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Welcome to the community!! Dallas Denny

Naw. Everyone on here is a SOMBODY. Tell all us what you do to mitigate your CH and what has been offered you to do as such. You may find yourself kindly surprised at all this community has to offer.

Jus', it really would help if you'd tell us what you are taking now for your cluster headaches. In the meantime, if you feel like it, you might look through this doc that has info about treatments: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

....no regrets either way Jeebs....as usual we gotta find out for ourselves...share among ourselves....then bring the world into our reality. this one so promising it deserves repeated attention. the potentials for CH and mental health issues demand it....

Ah, at first when I saw your mention of this I thought of the older nat Geo segment profiling our buddy Dan and his busting activities, but now that DD informs there's some new clusterbusters coverage in episode 3 of a Nat Geo series on LSD, I bet that's what you saw...? Your injuries from that fall sound truly horrific. I can't imagine the struggle it must have been since - it leaves me pretty much stunned, but we can directly relate to your clusters, and of course the hope is some of the non toxic yet effective treatments such as @FunTimes mentions could help bring some relief. Then there's this week's discussion of ketamine infusions for CH. I've been kind of bringing it up a lot just lately, hoping I won't regret it after results are in from more CH'ers reporting their experiences, giving us a better idea how consistently/universally effective it really may be, but here I am broaching it again, with you this time @Jusnobody, because I know it's reputed to be effective for pain in general, plus brain stuff. Just wondering if you've looked into it? Glad you have that wonderful dog - would love to see a photo of the pooch sometime.

Anyone else catch this last nite? Seems that the nat geo film crew made a visit to the clusterbusters conference this past year and included that video footage in this documentary titled "LSD.. the psychedelic revolution"...season 1 episode 3......many familiar faces including our fearless leader Bob W!! DD

hi Sam...welcome ...yes on RC... ....see the blue banner at top to start: "new users-please read here first" lotsa good stuff...feel free to ask any questions best jon

Thank you, Jon! Not sure how I totally missed that. Loli figured out the RC thing. Will now read the welcome! :-)

I so understand how this could be a favorite as I have a hard time believing that there is a Cluster Head out there that hasn't had this awful thought plague there mind. Sometimes it's hard (especially in the beginning) to imagine living forever this way. As for tracking meds and attacks, I initially used my outlook email calendar. I still shake my head when looking back and seeing my loggings of migraine. I no longer track the attacks as they have continued to morph, making tracking somewhat silly. There is something to be said about a diligent documenter and has proven helpful for some in the past. I now focus on things like supplement packaging, dosing levels and odd happenstances like warning signs as well as the last time I ingested something outside of pharma. Excel is a great tool as you can easily auto sum or create neat formulas like (cell such and such equals this or that). Now days I try and pre-package everything from morning intake, evening intake and for fuc8ks sake intake. It just makes my life a bit easier being able to grab a baggie although I do get the odd looks at Michael's craft store when buying out the small sized drug looking baggies...

...same here....but that was because every cycle/triggers/pattern was same for 23 yrs when ECH. for me pointless, but still believe can be a valuable tool to detect subtleties of importance... ....seems we have discussed this a few times and i thought there was a newer version of journaling, but the search function fails me....perhaps someone recalls that thread(s)? ....one of my favorite diagnostic stories...and i believe from National Migraine (now Headache) Foundation newsletter... was the physician who noted, and used in diagnosis: "boy, you folks (clusterheads) sure do seem to all journal, i see it consistently". it was kinda implied as an OCD component of CH that i really don't know is valid or not ¯\_(ツ)_/¯. but i agree, we do seem to have the need.... ....the other favorite was the physician who asked, and considered a definitive diagnostic indicator of CH, a positive response to the question: " have you thought/considered/contemplated suicide?" is called suicide HA for a reason, and i firmly believe an absolutely essential question for any diagnostician....sorry for the thread divert...am easily distracted... "

when I was tracking everything I went old school with a pad and a pen. Filled a few notebooks then got fed up with it and threw it all out. Only track things now when I am in a clinical trial and they normally give you some sort of tracking device for it.

Welcome to the club that is not so fun to be in! but we can get you figured out and in a better place. What have you done so fat to treat the cluster portion of your misfortune? Being a welder gives you an edge as you should be familiar with oxygen and how to obtain it. You can read all about that here on this site. Other things you will want to read up on are the D3 regimen, % hour type energy drinks and check out the busting stories section of the site. Ask a tun of questions and everything will hopefully get much better for you physically and mentally.

For full accuracy: remove the hair, add about 50 years and 50 (or 60) pounds, insert computer, and replace vest and tie with ripped pajama top. But back in the day, I did get to do some fun things.