Bejeeber

Just remember it's proper etiquette to send him a formal invitation:

Hey BlueB, Oh jeez that's tremendously fusterclucked what you (and Brew!) are going through right now. :'( Hey ya remember when Lobster posted about his "imitrex math" on CH.com where he figures out how to rig up imitrex injections in a "being bad with math can kill you" sort of way that nonetheless brings his cost down to $.50 per abort ? This is not recommended considering how dangerous an error could be, but for the record, here are a couple of those posts: http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1311513649 http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1313671275 And some details I had copied down at the time that I'm not finding online anymore: A bottle of Suminat Nasal is 10x 20mg doses. 200mg in 1ml of fluid total. In reality it has more like 1.3 or 1.4ml, which is free extra.  So first I put all 1ml (or 1.4ml) of Suminat into a 10ml syringe. That is basically my holding tank. When I mix up a batch I use .2ml of Suminat with 3.13ml of saline. That yields 3.33ml of solution, which is equivalent to 6.6 .5ml vials of Imitrex. I mix this up also in a 10ml syringe. That gives you the same ratio as a vial. I load my needles directly from the syringe, typically 4 or 5 at a time. The 10ml syringes I use to hold the solution have the lockable cap. I try to squeeze out all the air to keep oxygen damage to a minimum. So.... out of 1 bottle of Suminat Nasal I get 5-7 batches, which each yield 6.66 vials. That is 33 to 46 vials. My Suminat comes from InhousePharmacy.biz. 5 bottles for $177 shipped. So for $177 I am getting 2000+mg of sumatriptan, the equivalent of 166-233 vials.  For my Saline I use 'Simply Saline', which is a nasal spray that is 100% saline. I use the 1% variety, not the 3%. Kinda surprised more people are not saying 'damn!' about this experiment. I am about 120 doses of Imitrex into this episode. For me that is around 60 vials. I would be out around $5000 if I were doing Imitrex. "Just posting this out there for general edification. Don't try this at home. Being bad with math can kill you. - Lobster"

I don't doubt that one iota just judging by the behind the scenes rescue work I happened to see. Heroic for sure. R.I.P. OUCH.

Dammit Spiny I think some poltergeese did get him.Â

PF week - wow congrats on that!! [smiley=thumbup.gif] Now slap that paranormal action on us.Â

Well I now see that just like the CH bucking feast there are no absolute rules for what is good/bad for migraines either. Harumph. >

Yep. From my own experience and what I've seen others report on the message boards, for us episodics it is common indeed for episodes to start lasting longer as the years/decades go by. My first episodes were 4 weeks long. In recent years they've become more like 11 weeks. Please don't get too worried yet about the chronic thing. On the bright side, the remissions often start lasting longer too, I hope that becomes the case with you.Â

Dang, Shagster, no rotten tomatoes but that's a rotten surprise that your migraines haven't been busted too. After seeing CH'ers with migraines such as Mystina, Renee and others report their migraines were the first thing to go upon busting, I was starting to think migraines were practically the easiest thing to give the boot to, but in your case NOOOoooOOoo. Of course the 'ol D3 regimen thingy is purported to be a good migraine preventative for many, but if I remember correctly you've already tried it? Wish I knew something you didn't already know - about the only other tidbit I can think of right now is that I know a migraineur who routinely aborts attacks at onset with an energy shot. Um yeah, I doubt that's exactly a new concept to you though. :-?

Hey American Dad isn't a very proper show either! I know because I own DVD compilation sets of it. Roger should certainly be awarded an Emmy. ;D

Not a stupid question. I haven't tried it, but I know some CH'ers report some relief from hot showers. Personally I've had breathing cold air work for me to abort mid level hits on several occasions. This after reading an Alaskan CH'ers report on a CH message board 15 years (!!!) ago where he discovered freezing air as an abortive. I was living in So Cal at the time - no freezing air to be had outdoors, but soon thereafter on a trip to the Seattle area, on a ferry crossing the super cold Puget Sound I had a hit come on, so I went out to the bow with it's inherent wind chill factor and will never forget the sense of amazement as the attack just went away as I breathed the freezing air. Since then I've read about what should've been a no-brainer - you can just go out to the car in any weather, blast the A/C and deep breathe it through the nose with your face right up to the vent. I've successfully deployed this on many occasions during the first 'ramp up' week of an episode, but once the attacks start hitting at a higher level it becomes ineffective for me.

Spiny! You watch Family Guy! That's not a very proper lady like show. ;D

You people ROCK! Looking forward to that update. 8-) You CH'ers who took on air travel and everything while at risk for CH attacks in order to participate in this REALLY took one (or more) for the team in the most extreme manner. Can't possibly thank ya enough for that, but THANK YOU!

Coming up with just the right term does seem to be a bonafide McTuffy indeed. :-? I think a lot of us would agree w/ya Hipshot that neither cluster nor headache are all that fittin'. I was thinking 'suicide headache' would be more accurate, and the suicide part could sorta cancel out the otherwise misleading headache part, but still it ain't ideal IMO. I'm hoping at one point we can find something accurate that would do the job for us, the general public, and the medical establishment, and will be adopted. It wouldn't fit that criteria, but I think my favorite so far is one I saw offered up by a CH'er: Nuclear pinging behind the eye

This looks like a job for Ricardo! 8-) One of the quotes I see on the site: "This substance is very powerful at low doses and I would compare it too LSD or magic mushrooms. Although it have shorter duration then LSD (about 4-6 hours) and not the dark and logos type voyage that mushrooms can have at higher doses. 15-30mg is a good partydose and 50-60+mg for those hallucinations. As always, read up on it, respect the set and setting. Dont eyeball the dose."

Phew. Thanx Ron.

That is un FECKING believable!!!!! [smiley=2vrolijk_08.gif] Words can't express how mind bogglingly fantastic it is have seen your progress from a *slammed* chronic CH'er to an actual PF'er! Whatta turnaround, and now you have your daughter back in your life too! [smiley=thumbup.gif]!

Still no CHf. :'( This has gone beyond a chat attack now Spiny. So far beyond. Can a person be legally forced to come back and post messages on here? I'll check with my lawyer, it's time to explore all options. Or does CHf like candy? Maybe we can lure him back with candy.

Good thing Spiny and I are teaming up here because she brings up super important stuff that I left out - I'm very much in agreement about the importance of high flow 100% O2 (not the still commonly prescribed low flow rebreather O2 which tends to be ineffective). And yep that skullcap herb is known to help ease or prevent anxiety when busting. Hopefully you don't FORGET to take it with a mushroom bust like I did. DOH!Â

People's experience with being under the influence of mushrooms sure seems to vary quite a bit. From my own experience and what I've observed others report here, I believe the younger you are, the more likely you are to enjoy it. Personally, my first bust with mushrooms was actually quite enjoyable - I made sure to get my set and setting as good as I could and was diggin' the tunes I was listening to, enjoying the mild hallucnations, laughing, etc. The second bust was more rushed, without attention to setting, and I got purty good and anxiety stricken for the couple peak hours under the influence, and the eyes closed hallucinations weren't so hot either (swarms of insects, etc.) Then Pretty much the same unpleasantness for the 3rd bust. Funny thing though is that even though the few hours under the influence became a negative experience, there has still been a definite, lasting mood and optimism improvement following the busts, something that is being shown to be a real, positive effect of mushrooms in clinical tests like this one: http://yourlife.usatoday.com/health/story/2011-09-29/Magic-mushroom-drug-may-improve-personality-long-term/50602264/1 I'm an episodic, we tend to have an easier time with busting (or any treatment) than chronics do, and true to form the busting prevented what were some oncoming CH episodes for me. I'm really glad I did it. So I figure you'll want to carefully consider your dose, maybe 1 to 1.5g, weigh it out carefully, and get a good set and setting. Having an understanding 'sitter' that you know well and trust and who isn't cuckoo or anything is ideal. Of course if you're still afraid, you could try RC seeds first and save the mushrooms for your backup plan. I don't think that would be a bad idea at all. The RC is relatively cheap, legal to order online, and IMO there's nuthin' to be afraid of there. Typically you take 'em right before bed and all you feel is a better night's sleep than usual. 8-)

Hi Linda, Well your inheritance is one heckuva bum deal, but glad that you're reading everything and can see that the outlook and treatment options are much better for us now than when your dad started experiencing CH 25 years ago. I certainly feel that with the advent of the internet and busting (not to mention the potential of BOL when it becomes available) it's much more hopeful now than when I first started in with CH 32 years ago. Hmmmm...that probably comes off as "when I was kid I had to walk 10 miles in the snow to school" , but I actually feel lucky to be in this new era of CH treatments. Of course that positive outlook could very well be due to the side effect of having busted with mushrooms! I hope you and your dad can both bust the CH away. 8-)

Well first order o' bizness, let's party DOWN, celebrating the awesome PF!! [smiley=2vrolijk_08.gif] [smiley=vrolijk_26.gif] [smiley=thumbup.gif] 2nd order - hmmmm WTF's goin' on? Rather cuckoo and unexpected ain't it? Curious as to whether your D3 trial included all the other mineral and oil stuff that's considered part of the *D3 regimen*, or were you only gobbling the actual D3 vitamin component? Also may I enquire as to which brand of D3 pills you were gulpin'? I think I may wanna avoid that brand! (currently I'm taking the same Costco brand that Batch uses).

From the translation I'm seeing: "- The operation is now tentatively doing on Horton's patients assume that you put a chip or electrode behind the jaw at the nerve bundle that is related to cluster headaches. When a seizure is coming, so put the patient himself by means of a remote control power to the electrode, and then slows Mon attack, explains Rigmor Highland Jensen. It's a whole new way to treat patients at Horton. And so far, Christina Russell the first woman in the world who have undergone this surgery. - It's really quite simple, and we have no serious side effects of this new treatment, which is part of an international research project. It has been known for 100 years, there is a connection between the nerve bundle in the jaw and cluster headache, but only now have found a way to use the knowledge, explains Rigmor Highland Jensen." This looks like one of the things Dr. Goadsby was talking about at last years OUCH conference (with an even newer version being developed that would require no surgery/implant - just a remote hand held wand sorta contraption). It's the type of thing I was hoping Michael might become a candidate for with Dr. Goadsby's help, since the busting and everything else has gone bust for him. I also recall Dr. Goadsby remarking on how one of these new technologies unexpectedly appears to have preventative benefits too, not just aborts...

The Trunk Monkey pediatric edition was very touching, and it looks like Vytautas Mineral Water will cure CH!!! ;D ;D

8-) [smiley=thumbup.gif]! Fortunately for many of us it actually doesn't have to. Slapbacks are common, but not an assured part of the busting process - here's hoping you are one of slapback-less blessed!!Â

Maybe not - it might be worth looking into Google docs - free spreadsheets, and I believe you can open a Microsoft Office Excel spreadsheet in yer Google docs. 8-)