alleyoop

Son House http://www.youtube.com/watch?v=JV6IiV-MM9Y http://www.youtube.com/watch?v=8jN5vqEyV7g&feature=related

Great Paycheck story DD!!!

Don't eat 2 hours before or after dosing to get optimal goodness. If it were me, I'd wait till a couple of hours after dinner to dose, since the RCs generally make me sleepy anyway.

The future of America's health records? From America's Digital Goddess: http://www.tvkim.com/watch/60/kim-on-komand-medical-record-privacy-in-the-new-health-plan

ClusterBusters Donations: http://clusterbusters.com/donations.htm

WOW!!!!! Amazing story!!! Thanks Xeno!

I told my neurologist early on, years ago. He seemed genuinely surprised, but said, "If it's working for you, go for it." He later spoke at the Third Annual Clusterbusters Conference in Atlanta a couple of years ago. He presented on a physician's perspective in dealing with CH. I think he also stayed for every other speaker there. To say he was impressed is putting it mildly. But later admitted that his hands were tied as far as recommending the alternatives go. He could lose his license. I told him that I was available at any time, should he want to refer someone. It seems to be working out great. He actually credits me with saving one young man's life. But as I told him, such credit should go Bob Wold. Without him and others, I would still be in daily pain and unable to help anyone. bb

I must have missed it.....anyone tell me where the centerfold is???

One of my favorites, and so true!!! Thanks Tingeling.

[smiley=tekst-toppie.gif]It don't get no better than that!!! [smiley=2vrolijk_08.gif]

I'm pretty sure it was in 2004, but as an old timer, it's hard to remember.Â

Nice Tunas!! 8-)

You may not be as young as you once thought you were Xeno, but knowing you, you are not as old as you may now think you are! 8-)

How profound! Is that a quote Tingeling? Very well said Tingeling. You have such a knack for being able to express your thoughts in words!

Very well said Tingeling!!! My children's and future grand children's futures are what has kept me active with ClusterBusters through the years. In my mind, they are the hope for CH! bb

Bob???

The good news is that all of the alternatives you mentioned have been in reputable studies. The bad news is we still have a long way to go. But thanks to certain people mostly behind the scenes that won't let the dream die, we will get there!!! bb

LMAO!!!!! ;D ;D ;D ;D ;D Tingeling, you're absolutely incorrigible!! ;D ;D

I agree birdman! I personally chose the less invasive route, and have never regretted it.

I agree Jay. Maybe 1961mom will chime in. She told me that this last cycle of hers has been very similar. She said that one half of her face is red like it was sun-burnt. And that the same half of her scalp felt like really tender, like someone had used sandpaper on it! That was the first time I had talked to anyone with those kind of symptoms of CH, but your description sounds eerily similar. bb

As a primary chronic, I couldn't agree any more Tingeling!!!

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Eric, If you plan to get welder's o2, then the last thing you want to tell the welding supply house is that you are using it medically. They won't touch you with a fork lift! Just tell them that you need it for your torch to do some cutting if they ask, which they shouldn't. Since you have already presented a script for o2, you may have to find another welding gas supplier. I paid $200 each for my 2 M tanks from my local Linde (now AirGas) several years ago. I would suggest you rent the tank from your supplier. The rates are usually quite reasonable. You should also inquire about refill prices when you call. Since you have insurance, you may want to consider staying with medical o2 after you resolve your issue with Apria. All the best with it. bb

Great news Tim!!

Jay, if you will notice, I did preface the quote with "not that he is the absolute authority." But to be honest, many consider Prof. Goadsby as just that as far as headache goes. If you want to read more on Peter Goadsby, simply google him. In my mind, it goes to show just how far we have to go. bb