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You really should go back to your doctor and ask for the oxygen .I promise you it will become your best friend !!!!!!!! I love seeing my tanks of o2 in my house it gives me great comfort to know they are their What Shaun said is just what I was thinking (I notice that my thinking apparently contains a lot of typos!) You can't run away from having it, but when you face it, you can do wise things to make it a whole lot less bad. You clearly are searching for those things, as everyone here is, and coming up with some interesting discoveries. But it's hard for me to see a reason why you wouldn't go for the D3 regimen full-bore, give busting a try, get oxygen, and maybe even give the new CGRP medications a shot (among other things).

Hey Justin, I just sent you a PM on loading. Check your PM InBox. Take care and please keep us posted. V/R, Batch

I need guitars all of em

The link at the top of this post will take you to a page updated by Batch (xxx) in February of this year, and the post and replies contain more information: https://clusterbusters.org/forums/topic/1308-d3-regimen/ This should cover the basics, but, as I say there, I'm not confident that I am fully up-to-date on all of the current revisions.

Some notes that might be pertinent to some of this discussion. The predictable recurrence of CH cycles seems to have been greatly exaggerated. In Rozen's 2010 study, "Cluster Headache in the United States," of 1134 people with CH, he reported, "In 41% of the survey responders, their cycles varied during the year, and there was no particular month the cycles would always begin." In that same study, 22% reported having just one attack per day. Regarding the effects of light, there was this interesting thread here a while back about glasses preventing CH: https://clusterbusters.org/forums/topic/8739-glasses-to-treat-ch/?tab=comments#comment-78836 In that same Rozen study, 6% of people reported having a father with CH. Hereditary data are all over the place, but overall, the chances that your daughter will have hereditary CH are very low. A JAMA 2020 report said "Across the 22 large cohort studies, the positive family history rate of cluster headache varied between 0% and 22%, with a median of 8.2%. The largest 5 studies had a positive family history in 18.0% (numerator not provided), 5.1% (40 of 785 cases), 10.0% (numerator not provided), 2.0% (12 of 609 cases), and 11.2% (56 of 500 cases), respectively. https://jamanetwork.com/journals/jamaneurology/article-abstract/2764341#:~:text=Meaning Per this systematic review,as well as environmental factors. [Note that this is family history, which could be anyone in the family. If you limit it to fathers, the percentages are much lower.] Since I have a daughter with CH (but -- for those who don't know -- do not have CH myself), I understand your dread, and I think Bosco' was right about the advantage she would have from your knowledge, in the very unlikely event that she does develop CH.

You really should go back to your doctor and ask for the oxygen .I promise you it will become your best friend !!!!!!!! I love seeing my tanks of o2 in my house it gives me great comfort to know they are their

There are some rules, not necessarily theories, I hear passed around with CH that I don't agree with. 1) Smoking: Listen, if this were the 90s, the Eastern Shore of VA, $10 carton days (when I was coming up) it would be dim lights, thick smoke, and loud music in this bitch. I'd be smoking like a choo-choo. There appears to be an alarming correlation between those with CH and former smoking habits. That stated, it never triggered (my) CH. If it does not cause your CH, who cares, smoke. Your gonna die at some point. 2) Drinking: This one is difficult. For some reason, beer causes massive headaches, but with moonshine I am okay. I make moonshine and drink accordingly. For some, it is wine or those wine benders. I seldom drink, the majority of the time I use the liquor as a trading offer for something else. Bottom line, I do say with alcohol to tread lightly and stay away if getting hit. I'm neither chronic nor episodic, and I don't know how to explain my headaches either, in my circumstances I wing it. 3) Sex: There can't be a God if you get your rocks off and have a massive migraine and/or CH. Honey, that ain't natural. I get myself in trouble here all the time, if that shit happens, we all have needs, and even at 90, that is why there is Viagra-I rest my case. Get some Narcs, and abort with opioid analgesics. I'm sorry that ain't right, and it's cruel. If in a drought, there is the champagne room and sites like Backpage. And since I dug this hole, I don't see why women even date men, as hot as women are. Lord have mercy, especially when hot to trot. 4) Drugs: Party on man. Again, I get in trouble, but if you can control it and it is not a trigger-go for it. Uppers, downers, and turnarounds put me in an 8-year intractable cycle of hell. Unlike most, however, I'm all for the coke and whiskey, fast women parties, and am not afraid to put that out there. The problem is that for most, most drugs appear to put you in a cycle you can't get out of. Getting off of Barbs, Benzos, Uppers, Downers took 1 year of shakes, convulsions, seizures, a few near-death experiences, and a grand mal seizure. And, I now have Tardive. Your choice. I'd do it all over again. What a fucking rush. Talk about kickstarting my heart, I made Ozzy Osbourne and Motley Crew Habits look like choir boys. 5) Abortive Medications: Oh hell no. Go ahead foment wicked rebound headaches. It's your choice, but I had every headache specialist admit off the record that you are best to avoid them. If Oxygen does not work, as in my case, I feel for you. Prophylaxis is paramount. Again, it's your choice, but that Fioricet at 180 counts, and banging 3 DHE a day does more harm than good. Oh, and shooting up Keterolac 1 or 2x per day. I don't know, I admit to being on the outer fringes but, everything is case-by-case. The intention of this was don't live your life around CH: live your life and adapt to the bullshit that CH brings with it. It is not easy. I am convinced that you can determine your triggers, mitigate them, and then find prophylaxis. It's not easy, may take years, several doctors or nurse practitioners, even functional medicine. Most importantly, you need to be your doctor first: read, research, and find what works for you. I don't think anything can be categorized or programmatic at times. Everything is subjective to the situation at hand, and the person experiencing the headaches. Good luck.