Bejeeber

I hope the doc can do something for ya, even if that doesn't usually seem to be the case with MDs and these sorta conditions. :-? This Dr. Mercola guy seems to often have insights and potential solutions for such issues: http://articles.mercola.com/sites/articles/archive/2099/12/31/probiotics-for-good-digestive-health.aspx?e_cid=20120106_DNL_artTest_A7 http://probiotics.mercola.com/probiotics.html?e_cid=20111013_DNL_art_1 Disclaimer: occasionally I think he goes a bit cuckoo hysterical on some other topics. :-?

Very sorry to hear of the trials and tribs y'all are having. I think BlueB said it all and said it very well - I second it all. And although this may go without saying (that's never stopped me before!) it sounds to me like this would be a good time to avoid any strong psychedelics like mushrooms or paper, since there's the possibility they could aggravate things. Peace to y'all, -Jeebs

Whoa. Y'all are all McPregBilly USA now! ;D Congrats.Â

UGH3. :'( Very disappointed and sorry to hear that. :'( Well let's assume they're really going to get this one working just right, and you'll be able to part company with them for a good while and enjoy a life without dinner parties on one side of the head. Time for dinner parties on BOTH sides of the head. ;D We have that poll going regarding which side people experience CH on - will we need to have one now on which side their dinner parties are on??Â

Oh come on I really don't know if the stuff in that video is actually humanly possible - maybe it's CG animation trickery or something. You CF'ers are KRAZY. I can see why the barfing buckets are standard CF equipment. Hey I just realized you've gone from a CH'er to a CF'er.  8-)

Yeah let's go with the plan A of it not being bad! 8-) It will be a fine day indeed when you get past all this dam bullsh** balogna baloney.Â

This NY Times article that made it to the NYT headline stories that show up in my Google home page is about how psychedelic drugs can help patients face death, and it also mentions use of psychedelics for treatment of other conditions, including CH: "Grob and his colleagues are part of a resurgence of scientific interest in the healing power of psychedelics. Michael Mithoefer, for instance, has shown that MDMA is an effective treatment for severe P.T.S.D. Halpern has examined case studies of people with cluster headaches who took LSD and reported their symptoms greatly diminished. And psychedelics have been recently examined as treatment for alcoholism and other addictions." It's nice to be seeing more and more of this sorta thing in the mass media. 8-)

I'm not sure of the science on this, and I know some have been concerned that unnecessarily high starting doses of RC are recommended by responders here, but I can tell ya I'm never in any mood for proceeding cautiously with counter attacking the beast, and I go for at least 50 seeds. To me, taking 50 RC seeds is NOTHING compared to something like taking 1.5g of mushrooms which is something I seriously brace myself for. Yep, both tend to be considered to be fine with busting. Please get yerself some high flow 100% O2 from a welding supply place if necessary. It's important that you do this yesterday. ;D 5 days oughta be fine. Whether you should stop, well IMO that question is a tuffy (for the same reasons Pixie laid out). :-?

We've been thinking about you too Ting. I believe you're one of CB's most accomplished *graduates*. Best of luck when you go kick some royal booty at that CrossFit Challenge.  ;D

UGH2. :'( For the record though, I'm with Kymera in the never ceasing to be amazed and entertained dept.Â

Oh Lordy, that is some seriously unhealthy diet action going on over there, but those people have a sense of humor I have to admit. ;D Anyplace where you find a topic titled "I just deep fried a f**king pop tart!".... :D

UGH. Man I sure hope you're in and outa there in as much of a jiffy as possible, and I seriously mean toot sweet! Please, let there be a good alternative to more fecking shunt surgery. :-?

I hope your doc is a one in a million rare bird - my understanding is that doctors don't receive any training in herbal remedies and simply know nothing about them unless they've taken on independent study. :-?

Well that's the fecking spirit! [smiley=thumbup.gif] Don'tcha just LOVE it though when there's that added bonus of head and chest cold and work requiring the A game?  Fingers crossed so vigorously for a stake thru heart of beast that I think one may have just snapped off. Boy the side benefits of prednisone are just snazzEE aren't they? Well at least it still has you at the top of your game in the gallows humor dept. ;D Your continued battering sux at the highest magnitude of blowing, BlueB, no 2 bones about it.   :'( glad you're still giving 'er hell, and lordy there'll have to be a big shindig of a party here when you put that beast DOWN.Â

Yes IMO. I've seen this subject discussed many times amongst long time CH'ers and for those who've looked into it and tried it there's a pretty wide consensus that it's fine. I've used 7 year old imitrex injections before (!!). Not recommending that, but it actually worked. 2-3 years old is nuthin' in my book. Just remember that you'll have to be off the imitrex for a good 5 days before busting will be effective for ya.

The beast loves him some Poptarts (??!!) I guess.Â

Thanks for zee link Renee. I don't mean this as nit picking of the article, the mention of 80% of CH'ers being male just reminded me that this is a widely accepted statistic that I believe is very likely a load of baloney. WE KNOW DOCTORS ROUTINELY REFUSE TO DIAGNOSE FEMALES WITH CH, so why would we buy into this self fulfilling 80% statistic as they do? I fear there are plenty of females out there with CH unable to get a diagnosis, not knowing what they have, because of this.

Wow - the very public efforts and contributions of Bob Wold, Dan/Hipshot et al continue to seriously get the word out!! I think Kaboom's tagline applies here: THE POWER OF A FEW Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has." Margaret Meade

What Jeff said! Sorry to hear of the most unwelcome visit. :'( Thank gawsh you're already guiding him to max relief.

Nice stuff Scott! So you're the right channel electric geetar picker? 8-) I do believe I detected her hollering "un-fecking-believable!" at one point. ;D

Lordy this topic started off with some colorful prose - whether or not sleep deprivation is a factor, it makes for some unique reading .

Just remember it's proper etiquette to send him a formal invitation:

Hey BlueB, Oh jeez that's tremendously fusterclucked what you (and Brew!) are going through right now. :'( Hey ya remember when Lobster posted about his "imitrex math" on CH.com where he figures out how to rig up imitrex injections in a "being bad with math can kill you" sort of way that nonetheless brings his cost down to $.50 per abort ? This is not recommended considering how dangerous an error could be, but for the record, here are a couple of those posts: http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1311513649 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1313671275 And some details I had copied down at the time that I'm not finding online anymore: A bottle of Suminat Nasal is 10x 20mg doses. 200mg in 1ml of fluid total. In reality it has more like 1.3 or 1.4ml, which is free extra.  So first I put all 1ml (or 1.4ml) of Suminat into a 10ml syringe. That is basically my holding tank. When I mix up a batch I use .2ml of Suminat with 3.13ml of saline. That yields 3.33ml of solution, which is equivalent to 6.6 .5ml vials of Imitrex. I mix this up also in a 10ml syringe. That gives you the same ratio as a vial. I load my needles directly from the syringe, typically 4 or 5 at a time. The 10ml syringes I use to hold the solution have the lockable cap. I try to squeeze out all the air to keep oxygen damage to a minimum. So.... out of 1 bottle of Suminat Nasal I get 5-7 batches, which each yield 6.66 vials. That is 33 to 46 vials. My Suminat comes from InhousePharmacy.biz. 5 bottles for $177 shipped. So for $177 I am getting 2000+mg of sumatriptan, the equivalent of 166-233 vials.  For my Saline I use 'Simply Saline', which is a nasal spray that is 100% saline. I use the 1% variety, not the 3%. Kinda surprised more people are not saying 'damn!' about this experiment. I am about 120 doses of Imitrex into this episode. For me that is around 60 vials. I would be out around $5000 if I were doing Imitrex. "Just posting this out there for general edification. Don't try this at home. Being bad with math can kill you. - Lobster"

I don't doubt that one iota just judging by the behind the scenes rescue work I happened to see. Heroic for sure. R.I.P. OUCH.

Dammit Spiny I think some poltergeese did get him.Â