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....and very much related....is why, besides the vulnerable feeling, i always hated being witnessed while getting hit....and why i consider our beloved supporters as having it worse than clusterheads.... .....very little to offer re needles ( i still have to keep my eyes closed). but at one point had to give myself B-12 injections. HUGE needles that have to go into muscle. the very first time took me 2 hrs sitting on the edge of the bed....for many months after it was up to one hr. eventually got it down to a couple of mins by using the admonition from a young lady doc, who told me: "don't be such a woosie!"......and the realization that sometimes there.just.aint.no.alternative.....

So I'm sure this is going to be all over the place but I'm going to try and do my best to stay focused here.. I call what I feel when I am having a CH "spikes" because they feel like someone is spiking me with something in my rt. temple with something. August has always, (since I have been diagnosed, and tracking) been a doozy for me. This time around is different. Normally, a single spike here and there would indicate that a full blown banger was coming soon usually within a week or two. I started the D3 reg of which I am sure I managed to F up even though I taped the destructions to the fridge... Something must have been working as I just kept getting spikes most days just one or two and the intensity level was minor in comparison to what I am used to (not sure you ever really get used to it). Anyhow, my questions that I am hopeful someone will answer are … (Also I am grateful to just be having rando spikes so don't get me wrong please). 1. Do any of you get random spikes/shocks/you know picks to the noggin? 2. If you only get one in the day do you go on about the day like you don't need to be careful that something you do will bring one on? Like do you still workout? Go do something that makes your blood pump? 3. Is it normal to have just a random spike here and there nearly every day for over a month an a half? (Tell me I am still episodic)? 4. Does anyone use oxygen as a preventative verses an abortive? 5. I have been getting random minor spikes in the left temple, is it common to switch hell sides and could this indicate that I could be switching sides? I know this is a big ask I'm just a bit overwhelmed with this because I feel like if I'm not having a headache (hate calling it that) that I worrying about when I will. On the upside I did get my blood test (home test kit) mailed back in today so at least I'll know how much I messed up the loading. Seems cut and dry but leave me .... Any way I would really like to see what you folks have to say. Major thanks and may your brain stay off the fritz!

It was awful……we say we have seen each other at our worst……he sees me through CH and I got to sit with him for 12 hours with his face in two and then the three subsequent surgeries to fix him all up The plastic surgeon told me all he could say was that he had never seen anyone so jacked up!

So I'm not the only one then.. Yes I hate the mind game and agree that at times it is almost worse as I feel like I have to stop what I am doing because I am unsure if I going to hell for real or just spiking? Still trying to figure this fkr. out . I have started the D3 and do see improvement in the intensity of the spikes. Thank you for the response

Racer..... You know this stuff as well as anyone. How much of an improvement would you say a demand valve is over a high-flow regulator with the "Optimask" (ClusterO2 kit)? My daughter (the person with CH in my family, for those who don't already know that) loves her demand-valve-type system (she has to push a button to get the O2, but it's there on demand), in part because it takes some of the "drama" out of the bag filling and then being emptied. Making an O2 abort as simple as possible has psychological benefits as well as possible practical ones. So I have nothing bad to say about demand valves if a person can get one/afford one. But just in practical terms, and insofar as this can be determined given all the variables, I don't think she gets faster or better aborts than she was getting with a welding reg and the Optimask. Curious about your view/experience (and others') about this.

CHfather.... I've run in to the "prescription only" crap for something as silly as the brass seals for regulators. More times that not, as long as you have the money, they have the time. So to speak.....

Yes! My journal is littered with "spike" and then I rate the pain level of each spike. I get them pretty much daily, 80% of them are level 7 and they're always on my cluster side (right). I do get spikes on my left side, but I can now firmly attribute those to barometric weather changes - they mimic the ch spikes but they're not as sharp. There's not much I do to treat them as they come and go so quickly. The constant mind-fuckery is almost worse than the pain with these things. If I get a spike followed by pressure, that's when I know shits about to go down and I'll ready the O2. I'm training for endurance competitions, so I run a lot - I suspect it helps to some degree, but I believe it's a combination of dosing and the D3 regimen that prevents these spikes from becoming screamers.

.....aint no woosies in clusterville, it's an impossibility...i wasn't calling you one....just relaying what motivated me. guess ya had to be there, but coming from a tiny Russian blonde physician, with a twinkle in her eye, i was actually amused enough to be distracted. probably her design... ...my main point was to share, since clusterheads are the bravest people i know .... somehow/someway we find the strength to do what needs to be done...

Hi there, Yes that has always been the case for me as well. This time is a bit different with the fact that August is my normal worst month for CH. Normally I start getting random spikes a few weeks prior and sometime I can ramp up on a few preventatives and hold the killer at bay for a bit (just a bit) they always find a way to come out. Since the start of the D3 which I did not load properly, I just keep spiking so I suppose that's positive....I am going to start over (to a certain degree) and see if that helps.. Thank you for the response! 8-15-21 11:30 AM 1-Spike Mild No Medication 8-17-21 12:00 PM 1-Spike Mild No Medication 8-19-21 10:30 AM 4-Spikes Medium-Nasal Medication Yeah Day! Yeah Day Yeah Day! Yeah Day 8-24-21 11:30 AM 1-Spike Mild No Medication 8-25-21 9:44 AM 1-Spike Mild No Medication 8-26-21 6:00 PM 1-Spike Mild No Medication 8-27-21 8:30 AM & 12:30 PM 2-Spikes Mild No Medication Yeah Day Yeah Day Yeah Day 8-31-21 12:30 PM & 1:28pm 2-Spiks Med No Medication

....a coupla clusterheads keepin' an eye on things....