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Showing content with the highest reputation on 01/22/2021 in all areas

  1. Welcome! Cluster headaches seem to be more rare in young women, so I'm not glad that you're here exactly but I'm glad we aren't alone! I had my first at 20 and am 36 now. I have not tried as many of the medications you mention - my last doctor prescribed me sumatriptan in tablet form which didn't do anything for me except propel me into a medication overuse cluster episode. I will say that 5 hr energy is a great abortive for me, and that I have had a lot of success with a procedure called Sphenocath, which is an SPG nerve block where they put a lidocaine solution on a nerve cluster in yo
    2 points
  2. ...good morning Erica...welcome! ...yeah, thanks Ma for sure...diagnosing CH in an adult is a crap shoot..it would seem to be even moreso for a child.... ....you don't mention OXYGEN.....considered the best abortive and NO side effects, especially heart wise. any experience there? wouldn't need the other meds.... ...careful with the Excedrin....some folks find it helps with shadows (naproxen does for me) but is useless for a regular hit, nasty potential stomach side effects and additive to any blood thinners you may be on. methinks the caffeine is the key ..... best jo
    1 point
  3. I have six cats and magic on my side! Keep up the good fight my friends!
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  4. ......been doing some form of this dance for near 40 yrs now, and it continues to break my fricken heart that the absolutely true above has changed so little....especially so for O2 ...the best, highest success rate, safest, cheapest abortive.... ...it is to sigh.... and one of the many reasons for ch.com, cb.org, et al. i am forever grateful for the clusterheads and their supporters who DO understand.... and reach out to others in the "family".....if we aren't our own best advocates sometimes it seems we got nothing.....
    1 point
  5. Is he breaking open the injectors to get multiple shots from each? That still won't cover 5-6 attacks per day, but properly set up oxygen will deal with many/most/all of those, so the Trex is just needed for breakthrough attacks. https://clusterbusters.org/forums/topic/2446-extending-imitrex/ Or vials and syringes, as Pebbles' mentioned. Verapamil is a good example of what I was saying . . . One form (immediate release) works better than another (extended release), but most doctors don't know that. And the typical dosage required to prevent attacks is often far higher than
    1 point
  6. In principle I agree with @CHfather. If one fails to respond to injectable imitrex then the diagnosis should be scrutinized. I have a similar belief to properly administered oxygen. If it doesn't work I would be skeptical of a CH diagnosis. There is general agreement oral forms of triptans are useless for aborting CH. Subcutaneous triptans should be highly effective in a person with classic cluster headaches. Many find reduced doses of 2-3 mg highly effective in aborting an attack. Using multi dose vials or splitting autoinjector doses helps reduce side effects and increases
    1 point
  7. Thanks, it's coming back to me from dealing with this 2 years ago. I sent the script request to his doc using the language from this site. Thanks for the reminder!
    1 point
  8. O2 condensors are essentially pointless for CH. You really do need to fast track getting the right O2 setup. Others on this forum are super helpful and knowledgeable about this.
    1 point
  9. Hey Ruth If its any consolation...were in the exact same position, the whole of last year i was doing my honors research and all i kept thinking about was " the last thing i need right now over and above COVID and academia is a cluster episode". My wish was granted as soon as i finished on the 12th of Jan and got my first episode since 2019. the beast keeps waking me up at 1am everyday and a further surprise as soon as i wake up...and oxygen is now hard to come by here in South Africa since COVID hit us. Hope WE all get through this. Stay strong!
    1 point
  10. Correct! a lot of people have hade great success with using the D3 regimen. For some it have stopped clusters all together others like myself it has cut down the amount of hits per day and the severity of each attack. You will need to get your bloodwork done to kind out what your levels are and make some adjustments but it is worth giving a try. XXX Formally known as Batch on this site, is available to help you out with any questions about this.
    1 point
  11. Sorry to see you back, but at least you are among those who know what you are going through (Relatively speaking as we each have our own tailor made beasts) I have decided pets, particularly cats should be part of a ch'ers coping kit. My devon is one of the only things during a hellish hit that can bring me some peace. Hopefully, all gets back on track for you fast.
    1 point
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