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Showing content with the highest reputation on 02/15/2024 in all areas

  1. Firstly, I am glad you found any relief at all. The number one accomplishment I can't take for granted for any CH sufferer is relief. However, it's still to early to use the word cure. I have had an uncle who is currently in a 15-year remission, and even he doesn't know what happened. I believe if more stories such as yours are empirically followed and can stand the rigorous scientific scrutiny, then we shall have all the solutions we ever need. But first, we have to document it and follow it up. The past threads about this doctors methods indicated that the results were mixed. Some people got relief, and others didn't get relief. You mentioned that he is now using a new technique, which is good to know. Currently, we have you his patients, we have him and we have time. Let's continue to keep the records and see where it leads. Just know that even though I, for one, appear skeptical, I am cheering for your relief and hope it sticks. Now that you are going back to South Africa, please ask the good doctor to put up his work for international peer review. That would be a nice step in the right direction. I know this disease is not statistically significant enough to warrant a lot of attention from the sceintific community but I believe the solutions are out there and we should keep looking.
    4 points
  2. Wow, it's been quite a spell since Danny boy put up a post about Quack Shevel!! If you're new here please don't get your hopes up over this BULLSHIT!!! DD
    4 points
  3. Gosh dang it @CHfather nothin like knocking the thunder clean out of the sky!!!
    2 points
  4. There has been plenty of discussion of Dr. Shevel here, most of it quite harsh. For those who are new, here's a sample thread, with includes an extensive response from Dr. Shevel: https://clusterbusters.org/forums/topic/2898-dr-elliot-shevel/page/3/ Of course, Douglas Ward, you have no idea whether you have been "cured." We wish you well. Even considering the resistance of conventional medicine to new ideas, it does seem quite surprising, doesn't it, that only one person in the world is practicing this "cure"?
    2 points
  5. https://clusterbusters.org/study/ut-houston-batchs-vitamin-d-regimen/?fbclid=IwAR26zK4jCbwyL2LIkcnVOkkj7__c_raUHVbrq08POiltlRiz148Kfsve5wU
    1 point
  6. Hey Readbeard, Yea I get really bad shadows pretty much all the time as well. At times I feel as if I have vertigo Some see them as a precursor to a full blown attack. For myself they are somewhat a part of my daily life. I do get a good deal of relief from taking a daily dose of curcumin mixed with turmeric and others have decent responses to ginger capsules. There are other methods of dealing with your CH that you may want to check out (some of them have helped me with my shadows as well) that can be found by clicking on the blue banner at the top of each forum page (new users please read here first).
    1 point
  7. I understand that , But the word cure shouldn't be used , it give false hope
    1 point
  8. Sean, it literally is that easy I am living proof of it. The flight from Newark to Johannesburg is 16 hours so on the way there you may have a headache that’s the terrifying part once you’re there I can show you the hotel that is 10 minutes away. They work with him all the time. it’s a wonderful place the people that run are amazing, there’s a shuttle service that takes you from the hotel to the clinic and back if needed the round-trip flight for me from Houston is about 2200. The hotel is about $40 a night. The rental cars about $30 a day. The weird thing is you have to drive on the wrong side of the road with a bunch of crazy South Africans, which is a whole other experience lol.
    1 point
  9. Mate I'm not saying I don't believe you , I'm just saying from my experience their i s no cure , and yes I have CH have done for 44years , and yes I've had a rope around my neck on 3 occasions , my cycles last 6 months at a time 8 to 15 attacks every day and through the night , , I've banged my head on the floor the wall I've even had my partner knock me out with a frying pan , I also stab myself in the leg with a knife just to try to put the pain somewhere else , so yes I would say I have experienced CH ant it's worst !!!!!!!!!
    1 point
  10. I do not doubt your story one single bit because it is your story. I am hoping and praying you keep pain-free no matter what worked. However, I would like you to know there are remissions. I have an uncle who has been cluster headache-free for 15 years or more years! Even he doesn't remember what he did. He says my Dad had them worse too and that My grandfather had them until he passed in his 80s. I am increasingly finding people who find unexplained relief or remissions, but I will not be calling anything a cure for now. Please follow this post up with the great news of your relief every now and then. I am interested in your progress. In my first encounter with remission, I was as happy as myself. I would often think that I had discovered the winning formula only to go back to the drawing board during the next season.
    1 point
  11. I don't Know if am the pessimist or not but the remissions in Cluster Headaches make cure claims very very hard to believe.
    1 point
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