kat_92 Posted April 15, 2023 Share Posted April 15, 2023 Hey all i am not currently in cycle, and I’m debating if I should come off the verapamil. I understand it’s used most effectively only during cycles. Is that right? I have been on it every day for about 2 years now. Unfortunately since I cannot pin point my cycle dates yet it is hard for me to determine when I should start taking it again. Does anyone have any experience with this? Have you found it to be less effective when controlling a ch cycle after being off of it for a while? Let me know! Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted April 15, 2023 Share Posted April 15, 2023 Hey Kat, I've also been on it daily for a few years and have debated stopping. I am reluctant because I've read on here that a few people that stopped found that it didn't help any longer after restarting. Quote Link to comment Share on other sites More sharing options...
spiny Posted April 15, 2023 Share Posted April 15, 2023 I went off at the insistence of my dentist, after being on it for a year. It never worked again for me. Boy, I was ticked too! 1 Quote Link to comment Share on other sites More sharing options...
kat_92 Posted April 16, 2023 Author Share Posted April 16, 2023 Oh no!!’ Omg okay I won’t stop it then. That’s terrifying Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted April 16, 2023 Share Posted April 16, 2023 Never meant to scare you but what good are we if we don't share what we know or experience.. BOL Kat! 2 Quote Link to comment Share on other sites More sharing options...
spiny Posted April 17, 2023 Share Posted April 17, 2023 It really is terrifying when your cycle shows up Kat. Unless you are having a problem with the Verap, your best chance of success with it is to stay on it till it lets you down. 1 Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted April 17, 2023 Share Posted April 17, 2023 If you do decide to come off Verapamil, TAPER down. Don't go cold turkey. 2 1 Quote Link to comment Share on other sites More sharing options...
kat_92 Posted April 18, 2023 Author Share Posted April 18, 2023 I decided to stay on the verapamil! Thanks all for the responses 2 Quote Link to comment Share on other sites More sharing options...
dmlonghorn Posted April 21, 2023 Share Posted April 21, 2023 For what it's worth... I came off of it a few years ago after fully committing to M as my treatment method. I did a long taper. Feels good to not be on it, I wouldn't put the idea to bed entirely. Be well 4 Quote Link to comment Share on other sites More sharing options...
Stevediego41 Posted July 11 Share Posted July 11 I have had cluster headaches for 40 years. I use Verapamil only when I am in a cycle and it is a huge help to reduce the frequency and intensity of headaches, and makes them easy to stop with oxygen, in 1-2 minutes. Once the cycle stops, I taper off the verapamil and then typically have 18 months between cycles. The downside is that I only started using verapamil 5 years ago, and since then my cycles have quickly gotten longer, now up to 5 months. So I am suspicious that it makes cycles longer, but my cycles have been slowly getting longer anyway as I age, so cannot say for sure. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted July 12 Share Posted July 12 17 hours ago, Stevediego41 said: my cycles have been slowly getting longer anyway as I age Yep this is the sort of thing that for some of us can make it hard to definitively pin a smoking gun of blame on a drug for cycle extension. But can't fault you for casting a suspicious eyeball towards the verapamil. Often enough some nice extended remissions can go along with the lousy extended cycles as the years hurl by - here's hoping you too will at least get the benefit of some remission extensions! Quote Link to comment Share on other sites More sharing options...
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