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Hello friends, I am still on the mend, I hope I don’t jynx myself. I have had a relatively good year headache wise (knock on wood). I’ve been feeling depressed lately. I’m hoping this doesn’t mean a cycle is brewing. Summer time happens to be my least favorite time of the year. I live in Miami and it’s always 100 degrees lol. anywho. I just wanted to check in with you all. I hope everyone is hanging in there kat

Now that we're almost recovered from the previous one, time for another PARTY AT BOSCO's !!

Congratulations Bosco!! A year P.F. is grounds for a party! I have issues with Insulin and everything else the pancreas does for us. Mine is due to a medico ignoring the gall bladder in a scan where it was stated to be full of stones and sludge. I had no idea. Anyway, it took ten years to get my mess fixed: Gall bladder removed and I was still having major issues. I did some nasty tests that were sort of ignored by the gastro. My PCP was out for maternity leave and the retired Doc was awesome. She looked at the puter and poked me a good bit and called for a full body CT with contrast. How often do doctors actually poke you now? Hardly ever it seems! It showed that my pancreas had calcium deposits in it from the neglected gall bladder removal that on occasion blocked the bile ducts, along with a bleeding ulcer that had dye spurting out from it. Gastro argued that I did not have Chronic Pancreatitis, but an ulcer. I quote "If you had Pancreatitis, you would be in the hospital!' The ulcer, she treated with pantopraezole, not the standard two antibiotics and a tummy pill!! Our follow-up call did not go well either. She finally admitted that I did have chronic pancreatitis, but had no suggestions for my pain or need to stay home till after 12 everyday due to the inability to digest any foods. My PCP gave me Creon samples. I was able to eat and finally not on the starvation diet from all food being rejected since it did not digest. I gained 20 lbs for which I am most grateful. Being a 'new' drug I presume, Abbvie pays for the medication. I suppose that I may be a guinea pig, but who cares? I can eat without killer pain within two bites and actually have some energy now! Creon replaces the missing digestive juices the pancreas can only manage sometimes. Bottom line is the Creon has not stopped my CH and it supplies insulin for me. May your pain free status last for MANY YEARS!! They just need to quit this mess for some of us! LOL

Yes, here we are and so far so good! I feel good and am void of any warning signs... I think I finally made it a full year (never achieved this in all my CH life)

@Bejeeber yes I just really dislike busting in general, so I only really do it if I HAVE to…I work a lot too so it’s hard to find a day to dedicate to it. We shall see

Glad to hear of the cluster free part - what a big deal that is!! Wondering if you're considering some additional busting session(s) in hopes of alleviating the depression, since it's known to potentially help with that too?

Okay HERE WE ARE at July 3rd - what 's the verdict @BoscoPiko, did we make it a full year without an attack?! I'm practically assuming so. In light of OldArn's bad news/bad results yesterday, some good news is sorely needed, and I figure that is your jam today.

Yes, Pred is Prednisone or Prednisolone. There are many ways that physicians 'prescribe' a taper. There is a Pred Taper Pack, that you take for a week. This is standard treatment for many issues that need Pred to overcome inflammation. Your doctor might give you a two week taper or a month. But it is a drug that you want to use with caution and only when needed. It will buy you pain free time to regroup if needed at times. Just be judicious with the use of it. Thanks for the very kind words.

Thanks @Shaun brearleyyour 2 kind. Oddly enough after my last response to @Bejeeber I got a notice from Kaiser and Sutter (my insurance plan providers) telling me that my script would no longer be covered by my insurance and that my script was not being canceled but I would have to foot the bill as my BMI (body mass index) suddenly did not qualify for coverage. As a consolation they advised me where I could have my script filled at my own cost of $1k per 30 day supply. I'm not as upset as I thought I would be as I've learned to have a backup plan for all of these pharma/insurance provider shenanigan's. I suppose I am just bummed that I can't experiment a bit longer. I've had such great success with adhering to some of the methods and means provided to me via this site that I don't care as much about the denial of coverage. (They can go suck a cluster bunny egg, maybe.. hopefully choke on it 2)! Anyhow I am nearing the one year mark ATTACK FREE! I pray I am not jinxing myself but at the same time I am 2 grateful not to share the news! My last attack (only one mind you and not a cycle) was last year on July 3rd. I would be lying if I said I wasn't scared. At the same time my heart swells with pride over the help and much needed support that I have received no where other than here! All of you are the very best!!!! Happy 4th!