mit12

I am one that imitrex not only does not work but it makes the CH worse. The weird thing is Zomig especially the nasal spray works great. My Doc does not understand why.

I also get migraines with cluster events. My cluster attacks are a little different because the cluster hit last 3 to 5 hours with 1/2 hour break between attacks and the migraine stays throughout the attack and can go on for hours after the attacks go away.

My ex wife was talking to my doctor around 30 years ago about my headaches and she was telling him how much it upset her to see me in so much pain. My doctor told me that I should hide my pain from my family so that they would not be uncomfortable! I’m almost 59 so the 10 years of suffering and you out grow them must have came from the doctor I had some 30 years ago? We can always hope.

May be this will get the US off it’s but with respect to 2-Bromo-LSD.

Mox, I hate to hear this! Hope you get some relief soon!

A while back I posted about migraines kicking my butt and getting some CH hits, this caused me to hit the Zomig which led to migraines every day. I am a strange case as I never get a CH without having migraines for several days in a row and when I get the CH attacks the migraine stays after the CH attacks go away. I stopped the Zomig and stopped the D3 regiment as a reset so to speak. I went a month using nothing but 02 and Advil Pm with energy drinks, this seems to help if I do it the instant I feel a Migraine coming on. I started taking the D3 regiment again and I am glad to say that things have been doing well. The migraines are down to 2 or 3 a week and the CH have been dormant.

Zomig works wonders for me but it is a double edged sword, it stops the attack but it also extends the cycle. For me the only way to end the cycle is to get off the Zomig for at least 7 days or I am back in another cycle. I try to only loose Zomig when I am on vacation so I can enjoy my time while I am there and not ruin it for my wife.

Be careful with the prednisone, if you use It to much you can suffer bone loss.

Siegfried, yes I have been chronic migraine for most of my life. I used to get clusters at least 3 days a week but I have never had a cluster without having a migraine first. My attacks are also long, 3 to 5 hour hits with 30 minutes between hits. I busted a few years ago and I got my clusters under controll but I can not seem to get the migraines under controll. Seeds seemed to help but they are no longer working for the migraines.

I have had my clusters under controll for a while but the migraines are kicking my butt. I got caught up in the Triptan rabbit hole 36 Zomig in 6 weeks, followed by 36 in 30 days. The migraines were consuming my life again. I stopped the D3 program and I decided that I needed to stop taking Zomig! This set my migraines into over drive until one day when I hade Cluster events during the migraines for 2 days, the following day I was headache free. I started up the D3 program again. Its been a week and so far its been way better. I am getting short migraines that start about 3 pm and last until about 11 pm. I am able to get rid of them without taking anything. I hope that by me posting this I can stop someone from going down this path.

So I slipped getting into the back of my truck and took a good hit to the shin which resulted in me getting Cellulites. Doctor started me on Ciprofloxacin HCL 500mg twice a day. Before this I was having migraines every day which at some point will trigger clusters. Usually antibiotics give me headaches but this antibiotic has seemed to stop the migraines. Has anyone experienced something similar?

I know when the cycle is going to end when mine change sides. 99% of mine are on the right side when the cycle ends I get one extremely bad one on the left side.

Thanks for the kind words. I guess that having migraine pain defiantly sucks but at least I can function with them whereas with clusters I could not.

I have been getting Migraine headaches every day for the last month, yet I thank god that my Clusters are under controll!

Triptans are a blessing and a curse. I use them when on vacations so that I do not ruin our trip. The problem is taking them seems to keep you in a cycle, like your brain needs them. I have to get off them cold turkey which is a real headache lol!

I start out at 15ml/s and huff fast and hard for a few minutes than turn down to 8ml/s and take a deep breath and hold it until the bag fills and breath out and take another deep breath until I get relief.

As soon as the stress goes away I get hit.

Zookah, Welcome to the site and sorry you have to be here. You are at the right place, there are some great people on this site that will help you in your journey. Busting, vitamin D3 program and O2 will make a huge difference in your life. Hang in there and good luck.

PTSD and depression. I remember before I found this site and with the help of a few members on this site that pushed me along and I had success with busting, I used to have a small bag that I had all my rescue medicines, Zomig, PM asprin, energy drink, flexerall, Naproxin, Percodan etc. If I ever forgot my black bag I was panacked there was no way I could make it through the day. As I sit now thanks to Cluster Busters and the great people on this site I am free of depression I no longer have my black bag and best of all I want to live again! Cluster headaches are evil.

First I need to explain that I never get a cluster headache without first having a Migraine that stays completely through the attack. I can have Migraines by them self but never a cluster by its self. I can not say for sure that energy drinks make a difference with my clusters unless I take a zomig with the energy drink. Now for Migraines I take 3 Advil PM and drink a energy drink and it seems to stop them from getting worse, may be like it is stopping the cluster attack.

The more stress I am under the better it is for CH, but when the stress goes away I’m screwed!

To think that I had a doctor tell me that I need to hide the pain from my wife because it upsets her?

Anything that works will stop working in time.

I have both migraines and clusters. I can have a migraine by it’s self but never have a cluster without a migraine. I can have a migraine for days and then I start getting cluster events during the migraine. My cluster attacks are quite different because the hit typically last for 3 to 5 hours with 30 to 60 minutes between hits. The longer the hit the longer time between the hits. I know when the attack is over when the migraine goes away. It could be a day or week or two than it comes back again.

Sitting on the floor rocking back and forth with one eye closed and a heat pack on my head. Some times I will hit the tile floor with a closed fist. It is not uncommon to have a real sore hand and blisters on my head.