Bejeeber

Wow I hadn't caught on that our European clusterheads here, including those in the UK, could order psilocybe truffles online. Making a note of that - thanks. 8-)

All very good ideas! > This sort of stuff makes my blood boil, so I avoided watching the clip 'til now. I guess I thought this would be a time I could withstand it - nothing like a good saturday afternoon blood boiling festivity! > These arrogant scuzzbags represent everything that is so very wrong with the medical profession. They clearly just wing it when the cameras roll, and can't even be bothered to put one nanosecond of research into the day's topic while riding in their limousines to the TV studio. Maybe it's like a fun game to them, to have something sprung on them they've never heard of, then they can use some free association to conjure up solutions and advice right on the spot.... The term *criminal negligence* comes to mind along with a lot of other related terms. > I wonder if we should follow Jeff's suit and organize a mass visit to their message board to leave comments...? Well if they weren't deleting them. Someone with the means could so rip them a new one with an expose' video to be aired here and on Youtube etc. that could intersperse info on what CH really is and how to treat it with the uber negligent BS commentary of these idiots, maybe repeatedly going back to that creepy drunken plastic surgeon on the left for emphasis. I'll have to wait to watch the Doc Oz segment on CH. Blood already boileth over.Â

I think it's clear that you have to select only one busting agent to respond about, and now that you only respond about your most recent experience, but the main thing I'm questioning is whether that makes for an accurate survey. A lot of us have valuable input regarding multiple busting substances, and how they compare to each other, why only allow us to respond about one? If someone had ten good busting experiences in a row, then on their most recent 11th one had a negative experience, how useful is their data if they can only report on the most recent bust? If dosage level substantially impacted their experience for instance, there's no way for that to be recorded in the survey - not even a comment box.... I'm starting to think that testing surveys out on a few individuals first for feedback, then making adjustments before going public would be a good way to iron some kinks out. I'm happy to take this survey over again if it re-appears in a more comprehensive form.

Took it. Thanks to Jason and 2 notes: 1) Many of us have tried at least 2 different busting agents, so accounting for that in future surveys may be useful. 2) I for one have had mixed experiences while under the influence of Vitamin M, with the first bust being enjoyable, the subsequent busts not so much. The enjoyable one was a higher dose and there has been a theory floated that lower "fence straddling" doses are more likely to cause some of us anxiety. So since I had varying experiences - plural, it was hard to pick singular answers regarding the quality of the experience. Not sure how that could be accommodated in the survey. A comment box for that section could've been useful though. As a side note, I've found that whether my experience under the influence of Vit M was positive or negative, the after experience starting immediately the next day was always positive in regard to both effectiveness and mood/outlook.

Ditto. Yes *headache* is a very very inaccurate misnomer for this condition, and I don't know that we can completely fault others for not understanding the severity of the affliction when we use it. You won't catch me calling an attack a headache, and one advantage to that is when people still don't grasp the situation you can definitely fault them.Â

Hey k-bo, what Pixie-E said about the 100% O2 at 25 LPM or higher if you're not already doing that. I looked back at some of your old posts and see that you had ordered and tried RC seeds at the end of the last cycle but had been mistakenly only been sent 10 seeds. I'm thinking ordering a guaranteed large quantity could be a good way for you to proceed now (when I've ordered 100 from Iamshaman for instance, they've often sent me more like 200 for $12.99). Granted $12.99 is $12.99 more than the $0 funds you currently have at your disposal, but if you find yourself able to purchase Red Bulls, well I guess these seeds would cost about as much as 6 of them. [Tangent: I've actually found that the "Energy 2000" shots for $1 at our local Walgreen's drugstore work nicely, plus there are some similar deals on energy shots on amazon.com] Here's hoping that dosing with 35 - 50 RC seeds at a time could really do ya some good in the prevention dept. 8-)

What Bawb said. And whoa, THIRTY years, really??!! That is a bonafide honkload of years indeed and a big deal. CONGRATS.Â

Whoever titled Nutt's job must be a real .....nut job. Ahem. Sorry about that one. [smiley=tongue.gif]

Whoa I'll say! After reading that I could barely resist running to the window, sticking my head out, and yelling "I'm mad as hell and I'm not going to take it anymore!!"Â Of course it would suck if I did my Freudian Slip thing and ended up yelling "I'm OLD as hell and I'm not going to.....um....!"

That seems pretty commonplace - I've seen others report the same thing and I definitely recognize that one from my own experience, although I guess I can't really know for sure whether the prednisone caused my cycles to start lasting longer or if they were going to just go ahead and do that anyway.

Glad to hear it Dooley! I hope your neurologist is an actual headache specialist. If not, you might want to take anything a garden variety neuro says with a grain of salt, since they're often misinformed about CH.

Sounds pretty migraine-ish to me.

Yes Michelek, as is common, the 15 lpm with regular mask doesn't work for me either, but I and many others find higher LPM hyperventilation with a non-rebreather mask can really abort those attacks, and as CHf mentioned, it can help get you detoxed from the prednisone and able to bust. 8-)

Hi Michelek, What CHf said! When CHfather talks, CH'ers listen (or they should!). Much like the old EF Hutton commercial:

Ditto that. Enquiring cluster minds want to know.

I know that energy shots as opposed to drinks are a good way to. Never had a prob bringing those on, and they fit in the pocket for instant access even during takeoff/landing.

Oh Spiny, Spiny, Spiny. Sigh, and here I thought that might be one realm where they coulda had their act together.Â

LOL and I second that virtual punching motion! ;D

"a.h.'s" is too nice of a term for those docs! > Glad to know that at least Jeff found your GB and is scraping that gum off of it before returning it. Wondered where you went...while you're recovering from your condition I bet you could use a nice portable iPad or something.Â

Ditto what Spiny and FunGuy said, Whooli. Hoping one of the treatments for AVM that are out there can work for you.

Hoping the same, Marge....er I mean CF.

Well that's a lousy coincidence! > Flight is unfortunately a common CH trigger. Ways we have dealt with it have ranged from having an energy shot containing lots of caffeine and taurine in the pocket in hopes of aborting an attack by drinking it at onset, to having an imitrex/imigran inhaler ready, to taking a preventative dose of mushrooms (in capsules) before getting on the plane (!)

Hey jojo - Kip7 = a 7 on a CH pain scale of 1 to 10. The drugs are pretty much the same in the US/UK but sumatriptan for instance goes by different names (in the UK it is Imigran, in the US, Imitrex)

Don't be too scared Clusterfeck - you have time for a couple busts (mushrooms?) before June 29. I bet you'll get that bastard under control and be in a positive frame o' mind come the San Diego trip. Your forum name is fantastic BTW. ;D

That mood thingy is an often mentioned mushroom side effect indeed. I hope you'll have some high flow 100% O2 for aborts during the detox week...?