Bejeeber

..and in the realm of supplements you might also wanna seriously consider the D3 regimen CHf mentioned. Heck, seriously considering EVERYTHING CHf mentions is always a good plan, he brings the goods. ;D

Hey Rob, glad to see you're getting the questions answered, but SAD to see you have both CH and fibro, which according to my calculations is just about.......THE MOST ROTTEN COMBO IMAGINABLE! > :'( At least you're not chronic though. That's an extreme biggie. A common, but by no means guaranteed scenario is for the episodic CHer's remissions and cycles to both become extended after the decades with CH have shot by, and for the attacks to become more severe. It does burn out with age for some. This is mostly based on what I've seen others report, and my own case, not hard statistics (although I did see some legit statistics at one point about the burnout).

That's what I would do. 8-)

Well you've let us down horribly DD, so don't even bother coming around here anymore. HA , but seriously, with so much luck and so little skill being involved in that tournament, I can see why you'd feel like ya might as well be playin' BINGO. ;D We gotta get you in a tourny where shrewd and finely honed skills can be put to use. 8-) I picture this taking place on a paddle wheel boat rolling down the Mississippi.

Yeah I hate the killin' too. Ever since I had to kill a mortally wounded really big field mouse to prevent it from crawling away and "escaping" to suffer a lingering death when sprung from a rat trap, I said no more mouse/rat traps, no more animal killing for me. And man that is obviously such teeny teeny little small potatoes in the killing dept., just as your toad was. Plus you really didn't have a choice - you had to protect your pets and native animals. In some cultures you apologize to the animal's soul - I've apologized to that mouse's many times - and I often give that a go with bugs too, although no apologies from me to mosquitoes! Meantime I suggest you re-focus on the critters you've just saved, celebrating the positive life forms you have preserved there, by running around the house 3 times shouting "I've got Kookaburas!!, I've got Kookaburas!!" at the top of your lungs ;D, kind of like "I'm cuckoo for cocoa puffs!, I'm cuckoo for cocoa puffs!" (apologies if you didn't have the Cocoa Puffs breakfast cereal commercial there that I'm referencing). I would love to have Kookaburas (and KANGAROOS!) here, and would certainly want to protect them. Sorry you're faced with that tuff choice/tuff cane toad situation there.

Where ARE those pesky Amish headbangers when ya need some?Â

Whoa - I don't know if I can believe my eyebones - the Shaggy McShagmeister is back and posting. Meanwhile I remain astounded and appalled at what a small, unbelievably misguided group (or is it just the one individual, sometimes referred to as the "Osama Bin Laden of CH"?) can do to censor Facebook discussions, wikipedia, etc. in a fundamentally evil crusade to keep CH'ers from even hearing any mention of the alternative (and easily most effective) treatments.

Jkan is entering the home stretch and going for the GOLD!Â

Weird and unexpected if actually true, but I imagine I can speak for many of us when I say I would be happy to accept such a consolation prize!

Ah haaaa, I'm guessing (and hoping) you may still be right, that it could be a particularly long cycle of the episodic variety, not a definite chronic thing yet you got going on there.

Yes that's right I've reported using and liking them for aborting low level hits/shadows, and the wife has aborted many a migraine with them, but I should probably just mention that I don't know if anyone in a full blown cycle has reported trying them for impending high level CH hits. The Monster and RockStar CHf mentions have been more battle tested in that heavy beast combat kind of way. OK enough of my cluttering the place up with that trivia - it's undoubdtedly a tuff thing to get your head around detoxing from the triptans, jkan, but glad to see how this most excellent community has come together to advise ya so well here. Maybe you can think of this process in a one step at a time low risk sort of way, where first you get that "power user" O2 rig together, then with your triptans by your side for back up, you can give the high LPM 100% O2 a try. Once you've proven to yourself that it can supplant the triptans you could start the detox. Hey Purple, yes, fortunately I have seen and heard specific reports form CH'ers who have been able to bust while on verap. One striking case I can think of right off is from one of the members here who like Tingeling was indeed CHRONIC. After getting siginficant CH reduction from busting, he was able to go off the verap and put the nail in the beast's coffin. Last I heard he's been CH free for a LONG time, Chronic no more. 8-) He does also credit the D3 regimen, which I think he started after going off the verap, with his success. I'm not specifically naming him because I don't know that going completely public about busting is his thing, plus you never know when I might get the details of someone's story unintentionally skewed.Â

Hey jkandola, Well that tends to be the main vitamin M busting hurdle right there, and you've already cleared it, so you're ahead of the game. 8-) When the strain subject comes up, what I've seen so far is a consensus that the strain doesn't tend to make a big difference, so feggedaboudit. Anywhere from 1 to 2g dry powder is pretty standard, as is spacing the doses 5 days apart. Also (brace yourself - this is the bad news) ya gotta make sure you haven't taken any blocking meds for 5 days or so before a bust. Blocking meds include zomig and imitrex dammit. Ugh, yeah so you may wanna look into high flow 100% O2 for aborting attacks while you're detoxing (it appears that verapamil may interfere with busting some, but not totally block it - some headbangers have busted while on verap with pretty good results, enough to then go completely off the verap and finish the busting job). If you haven't experienced the vit M before, it's of course important to read the warnings on who shouldn't mess with it.... https://clusterbusters.org/?page_id=236 ....and to realize that you could be tripping pretty good there for 6 hours. Here's some O2 info: https://clusterbusters.org/?page_id=77 I bet you're about to revolutionize your cluster migraine experience.....fingers crossed that we'll hear back from you about a successful bust, and a life regained. 8-)

Cool - yeah that's not surprising I guess that they're proceeding cautiously with the frequency of use, until more data comes in on whether there is a risk there or not. Fingers crossed big time for you - and heck everyone here - that it will turn there's no significant danger there, and multiple hit types will be freed up to use it more often if necessary. Imagine the relief for CHf and his daughter if this type of technology turned out to be a good fit for her. OK maybe I should stop naming people around here who I think could benefit because the list would get really long really quickly!

My money is on DD in the next event. 8-)

Your results for aborting hits are encouraging indeed David, thanks. I imagine the vast majority of CH'ers are multiple hit people when in high cycle, so yeah that "only use it every 12 hours" thing is a wee bummer. It sounds like it could be especially nice if they continue to refine the technology for effectiveness, number of times per day it can be used, etc., but hey your success with 8 out of 9 abort attempts is definitely something to write home about IMO.

That is interesting. I'll go ahead and discuss what subhallucinogenic means to me from my experience busting with vit M.....um just because I have a tendency to blab on about stuff : I've often enough found myself tripping (meaning feeling pretty intoxicated), while still remaining sub-hallucinogenic (no blatant hallucinations with eyes open). So to me Karen D's "I did not get any type of trip from them" can mean another level significantly lower on the dosage effects scale than subhallucinogenic. Not sure what to call that level, "sub-tripping"? Anyhoo, my guess is that most if not all of the "22 (42%) of the 53 subjects who reported partial or complete efficacy from subhallucinogenic doses of psilocybin or LSD" did actually feel some sort of tripping/intoxication.

I don't have a guess about why "no trip", but for you to have obtained CH prevention results without tripping like that - it sounds like you've struck gold - CONGRATS! If you hadn't had the therapeutic results I'd probably be asking if you'd been on any blocking meds such as prednisone or triptans, and if you had taken a large enough dose, say at least 1g dry powder.

This is super interesting stuff to me - thanks CLS89 for your observations. So at this point, given a choice between the 4-aco-dmt and shrooms for busting, would you have a preference?

Interesting article there Ricardo, thanks.

I'd like to chime in with positive holiday wishin's from Gnashville to everybuddy here. [smiley=vrolijk_1.gif]

It sure is good to see all the excellent advice you're getting here Art. The tried, tested and widely adopted partial trex doses and power user O2 approaches for aborts, plus the busting for prevention - I'm hoping these could revolutionize your CH experience. Certainly the busting has done just that for some former chronics around here.Â

[Edit: CHfather snuck his post in while I was still composing mine. Good thing, because he knows his stuff and lays it out clearly. ] Hi Art. Just a couple off the cuff opinions from me, and I too will be interested in what others have to say: 1) RC (Rivea Corymbosa) seeds are entirely legal to order and possess in the US, so those could be a good place to start for busting. The only way I can think of to be busted for those would be if you were to flag down a cop and say "hey I know you've never heard of these RC seeds, but they are in fact technically illegal to ingest, and look I'm gobbling them down RIGHT NOW ooh yum yum YUM!". 2) I haven't heard of anyone being arrested in connection with busting for CH. The couple of police officers I know who are CH'ers have opined that law enforcement has much bigger fish to go after and aren't at all likely to be stalking people just trying to deal with what is probably the most excruciatingly painful condition known.

Besides all those possible triggers, I figure you can officially make this number 6: ..because the relaxation right after a load has been taken off is known to be an especially prone time for some CH'ers (and migraineurs). That list reads like a bit of a perfect storm alright. Don't be doing that! You're clearly a super concerned, good parent, seeking out solutions, so I think vigorously patting yourself on the back would be a more appropriate activity at this juncture. ;D

iPain you RAWK. 8-)

What they said, plus regarding the thing about the assistant.... It's sad to know that there are such willfully ignorant sloth bags (a term I just coined ) out there that will "inform" a patient about a condition without even bothering to know the first thing about it. Sigh, such lower life forms can make extremely difficult situations even more so. And they actually get paid for it (??!!). I'm outa cycle, so tell ya what: if you like, I'll take over all the hating and heaping of scorn on these medical idiots you had the highly unenviable misfortune of encountering, while you forget about 'em, let 'em go (so their ignorance no longer has a lingering, damaging effect on your psyche), and you can just focus on seeking out some better informed medical professionals - apparently there are some out there.