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Well got a bit of a shock today . Daughter rang from hospital bed to say,she is moving out of hospital tomorrow and moving in to this new rehab centre that has just opened up . Charity run , it's amazing place like a 4star hotel . Could be there up to 3 months , but she is determined to be out within a month . So just 1 more big step and we get are daughter home .

I have no funnies for this, but dang, you have to be a very proud Papa!!! Your daughter has the strength of her father. Perfect. All the best to you and her!! She is amazing. I know her youngun is excited too!!!

Been waiting to see what image Jon would come up with 2

Hello Jon!! Come in Dude!!

.....see AussieBrian at clusterheadaches.com....his email addy is in the tag line. way good bloke, if he don't know he'll know someone who does.... Clusterheadaches.com NEW Message Board My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com

@Shaun brearleyI did not mean to drift the topic and just wanted to say that I'm really happy your girl is doing so well! I'm so glad that she is moving out of the hospital setting and into what sounds like a great facility to continue her recovery! Much respect to you and yours!

Last I checked, I was allowed to have as many reactions in a day as I pleased... What is the reason behind "running out of reactions" anyhow? Well I'm reacting anyway gosh darn it. Jon I bestow upon your last post a HAHA!

......just be careful on the way out!

Some have their cycles peter out, others go out with a bang. Have you tried an Excedrin Migraine? They help many with the nagging hangers on. The 'migraine' part means it has caffeine in it. I take Ibuprofen. You can try a cup of coffee, two aspirin, whatever your normal goto is for minor pain. See if that helps and let us know! You do eat lunch, right? Lack of food can cause a headache too!!

Well, I could have gone with: Amazing, incredible, super-human young Lady!!!! Is that better? I did not mean to imply anything other than a most positive statement. You, my friend, are no damn slouch in the 'strong' arena. Hang on to that.

@spinyvery proud ? She is a lot stronger than me !!!!!!!

Thanks spiny, Dr. Beuthin is a neurologist, he seems to have a good team from what I can tell. The attacks started just before I turned 15, there was a CT scan done at that time but I've been having trouble getting old records as that was in 2000 and the hospital may not have the records anymore. I don't believe the granuloma was there in 2000 but it would be nice to know. The mri/mra scan appears to show the growth larger so he sent me in for another CT to compare. I haven't heard back yet on that. I didn't know cluster could be a result of other issues, still learning so much! Great info, thanks again! Will update as results come in.

I understand your concern! I am happy that you have the 'positive side' to lean on. I have not experienced this diagnosis, nor have I read of another with 'flattening' of the trigeminal. But, this is also why it is recommended to get a scan when diagnosed with Clusters - something else may be going on in there. Apparently, you have one of those 'something elses'!! A referral to a Neurosurgeon may be scary, but it is great that your doc is looking out for you! The surgeon should be better prepared to deal with irregularities and figure out what is going on inside. The CTA is a step above the CT in diagnosing head issues. Is Dr Beuthin a Neurologist? Apparently he has had this granuloma in your records for a while and now it appears to have grown? Sometimes other stuff can cause Clusters, like one member had an aneurysm found and repaired. That ended his CH. Hang in there and let us know what the diagnosis is when you get it!!! I wonder if it reduces or returns to standard shape outside of your cycle? Or is it this way cycle or no? Fingers crossed and good vibes coming your way!!

PS If this info helps anyone, I just realized a lot. My current cycle followed the EXACT pattern it did in 2020. It started on August 17th and ended September 1st. After reviewing my headache log, I realized this is the EXACT pattern I am in now (attack wise). They stopped on the same day. The only difference is this time I took A LOT of oral sumatriptan and since the 1st of September I have been getting dull, lingering 2/10 headaches, which makes me think the past two week headaches are the result of so much suma. Who knows, but hopefully this info helps... It is crazy how I've had 3 cycles, 2018, 2020, and 2022 and they all happened in the summer and the past 2 started and stopped on the same days (attack wise). Much love to all. PS I will be getting oxygen and Verapamil for next cycle.

VID-20220916-WA0000.mp4 Didn't think I would see this day again !!!!! 2nd July my world stopped ,but I can really say the light at the end of the tunnel is getting brighter and brighter , she's amazing