in an obscure topic here about spineless, cowering OUCH UK's refusal to support a UK study on BOL-148 (by the UK's most prominent researcher in the field) because "it's illegal" (which it probably isn't). I thought that was about the most despicably gutless and shameful display I've witnessed in CH-ville. In the starkest of contrast, there's the Texan individual who risked it all on not just national, but international TV to discuss and demonstrate what works (mushrooms) for so many of us, despite the fact that he could be promptly arrested and incarcerated for doing so. That daring act and powerful Nat Geo segment continues to lead untold but definitely large numbers of CH'ers around the globe to some potent relief they wouldn't have known of otherwise. Now here's the Hanna facebook site luring in CH'ers in crisis, then going all out to make sure they don't get accurate, potentially life saving answers to their questions about busting. Is it delusion, extreme sadism, pitiful cowardice, pathetic willful ignorance, or all of the above that's behind that atrocity of a facebook site? The world's gone CUCKOOÂ . Is this the same pariah facebook site that has actually banned our Bob Wold and Kaboom?

I remember ya Whooligun! Thank gawsh about the AVM shrinkage! [smiley=thumbup.gif] But wait a minute...that sux'n bloze about the CH. I bet you'll knock the CH down and quite possibly even knock it out with the fungi. Pullin' for ya. Several headbangers around here who benefit from fungi have been keeping a tranquilizer such as a valium or xanax on hand just in case of any trip induced anxieties.