Bejeeber

Thanks for posting that link, Ron, I finally got off me lazy cyber arse and registered at that site in order to view it. A nice surprise in there is that it actually mentions high flow O2(!)

Hi Whooli, Sorry to hear of the lack of results with RC. Some of us find when we move on to mushrooms the busting results will then materialize. Personally I think your chances of knocking the beast down will be much better with the addition of mushrooms (or paper) to your diet than they will be with removing aspartame/MSG from your diet. That's a homeopathic med - I haven't heard of anyone obtaining relief for their CH with those yet, but at least they are harmless/side effect free. Please make sure you have your high flow 100% O2 rig all tested and ready to go before you begin the taper off of the prednisone! Here's hoping you get some breakthrough relief.

I figure drug sniffing dogs don't ID mushroom powder but what do I know??!! :-/ Hopefully someone else will have a real knowledge of any risks. If it was me I think I'd choose between bringing it or just staying home the first 5 days until the 2nd dose is taken, but I tend to prioritize beast killing over holidays'n such. :-? One other idea would be to see if Rivea Corymbosa seeds could be legally shipped to your Crete destination....

Good stuff there Ricardo. [smiley=thumbup.gif]

Here's the pilot study of six patients treated with 2-bromo-LSD, a nonhallucinogenic analog of LSD, showing a significant reduction in cluster headaches: http://www.abstractserver.com/ihc2011/planner/index.php?go=abstract&action=abstract_iplanner&absno=575&

Will deep sniffing of old books work as a CH abortive? Or if there are no cases of CH among those who are constantly in contact with old musty books, I guess that could be proof of their preventive properties.

This one works really well, is easy to use, and is cheap (from amazon.com): http://www.amazon.com/gp/product/B000KVB64I/ref=cm_cr_rev_prod_title

Hi del, Sadly most every detail of your case looks very typical to me, but fortunately a lot of us here are finding busting to be a more effective preventative than any drug, and you very well may find this to be true too. Sounds like you may have been prescribed the pill form? A headache specialist would be very unlikely to make that prescription error, as the pills are slow and much less effective than the injectible or inhaler. I'll echo Mystina's recommendation of the O2. Legions of CH'ers have found that it can actually be especially effective for aborting attacks if an energy drink with lots of both caffeine and taurine such as Monster or Red Bull is also consumed with it right at onset.

PHEW that is good news indeed about the shunt now working the way it oughta! Sorry to hear about the UTI - those must blow, especially when they trigger a both sides CH attack! > FWIW I know some gals who swear by having this very effective sorta stuff containing mannose on hand to take and kill a UTI at the first signs. Kinda like the CH equivalent of using O2 instead of imitrex:

I think there may be another reason why interest in this "mostly safe cure all in use by hundreds of millions of people", has been slow to develop, which is that (sorry for the let down here folks ) cigarette smoking is extremely carcinogenic......

An important point there about an important combo. Many CH'ers swear that downing an energy drink that contains plenty of caffeine and taurine such as Monster or Red Bull when they get on the O2 will facilitate a quicker abort, and if attacks are frequent, it can make it the abort last significantly longer.

I think my case is somewhat typical - started around age 22, with month long episodes every year. The second time they hit around at age 23 I went to the library (this was around 1981, no internet!), found a headache book and saw that I clearly had CH (in later years I was officially diagnosed). that book mentioned O2 so I found some and back then I could even get some relief with low liter flows of 8-10 LPM. The number of hits per day, intensity of hits, and length of episodes increased over the years but in a nice trade off, so did the length of the remissions. I never had a formally diagnosed concussion. I did have a monkey bars incident as a kid though that involved a violent head slamming, the clang of which must've reverberated for blocks. It didn't knock me unconscious but I was "blinded" for many hours with loss of maybe half of my vision similar to how a migraine can half blind ya.

Well usually going without needles is accomplished by replacing them with high flow 100% O2 (not the outmoded, ineffective, but still widely prescribed low flow rebreather O2) for aborts, as outlined here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1299901790 Also, if results are not obtained with seeds even in higher doses DO NOT BE DISCOURAGED - this happens to some of us sometimes, and in such cases switching to mushrooms often does the trick. 8-)

Dammit that sux. :'(

Well as Spiny said, migraines have been known to respond - and respond very well - to busting, but I know figuring out whether that's something that could help in your mom's case won't be easy, what with this having started with the pituitary gland tumor and all. Thanks for the further details, really hoping there with be a breakthrough for you.

I can say I sure as heck hope that clusterbusting could be of help to your mom (but I don't know at this point whether it's advisable).  Has any headache specialist given her a diagnosis of exactly what she has, or have they not been able to come up with anything definitive? As BB said, reading those files should be a good resource. You may have better results getting to those files with this link here: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?board=files Dan, the guy in that documentary, hangs around on this forum BTW, so you may run into him. Please let clusterbusting or something work for Milly's mom! Â

Yeah plus that smart doggy has some weird tuft of fur or something shooting off the tip of it's left nostril doesn't it?? Looking at that would wig me out if I was on 10 HBWR seeds.Â

NICE. 8-) Glad the HBWR clearly kicked in and I hope you enjoyed the night of complimentary 3D TV programming. ;D

Here's hoping the HBWR dose wasn't too strong and that you get a good bust out of it Jeff! 8-) Although RC seeds are my preference and are more popular amongst CH'ers here due to their convenience and stuff, there certainly have been people reporting good results with HBWR.

Mushrooms have chitlins in them??!! Oh...wait a minute OK I see that is actually chitin. ;D Thanks for the lemon juice tip domino - I'm gong to seriously consider trying that.

Thank gawsh Bob was born, as he continues to make an incalculably HUGE difference in the lives of tons of CH'ers! For he's a jolly good fellow. [smiley=birthdays.gif] [smiley=birthdays.gif]

Hi Bmex, I'm a bit late to the party, sorry (was outa town), but I'd like to hop in here and second BB's suggestion about the neurologist, and this part is critically important: specifically a headache specialist. No garden variety neuros allowed! They generally don't have the training, whereas one thing a headache specialist tends to be really good at is the all important accurate diagnosis. If the headache specialist tells you you have CH, well I'd recommend coming back here and checking out what us CH vets have found to often be more effective and just far superior for prevention than any drugs the MDs dish out, before you get into popping any side effect ridden prescription pills. 8-)

Oh Lordy I think Lee Ann might be saying that even the scibbies have now been removed!Â

I too would try increasing the dose, with a fresh batch of seeds, and at the same time, for a back up, I'd also be looking into whether some mushrooms or paper could be found.

YAY for the working shunt! Cocktail parties on both sides of the head for everyone! ;D BOO for the horrible CH upon waking!! :'( > LOL at:  ;D