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Showing content with the highest reputation on 09/08/2021 in all areas

  1. Try out busting. Sorry it's been a mess for you. It's been a mess lately for many of us. GL!
    4 points
  2. What they said (including xBoss!), and an odd thing about the practice of aborting a wake up hit with the addition of an energy shot/drink/caffeine that the great and wonderful Spiny mentioned, is that many of us have noted we can still go back to sleep right after??!! Why? How? It's one of history's great mysteries.
    3 points
  3. We have a member, Moxie, who says 'Life is what happens between Clusters', or it is very similar to that. Many do look at it that way. Also, there is the ancient Story of the old woman who carries her pig with her everyday when she goes to town. This began when the pig was a piglet and weighted less than a pound. Now he is big and strong and weights over a hundred pounds, but still she carries him everyday. The people look at her in amazement and she shrugs it off. It is just something she does daily and that is why she can carry the 100 pound pig. I look at my head that way. Yes, it is a burden, but since I carry it with me daily, I am strong enough to do so. You are too. Take it one day at a time. Soon, you will be dealing with most of what it can throw at you from a position of knowledge, not a blank page that leaves you afraid and lonely. And when you figure out how to deal with your very own beast, you will feel like you can conquer anything.
    2 points
  4. Hi Celtic, I wish I could be more helpful I just wanted to hop on here and say at the very least that it sounds like Spiny gave you some good info. (Never heard of the ginger thing so I'm going to try that) There is a good video on here that goes over different breathing techniques with the 02 that maybe you could check out (if you haven't already). Just learned myself that these lovely headaches like to change things up so maybe you need to change something up too? I know that's not much help.. Just don't want you to feel alone. Feel better soon!
    2 points
  5. Thanks again for the replies. I'm going to go heavy on the preventatives next cycle, D3, psilocybin, etc. I think I have found my culprit, or at least why my usual isn't helping. Since I upped from 150mg to 300mg Buproprion my blood pressure had held a steady 140/85, even now after being on verapamil for 3 weeks. I typically hover around 110/75, so that may have triggered the cycle early.
    2 points
  6. I couldent get it to work either. You can type in "hello clusters my old friend" into your browser and it will bring you to the lyrics on the cluster buster site.. no video though
    1 point
  7. These guys on here will tell you. Ive just come out of a rouge cycle and thanks to their advise about how to use 02 properly i managed the pain alot better. Plus managed to get off the triptan injections you need to stick with the 02 watch the o2 video on here . But ask around about other things that can help with your CH attacks . Like i said the guys on here are sent from GOD
    1 point
  8. Sorry to hear the struggle. My cycle jumped to summer as well about 3 weeks ago. There must be something in the air.
    1 point
  9. Jeesh.. What a dish to be served eh.. The ever morphing brain dozer.. The D3 has been helping quite a bit. This site just goes to show you how very little the doctors actually do know about CH. Even when you look online you still see references to things like CH being male predominate and that really there are no triggers etc.. whaaa..
    1 point
  10. Energy drinks or shots are what most people use. I am for coffee as the energy stuff comes right back up for me. I do use V8 Energy during the day a good bit and always have a cup-a-joe at 5pm. Just for my head. Ginger is for shadows. Light hits that are a minimal bother, but still drag you down. Don't know why it works. Don't really care. Just know that it does work very well. And who will give you a hard time for eating it? No one I would not think, so no awkward questions to answer.
    1 point
  11. Hi Celtic! Welcome to the club! Have you read the blue banner at the top of this page? It will give you a lot of basic info. I would not worry about the O2 usage. The main thing is to have your system optimized with high flow pure O2 at 15 to 25LPM and a non-rebreather mask. The Cluster mask is what most of us use. You have to work at your breathing, not just breathe. As in exhale with force, till you wheeze a bit, then inhale deeply. hold a few seconds and repeat. You can begin this on your way to the O2. With nocturnal hits, you want to get there ASAP too. You will find your own pace and way for each hit. It likely will not be the same for each, so try different paces and when one begins to ease the pain, stick with that method for that hit. May will down a caffeine drink with the O2 or just prior. As in hit the fridge, grab it and go. You can chug as you go. You must stay on about 5 or 10 minutes after all the pain is gone. Otherwise, you risk the hit returning. 'Post' breathing is very important. For daytime hits, do the same. On occasion, you may find that the caffeine is sufficient and O2 is not needed. Pred is a bridging med that you take for a week or 3 and your Verap kicks in for lasting relief. Pred is not a safe drug to take for a long time. It causes your hips and maybe shoulders to lose the ball part of the joint - it dies. Then you need a hip replacement. So, use, but sparingly. Verapamil is one that CHers tend to take very high doses of compared to other patients. As in up to about 960mg/day. Some can't take those levels of it due to low blood pressure. It is great for many when it works. For shadows, use ginger: tea, candy, etc. It kills them. As will caffeine. But caffeine gets tiring. There is a lot more to share, but this will get you going!! ATB !
    1 point
  12. this happened to me during my rogue cycle in april. it was a surprise to say the least...
    0 points
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