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I'd have to pick out an extra face ie spiny

Oh but you are! No surviving this show without a touch of wisdom, perseverance, willingness, strength and endurance. Shoot if your afflicted with CH and still keeping on... your basically a bad a%#

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Sometimes it feels like a freight train running through my head... Sometimes it feels like someone cuts a six-inch valley through the middle of my soul... And sometimes I see the true face of the beast in me... Please feel free to use this elsewhere or as avatars

It's not mine Spiny, but to me it is so recognisable. When I commute with the train and look out the window, the tracks go through a forest where alongside these images were made on fuse boxes. Hard to get close, but yesterday took some time to get really close and make some pictures. It's like the artist actually knew how I feel when the beast comes visiting me. Thought that some other may relate to this too and use a picture to show others what's it like to have this condition. All the best, Alex

...shaun....easy-peasy...start with a joke, you cheeky devil...like: i picked this topic just for you!

So happy to see you're going to attend this inaugural event @Shaun brearley!! I'll never forget my first patient conference in Portland in 2010! Be sure and give my good friend and our vice president of clusterbusters.org, Lady Ainslie, a big hug from me! And BTW, I second the jeebsters notion of your sharing your story if they have openings for speakers dude!! If you'd be up for it I can definitely put Ainslie in touch with ya bud! DD

Five titanium plates to hold it all together buddy . Piece of art really

...what? this?

Hi HCF, As @Shaun brearley has said, ginger is helpful in curtailing shadows. I am somewhat of a constant shadower (usually have them on a daily basis). I have found that RC seeds keep them at bay for me for 2-3 weeks. I also think curcumin mixed with ginger helps quite a bit. The RC seeds are easy to get your hands on and legal to purchase (just not to consume) but who's gonna know if you do. If you type in RC in the search bar you will get all the info you need on processing/obtaining etc. I found this pinned thread quite helpful I am not sure what causes shadows but I have had them ever since my first battle with CH. Sometimes they seem to be a warning prior to a cycle and other times they seem to just be aftermath. I also feel like the longer you go without being in a cycle and allowing the cluster bunny to take your brain out and stomp on it, the more intense the shadows become (almost like a cist that really needs to drain) gross analogy I know but... Anyhow I hope this helps.

Hi buddy yea a good tip for your shadows is GINGER it works a treat .I use 1100ml capsules 2 a day even out of cycle . A lot of folk on here you ginger candy . I hate the taste so capsules work for me

Oriley, I have acid reflux and take Omeprazole for it daily. While I have been on this regimen for years now, 2022 has been the worst year I have had in decades. As in I have been in cycle since March. I am going to do some checking on this bit of new knowledge in my pocket. Perhaps I can double up on my magnesium? I am certainly going to check. This is the first year that I have not had direct sun to make D and have to rely on supplements, so naturally I am taking more D in vitamins. Perhaps upping the magnesium will help!! For long term use, my doc put me on Omeprazole. If your doctor said you need to protect your esophagus, keep taking what is required. You don't want to cause worse problems for your future.

When it comes right down to it so would I, so no judging from me on that front @Shaun brearley!

Lol bosco , if only I was wise!!!!

LOL Shaun... Then I'll have to start calling you the Oracle

Gonna start calling you Prof Bosco soon @BoscoPikoI'm sure of it !!!!!

Sure will give Lady Ainslie a BIG hug from you buddy ,like I said buddy not sure about standing up I'll think about it

I can't wait @Dallas Dennyso looking forward to meeting other CH's

@Bejeeberhotel booked for conference

Another milestone hit . Daughter's 32nd Birthday yesterday . Took the party to the rehab centre