Bejeeber

It's been over 10 years since I've been to the Rio, but I too remember they had nice good size suites. I've made sure to lock in my $85 room rate for this conference, as my likelihood of attending has now risen on the Jeebs-o-meter to to 68%! How can any of us afford NOT to go, really, considering the windfall profits we can expect from the gambling, gambling and more gambling?? ;D

Oh man what a double whammy - losing your mom right at the same time you're being hit with CH. So sorry to hear of this Poisonsel. :'(

What Jeff said. I too am afraid you'll need more detox time. Now if you're going to take sumatriptan in the future (O2 is actually a better choice, no detox required), the consensus is pretty much that the sumatriptan pill form is whimpy, too slow acting for CH, and is for migraine. If you really want to reliably abort actual attacks with sumatriptan, go for the injection form, or at least the inhaler. Here's hoping your bust works great and there'll be no need for that pesky sumatriptan anymore. 8-)

I haven't heard of anyone coming anywhere near losing control with the therapeutic CH dose of 35-50 RC seeds. Typically you just take them before bed and the one side effect experienced is a better night's sleep than usual. 8-) Just remember you should detox from the imitrex for 5 days or so before your RC dose(s). The D3 regimen is just an anti-inflammatory thingy that can be good for you in other ways. Lotsa CH'ers find it to be harmless and worth a try.

Hey K-bo, What Jeff said, plus it appears fairly common to me for us clusterheads to come to rely on clockwork CH attacks when we've experienced years of predictable CH behavior, only to have the Beast suddenly without notice switch things up in ways we never expected. I went decades with full rock solid confidence that I'd never experience an attack between sundown and bedtime (well except for the one time early on when I discovered beer is a trigger of nuclear proportions). Next thing ya know a cycle comes along where I'm bolting for the o2 tank a couple times every evening. Not sure what would've happened with the timing of attacks for my last cycle because I busted it. 8-) Hope you can do the same!! And now that you're mentioning triptan shots, I hope you're already aware of the method for extending your imitrex supply (and lessening side effect risk) by 2x to 3x: http://www.clusterheadaches.com/imitrex.html I'll also second the vit D3 therapy that Polar Blair mentioned: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1314134804 I see it's originator, "Batch", is now reporting 88% effectiveness for episodics, 66% for chronics.

Wait a minute this sounds like the "I'll show you my scar if you'll show me your password" ploy that you pulled on poor Ron at the Dallas Denny convention. ;D

Hipshot isn't the only one on here who ended up with his hip shot from prednisone, requiring a hip replacement. And that's just one of the severe, permanent side effects to be acquired from sustained high doses of prednisone.

I've gone as far as booking flights (refundable) in hopes of making it. The wife will want to go on this Vegas trip too as she's a fan of the slots. Wuh oh. My hopes of going mainly revolve around meeting up with and hanging out with the good message board folk here. 8-)

Wow I hadn't caught on that our European clusterheads here, including those in the UK, could order psilocybe truffles online. Making a note of that - thanks. 8-)

All very good ideas! > This sort of stuff makes my blood boil, so I avoided watching the clip 'til now. I guess I thought this would be a time I could withstand it - nothing like a good saturday afternoon blood boiling festivity! > These arrogant scuzzbags represent everything that is so very wrong with the medical profession. They clearly just wing it when the cameras roll, and can't even be bothered to put one nanosecond of research into the day's topic while riding in their limousines to the TV studio. Maybe it's like a fun game to them, to have something sprung on them they've never heard of, then they can use some free association to conjure up solutions and advice right on the spot.... The term *criminal negligence* comes to mind along with a lot of other related terms. > I wonder if we should follow Jeff's suit and organize a mass visit to their message board to leave comments...? Well if they weren't deleting them. Someone with the means could so rip them a new one with an expose' video to be aired here and on Youtube etc. that could intersperse info on what CH really is and how to treat it with the uber negligent BS commentary of these idiots, maybe repeatedly going back to that creepy drunken plastic surgeon on the left for emphasis. I'll have to wait to watch the Doc Oz segment on CH. Blood already boileth over.Â

I think it's clear that you have to select only one busting agent to respond about, and now that you only respond about your most recent experience, but the main thing I'm questioning is whether that makes for an accurate survey. A lot of us have valuable input regarding multiple busting substances, and how they compare to each other, why only allow us to respond about one? If someone had ten good busting experiences in a row, then on their most recent 11th one had a negative experience, how useful is their data if they can only report on the most recent bust? If dosage level substantially impacted their experience for instance, there's no way for that to be recorded in the survey - not even a comment box.... I'm starting to think that testing surveys out on a few individuals first for feedback, then making adjustments before going public would be a good way to iron some kinks out. I'm happy to take this survey over again if it re-appears in a more comprehensive form.

Took it. Thanks to Jason and 2 notes: 1) Many of us have tried at least 2 different busting agents, so accounting for that in future surveys may be useful. 2) I for one have had mixed experiences while under the influence of Vitamin M, with the first bust being enjoyable, the subsequent busts not so much. The enjoyable one was a higher dose and there has been a theory floated that lower "fence straddling" doses are more likely to cause some of us anxiety. So since I had varying experiences - plural, it was hard to pick singular answers regarding the quality of the experience. Not sure how that could be accommodated in the survey. A comment box for that section could've been useful though. As a side note, I've found that whether my experience under the influence of Vit M was positive or negative, the after experience starting immediately the next day was always positive in regard to both effectiveness and mood/outlook.

Ditto. Yes *headache* is a very very inaccurate misnomer for this condition, and I don't know that we can completely fault others for not understanding the severity of the affliction when we use it. You won't catch me calling an attack a headache, and one advantage to that is when people still don't grasp the situation you can definitely fault them.Â

Hey k-bo, what Pixie-E said about the 100% O2 at 25 LPM or higher if you're not already doing that. I looked back at some of your old posts and see that you had ordered and tried RC seeds at the end of the last cycle but had been mistakenly only been sent 10 seeds. I'm thinking ordering a guaranteed large quantity could be a good way for you to proceed now (when I've ordered 100 from Iamshaman for instance, they've often sent me more like 200 for $12.99). Granted $12.99 is $12.99 more than the $0 funds you currently have at your disposal, but if you find yourself able to purchase Red Bulls, well I guess these seeds would cost about as much as 6 of them. [Tangent: I've actually found that the "Energy 2000" shots for $1 at our local Walgreen's drugstore work nicely, plus there are some similar deals on energy shots on amazon.com] Here's hoping that dosing with 35 - 50 RC seeds at a time could really do ya some good in the prevention dept. 8-)

What Bawb said. And whoa, THIRTY years, really??!! That is a bonafide honkload of years indeed and a big deal. CONGRATS.Â

Whoever titled Nutt's job must be a real .....nut job. Ahem. Sorry about that one. [smiley=tongue.gif]

Whoa I'll say! After reading that I could barely resist running to the window, sticking my head out, and yelling "I'm mad as hell and I'm not going to take it anymore!!"Â Of course it would suck if I did my Freudian Slip thing and ended up yelling "I'm OLD as hell and I'm not going to.....um....!"

That seems pretty commonplace - I've seen others report the same thing and I definitely recognize that one from my own experience, although I guess I can't really know for sure whether the prednisone caused my cycles to start lasting longer or if they were going to just go ahead and do that anyway.

Glad to hear it Dooley! I hope your neurologist is an actual headache specialist. If not, you might want to take anything a garden variety neuro says with a grain of salt, since they're often misinformed about CH.

Sounds pretty migraine-ish to me.

Yes Michelek, as is common, the 15 lpm with regular mask doesn't work for me either, but I and many others find higher LPM hyperventilation with a non-rebreather mask can really abort those attacks, and as CHf mentioned, it can help get you detoxed from the prednisone and able to bust. 8-)

Hi Michelek, What CHf said! When CHfather talks, CH'ers listen (or they should!). Much like the old EF Hutton commercial:

Ditto that. Enquiring cluster minds want to know.

I know that energy shots as opposed to drinks are a good way to. Never had a prob bringing those on, and they fit in the pocket for instant access even during takeoff/landing.

Oh Spiny, Spiny, Spiny. Sigh, and here I thought that might be one realm where they coulda had their act together.Â