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Showing content with the highest reputation on 02/01/2020 in all areas

  1. 2 points
    Caffeine does not trigger CH. From my personal experience and the people here. It is a very effective aid in moderating or aborting a hit for CHers'.
  2. 1 point
    Thankfully the medicos are learning that CH affects women about as often as men. Many women were labeled as having migraines when actually they had CH. And then they are prescribed a Triptan in pill form, which is pretty useless for CH. Takes too long to kick in. Your move and the return of CH has reported by many. I had the same thing happen 16 - 17 years ago. I had been PF for 10 years! It is disgusting when it happens. With no O2 at the moment and you being in Ohio, you could truck it outside in the cold and do your deep breathing and forced exhale there. It should provide some relief. Sometimes you can do the breathing with just air and benefit too. Cold does seem to work better. I would suggest you hit the caffeine first! Some put their feet in water as hot as you can stand it. These methods work best if begun early! Another idea is to sleep in a recliner, just keep your head above your heart. It is good for night time hits. As an added bennie, you will wake sooner if you get a nocturnal hit. Another thing: If you can't get O2, like many of use, you can use a welding set up. Welding tank of O2 and your regulator and mask. The non-rebreather Clustermask is the BEST! Welding O2 is safe to use. I hope that some of this helps. I definitely would begin the D3 Regimen ASAP! It is easy, no doctor needed, and all good for you stuff. All the best! We are here to help you get to a better place. I changed my original post to you and deleted most of it after I did a bit of research. It was another poster that I saw, not your posts! Apologies.
  3. 1 point
    https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people found it! Sorry I’m at work at the moment someone else had posted in another thread. Please read carefully
  4. 1 point
    Here is the link but I am sure Batch will be able to help you out soon. https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10,000+IU+of+Vitamin+D+in+80+percent+of+people
  5. 1 point
    I wanted to take a second to send a HUGE thank you to this website and it’s moderators. Four weeks ago, after a 15 year absence, my CH returned. And with a pain level I don’t remember. I didn’t know what to do and couldn’t remember my drugs I used to take or if there were even any changes in prevention and treatment. I went to my own general practitioner and as I explained what was going on, he began thumbing through his drug catalog, gave me a referral and that was that. I called the doctor he referred me to and he couldn’t see me until the end of February, clearly (or hopefully) beyond my need to see him. This past week I was in hell. Multiple attacks per night and then attacks while I was at work and driving to work. All I had were triptans at my disposal and those were clearly messing with my cycle, making it impossible to predict and creating multiple attacks per day and night. Wednesday evening, after having three kip 7 or 8 attacks, I found myself in my partners lap sobbing. I couldn’t find someone to help me an I didn’t know how to fix it. That morning, I found the list of recommended doctors on the site. Curiously my referred doctor was not there, but there were three others. One five miles from my home. I called them fully expecting to get the, “we aren’t seeing new patients until later next month”. But instead, after telling her I suffer from CH, she asked me if I was available this morning at 7:00am. Needless to say, my emotion bled through the phone. I felt saved. And this morning I went and met the most amazing people. They knew what CH was. They knew how much we suffer. They told me that CH sufferers always get bumped to the front of the line. They knew of all the current treatments and gave me the options of choosing. And to top it off, at 7:30, I started an attack. The doctor injected me with imitrex, guided me to a quiet room, and let me deal with the beast in private. When I came out, I had a bag of goodies that I had recently paid an arm and a leg for, and several reassuring smiles that made me know, I am in good hands. And I wouldn’t have found it if it weren’t for this site. I am eternally grateful. I don’t know if I found my personal fix, but I found a trusted partner in the process. Thank you.
  6. 1 point
    Maybe for some people caffeine is a trigger. For most people it's an effective abortive. Those pills might or might not be helping you, Talia, but the caffeine in them is probably trying to help.
  7. 1 point
    Here is some food that triggers CH so we need to keep ourselves away from this. Caffeine High Fat Food Chocolate Alcohol