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This is one of the best, most complete pieces on Cluster that I've seen. No surprise given who the authors are, but I thought everyone should see it if you haven't. Not tons of new information for those of us who are battling daily, but the main intent of the article is to raise awareness and education in the medical community. https://www.bmj.com/content/376/bmj-2020-059577

I use an app called Migraine Buddy. It is very customizable and is free. There is an option to pay for more tracking info ie pressure data. I have used the free version for 4-5 years.

Thank you for sharing your experiences here. As a CH sufferer I am grateful for this resource. I record my CH hits over time in an Excel spreadsheet for now. Does anyone else?

It means Medicare does not disapprove coverage. It also means O2 is an acceptable option to treat clusters from an agency standpoint. Secondary insurers and primary insurers generally follow medicare guidelines but are not obliged to. Remember all of these insurance companies act like little franchises under one big umbrella. Depending on the employer they are representing, risk group insured are in and state regulations coverage can vary even within what seems like the same organization. It is confusing and totally sucks they can do this. If you are getting pushback you need to keep appealing to the benefits manager at your HR department or case worker until satisfaction is obtained. At this point, based on the medicare ruling, the insurance company is choosing not to cover. Have them do a cost analysis of oxygen verses CGRP drugs or triptans..The way is paved but the fight persists.

I used to record. But then I took it to the Neuro and he wanted nothing to do with it. So, that job was finished for me. My CH is pretty regular, so not a big issue for me at this point. But for figuring out your triggers and such, it is a good thing to do.

I tried keeping a log many years age I have also tried several of the apps out there. Abandoned it because it was too depressing. I thought with enough data I could plan and manage the beast. Tracked barometric pressure, moon phases, diet in addition to O2 Use, imitrex injections, steroids and Vit D protocol. I decided it was futile and depressing to see how much of my quality of life was given up to the beast. For me, nothing seemed a pattern even though I was convinced there was one. In cycle even smelling alcohol set me off but that was the only reliable trigger. As most of us no when in cycle rationale reason gives way to scattered thought and emotional upheaval. Live life the best I can using what grows from the earth, O2 and inject when desperate Keeping accounts only gives the beast more attention than it deserves.

Heck that sounds like it could be a good way to go too.

I hope you are well and CH Free.