Bejeeber

I think it's practically undeniable that you can experience more attacks when aborting them with triptans such as zomig. It's possible to experience more attacks when aborting with O2 also, but still O2 is much healthier and preferable for all kinds of reasons. Many CH'ers feel that the the CH period can be extended by triptan use, but I am personally not sure about that yet, because I know there is a common tendency for the periods to just lengthen regardless as the years/decades go by, as happened with me before triptans were even available. Fortunately for some of us, the remissions can also lengthen.

Oxygen is good, yes, especially with a higher liter flow than uninformed doctors generally prescribe, and at a 100% concentration. If sumatriptan pill form works for him that is good (and unusual, as for most of us it is too slow acting). Injectable can have a pretty much 100% success rate for many of us, but of course it's a drug with potential serious side effects, repercussions and backfirings, hence the move by many of us over to O2 instead.

Awesome indeed. [smiley=thumbup.gif] [smiley=thumbup.gif]

That would be great if you have indeed found him and his practice is close enough to you. And you'll even have a back up - a super highly recommended headache specialist, Brian E McGeeney, MD, who many here swear by, and who regularly gives talks at CB conferences is in.......wait for it...........BOSTON. Which appears to be closer to you than Burlington.Â

Hi Leslie, I just ordered some from Iamshaman on June 17 with no issues - they were in stock - if you haven't tried them yet. And AlexItalian, I too think staying at your same regular dose is still reasonable when maintenance busting, not in cluster.

He may have to catch a plane to Canada for the 4th! Oh wait a minute, scratch that, flights are a trigger too.  > :-/

Yep I'd classify naps as almost a universal guaranteed trigger - to be avoided at all costs when in cycle.

Well you just pushed all my *heartbreak* buttons, and pushed 'em twice! :'( I'm sure you're helping remind a lot of us to appreciate our pets to the max while we still got 'em. Here's a toast to Buster, pretty much the best pal anyone ever had, and to you for being the best pal he ever had. I'd say maybe you should do a presentation on Buster at a ClusterBuster conference, but if I was there I'd have to leave the room because I hate crying in public!

Yeah me too, like Pxie-Elf's Stadol. That was one epic fail for me in the pharmaceutical abortives dept.

Dam, DampDD, yer gettin' slammed over there! Here's hoping your new domicile, acreage and sanity all weather it intact. When you're stuck indoors due to weather I sure hope you produce an autobiography or memoirs or some such.....between the fraction of the DD life I know of that includes Nam, touring with the acid rock band Orange Sunshine, mind blowing out of body spiritual/supernatural experiences, CH, etc., that could be a seriously riveting read!

I see much of what I've tried has been mentioned, so I'll just list things from my past cocktails, etc. that I don't already see listed at first glance. OK here's what I'm remembering right off the top of my clusterhead: prednisone sumatriptan sansert (methysergide) ergotamine midrin capsaicin (Zostrix) in nostril O2 chiropractic acupuncture intravenous magnesium sulfate Naproxen wisdom teeth removal deep breathing of freezing air vigorous exercise the Jeebs Jibulator energy drinks

Well ya can do what I'm doing so far and CRINGE mightily. I find no mention there whatsoever of busting or the D3 regimen, two obviously super important preventive treatments. Oh, and now I see the new admin there at this predatory hijacking of OUCH US is someone known for banishing any mention of busting on his disturbing Facebook CH site, where the most prominent and helpful figures in CH prevention have actually been banned from participating. The original, real OUCH US was very supportive of ClusterBusters.

I too have seen CH'ers reporting relief with benadryl at times - it makes sense to me that allergens could be a trigger especially for those who ordinarily suffer from allergies. Well not all episodics are being hit in the springtime - I've been so lucky not to have experienced strong pollen allergies in my life so far, and over the decades my episodic cycle start ups have probably occurred in every month of the calendar, with spring months not being any more likely than other months. The pollen is thickly blanketing all outdoor surfaces here right now, and no signs of a cycle for me. Knock on a wooden nickel.

Oh no - what a huge loss, this is super sad indeed, and it seems to me the impact of Mark's involvement with discovering and developing busting (!!!) can not possibly be overstated. Mark, you've eased, and in many cases, stopped the suffering of countless CH'ers, and your efforts will continue to do so on a large scale. That sort of revolutionary accomplishment is rare in this world. Thank you for leaving the planet a MUCH better place.

Yo FAB!! So good to hear see your voice, and yes so SUCK to hear of the details of the serious heart condition and the enforced boredom, then so good again to know your getting a lil' better each day. It's a real rollercoaster ride! There's been another recent thread where I've confessed to my past pharma abuse in the name of trying to keep said beast at bay. Taking these big drug risks is just something so many of us have done before we learned of the non-toxic busting and such. Why we would have been motivated to have taken such dangerous doses of meds is of course obvious. YOU ARE NOT ALONE THERE, that's for sure! I'm just sorry you're experiencing a major side effect right now. Relieved to know the day will come when you're cleared for resumption of non boring lifestyle.Â

Sorry, no email reply from Fab yet - I'm afraid she may not be seeing her incoming email at this time. :-/

Awright, that bunch o' greetin's has just been forwarded to Fab via email. 8-)

I think I'll make later today the first cut off for sending a well wishes compilation email, but of course in a second batch I can also forward anyone else's message that comes along after that. I sure HOPE she ain't at no hospital, and considering your past hospital experiences I know you're hoping the same Spiny. I got an impression that she was home and under orders not to exert, strictly enforced by her hubby and daughters. Maybe her computer is located up a flight of stairs....Looking forward to the day when Fab can jump back in here and clear up all these rumors.Â

*bump*

Hi Vickie, I'm a lil' late to the lyrica party here - my impressions are actually all about its predecessor/close cousin neurontin (gabapentin), which I've seen more reports of being prescribed specifically for CH. I do know Lyrica gets prescribed for various sorts of nerve pain. So ANYHOO I've seen that while the occasional CH'er swears by neurontin, probably a higher percentage swear at it. Personally I was a lucky one who actually got good results with it back in my pre busting / D3 days. It brought down the intensity and frequency of hits in a high cycle that was about to spin completely out of control, making aborting all remaining attacks manageable. And I didn't mind the Side effects of feeling a little different and food tasting way too good. I don't know if the food thing happens with lyrica too. Just another example of how various individuals can respond quite differently to the same drugz. 8-)

Well if following someone else's suggestion (CHfather's) = genius, then I guess I have suddenly become smarter'n all crappity smack!  ;D

Fab, get recovered and back here TOOT SWEET. Please. And while yer at it do it in real jiffy. Pronto. We're BEGGING. It's all humdrum and drab around here without your blasts of high spirited good vibes, bursts of color, and perrenial huggings. And your nutty little Yorkies too. ;D I bet they're keeping you good company during the down time. Unless they're constantly bugging you for more and more snacks on top of snacks. OK maybe I'm just starting to project our dog's behavior onto yours, so I'm going to try to shaddup now.Â

CHfather suggested a dam good idea, so I'm gonna do it! At other threads, we've mentioned that our much-loved member, Fabalicious, is currently having some serious heart issues that keep her from coming to this site. Apparently the prime suspect for the cause of her heart issues is her past use of lots of imitrex. Word is she canÂ’t even come here to look at PMs. And I don't know if her PMs get forwarded to her email. But . . . I have her email address . . . So hereÂ’s the idea . . . Those who want to send get-well-soon wishes to her can post their messages on this thread, and IÂ’ll copy them into an email and send that to her. IÂ’ll add your user name so she knows who itÂ’s from. Maybe sheÂ’ll see them and maybe she wonÂ’t, but it feels like the best we can do to let her know how weÂ’re feeling.

I think she has been detoxed, experiencing MUCH better prevention success with her chronic CH va busting, and has practically been a poster girl for complete conversion to a healthy, natural anti-CH program for some months now, but apparently not quite soon enough. :-/ Her ears might be burning like hades right now too.Â

Thanks Alley O , And speaking of pharmaceutical risks, so many of us have been noticing the sudden absence of Fabalicious here on the message board, missing her positivity and hugs, and wondering what's up....well it turns out the doctors are telling her she indeed has heart damage and has to take it VERY easy for a while until they can get a handle on things. She can't even go on the message board. The way I understand it large quantities of Imitrex in her not too distant past are being blamed. :'( Looking forward to the day when she can get back on here, and really hoping she can make the kind of full recovery from heart damage that J eventually has over the years since ditching the pharma.