Bejeeber

Certain terms for your neuro such as "a-hole" and "jerk" immediately come to mind. Â :-?

Understood. If one of the little concentrated energy shots would be easier to hold down, those have been known to work too. At least they only require one short swig before you're on the O2. 8-)

Hi Avril, fingers vigorously crossed here too for a successful nerve block today. So glad to see our voonderbar JackieB and CHfather have greeted you with some great info right off the bat. Many many CH'ers here (including myself) have found busting to be significantly more effective at preventing CH than any drug. So I'm thinking there's a very good chance it could help you too.Â

Well that's always a concern with the lousy once every hour night hits isn't it? HATE those. > Hopefully you are holding the mask to your face, so if you fall asleep it just falls away? It's dangerous as you already likely know to fall asleep with a mask strapped on. I suppose another idea to prevent running out of the O2 would be to set an alarm for 20 minutes or so from the time you start the O2. I'd be tempted to do this with my iPhone - maybe someone can comment on whether there's any significant spark/fire risk of operating a smart phone while on the O2.....

You go Birdman! Successful busting to you. 8-)

Now those are the kind of critical details, ones that if I see them I'm prone to forgetting them, that make CHf's contributions here so vital and helpful.

Oh man that sounds like horror alright. :'( I have my doubts as to whether Vitamin D could somehow cause an extreme reversion to CH attacks like that, but there has been a CH'er or 2 who has reported a worsening of their CH coinciding with going on the Vit D. So far it looks more like coincidence to me, a major return of the attacks that would've happened anyway. I wouldn't blame you for discontinuing the D for now just to be sure though! So sorry about this unexpected return of the beast. :'( I'll be interested in seeing what the others such as Chfather, Spiny, CH-hell, Ricardo et al think about this, and speaking of Ricardo, I wonder if you could look into his earlier intranasal ketamine idea?

I think CHf really may be onto something there.

I think that is one fine *supporters maniifesto* Elly. 8-) Folks like you and CHf who get it and fully empathize with CH'ers are really like some kind of saints to me. Official sainthood nominations coming up, now where are those pesky application forms? ;D I figure when your partner has attained some extended remission, there will be an additional great side benefit to the busting treatments, which will be the likely alleviation of any PTSD he might otherwise have, allowing him to resume normal life as if the CH never happened. Sorry that it won't help with any ptsd YOU may have incurred from the experience though! He may have to share his truffles with you.

That is ENCOURAGING! [smiley=thumbup.gif]

Good advice there from CHf on ordering the non-prescription components of your beefed up for CH O2 system while awaiting the arrival of the actual O2 cylinders.

What Ricardo said, because after reading this... It appears as if Derek very well may be one of those rare unfortunates for whom O2 just doesn't work, unthinkable as that is for the vast majority of us for whom it does work. :'( I think if I was Derek I'd be investigating the Ketamine as Ricardo mentioned.

UGH. Been there, done that with high cycle hits. :-? I suppose you've tried the D3 to see if it helps the O2 work better? Since the attacks have been starting in the back of the head I suspect 'ol DanBerry McHipShot may be thinking a facet injection could possibly bring some CH relief since it did for him.....?

Glad to see the good advice you're getting here B-man, and I believe this is one of the particularly pertinent nuggets: Here's to a good strong beast walloping tonight.

Birthday and birthnight greetin's to the inimitable Dr. R! [smiley=birthdays.gif] [smiley=beer.gif]

Well I packed some SPUT powder caps, but didn't end up needing 'em on my travels. A 1.7g Vit M dose the night before leaving on the trip landed a brutally vicious uppercut on the beast. It knocked him back very nicely, and when activity returned after 5 days, it stayed relatively minor, with some possible help from my efforts to keep it tamped down with RC and one energy drink. My luck holds for the moment.Â

Thanks leslie. I shoulda mentioned that 2g of this same powder gets me to the state of some mild visual hallucinations with eyes open, and lots of more prominent hallucinations with eyes closed.

Thanks fellers. I do have a super sensitive/accurate weighing scale, so now I'm also going to ask for opinions on what fraction of a gram of powder might make for a good SPUT? .2g?

I don't have a Small Piece to put Under the Tongue to abort any post bust hits while traveling, but I do have a little bit of powder. Heck I guess powder will work even faster than a solid piece.... So it'll be more like a small pinch under the tongue I guess. Anyone done this? Any ideas about how to best implement this version of SPUT? Empty a partially filled gel cap under the tongue while sitting in the airplane seat?

Wow Domino you are rockin' the house. 8-) Love seeing these kind of stories, and also this bit about how you resolved the situation with your (sadly typical) neuro who, since you were in a severe crisis situation was willing to squeeze you in after NINE months.

Sorry to bring this up, but I'm afraid that can interfere with busting, and may account for your lack of results. :'( Is the 25 mg steroids helping you at all (it doesn't seem like it is)? Would be nice if you could continue to taper off of it so the RC could work to full effect. Yes, everything I've read....well everything I remember...says it's OK to do so.

Here's a little story about a man named Jed Giussepi: Giussepi just retired from 30 years as a patrol police officer. He would bring his (small) E sized O2 cylinder and demand valve with him in his police car every day when in cycle, and had tremendous success being able to pull off the road and abort attacks within 5-10 minutes. Moral of the story: The demand valve system can not only provide a more effective O2 treatment but can also help preserve the precious O2 supply with the smaller portable O2 cylinders when on the road.

I'll go with slap back / good sign. At least what you're describing is consistent with what others have found to be slap/good. 8-) Wow sorry you had to experience a Kip 10, but glad you were able to knock it down with the O2.Â

I'm no expert on that but I've seen another expert type here say that sleeping doesn't make a difference. Does that count? ;D I am intrigued by the thought of being able to sleep right through a Vit M bust, that would certainly make the process more convenient during the work week! Best o' luck with tonight's knock out punch. 8-) [smiley=thumbup.gif] (knockout of the beast that is)

It may feel unwieldy to figure out the first time, but it then fortunately becomes very easy. In fact, although it took some nerve to stick a needle in myself the first time, I would now continue to inject this way instead of using the auto injector even if I was taking full doses! Injecting under the skin in the abdomen, to the side of the navel, is practically painless, and it's an easy area to access and manage when self injecting this way.Â