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...old ch.com JOKE..."wimmins don't get CH"...it's kinda funny in a morbid way, when talking about clueless medicos quotes...

Wow! That's amazing... Do you recall if you were doing anything diffrent during that break? Even if you don’t that's just out right amazing but on the other hand I assume you were devastated by the return.. I suppose if I take anything away from this it would be that miracle breaks for suffering folks can happen and to be very skeptical about being cured and or about the shite show being over. Thanks for sharing this tid bit about yourself.

https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This is the first iteration of the D3 Regimen. Batch has made some changes and additions, but this will get you started right away. I have been taking this for many years now and for the most part, after the first year, I only have a few hits per year. I do avoid stuff, like Epinephrine given by doctors and dentists and MSG in food. You have had some great responses and have a lot to chew on now. Oh, in so far as long remissions? Yes. I had one for 10 years. I thought I was cured or outgrew them. Oh, soooo wrong.

No problem Bosco. I hope that it helped a bit. There is so much that we don't realize or connect till years later, you know? It took knowing that pregnancy can stop a Chronic dead in its' tracks to piece the bits together many years later. I had to fight for my diagnosis with a Neuro when I got a proper cycle too! Actually had to take my husband to get the guy off of the Migraine train! It was not encouraging! But he and I get along fine now. I go once a year and get my one script filled and push him to get patients on the D3 Regimen. He will flip over the new studies using MM!!!! I can't wait!

...fixed it for ya Shaun...

Sorry Spiny! Thank you for responding in such depth though!!

I read the pink glasses post a while back with interest. I wore them the '70's when I was working under fluorescent lights. They prescribed them for migraines!! They seemed to help with them for some patients. I did not notice any change in my head, but I loved them!! They did improve my moods. My eyes are green.

Well, sweetie pie? I think u r the exception that proves the rule!!

hi @Sue mcdonald...do you have a current source for #1? way back in the 80's the listed characteristics in the majority of lit i could find (hard slog) for CH patients was: male, smoker, hard drinker, leonine features, orange peel skin, ocd, several more i forget.....and hazel eyes. ...i believed it then because i happen to have hazel eyes....all the surveys since (and most clusterheads i've known thru online forums) do not support this characterization as accurate....including eye color. it never really mattered to me either way, since eye color is immutable, so would only be valuable as a tool in diagnosing (if true)... ....assuming #2 refers to vitamin D, the rest of your list looks fine...

I wish that I did know something that caused it Bosco! The only thing that might have helped is that I got pregnant. I miscarried at 2+ months and the hormone change could have affected my CH, but I was too upset to notice, you know? They were gone after that event. Then that brings up 'Well, why did they return?' Also, don't know. Can't blame my move north, as I had been living here for 6-8 months when they showed up. But looking back, I can recall two short cycles before the move. I had gotten a concussion a short time before the first cycle. My first 20 years, I was a low level chronic, undiagnosed. I was on Elavil and one other med whose name escapes me at the moment. Inderal I think. So, I had no idea that I had CH or that they came in two varieties. That cycle was short, but hell none the less and the second one sent me diving into 'what is this????' Then I took the the printout of CH to my doctor. Carbemazepine was prescribed at that time. He had been on the Migraine bench till then. I had tried trex once and thrown it out due heartbeat issues bugging me. Additionally both little cycles I had then were thought to be 'other' things and were treated with Pred of all things and that killed them. Funny how that worked out. As it was, they were both about 2 weeks duration. Girl, you are making me think too darn hard for this early!!!