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spiny

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Everything posted by spiny

  1. I read the pink glasses post a while back with interest. I wore them the '70's when I was working under fluorescent lights. They prescribed them for migraines!! They seemed to help with them for some patients. I did not notice any change in my head, but I loved them!! They did improve my moods. My eyes are green.
  2. I wish that I did know something that caused it Bosco! The only thing that might have helped is that I got pregnant. I miscarried at 2+ months and the hormone change could have affected my CH, but I was too upset to notice, you know? They were gone after that event. Then that brings up 'Well, why did they return?' Also, don't know. Can't blame my move north, as I had been living here for 6-8 months when they showed up. But looking back, I can recall two short cycles before the move. I had gotten a concussion a short time before the first cycle. My first 20 years, I was a low level chronic, undiagnosed. I was on Elavil and one other med whose name escapes me at the moment. Inderal I think. So, I had no idea that I had CH or that they came in two varieties. That cycle was short, but hell none the less and the second one sent me diving into 'what is this????' Then I took the the printout of CH to my doctor. Carbemazepine was prescribed at that time. He had been on the Migraine bench till then. I had tried trex once and thrown it out due heartbeat issues bugging me. Additionally both little cycles I had then were thought to be 'other' things and were treated with Pred of all things and that killed them. Funny how that worked out. As it was, they were both about 2 weeks duration. Girl, you are making me think too darn hard for this early!!!
  3. https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This is the first iteration of the D3 Regimen. Batch has made some changes and additions, but this will get you started right away. I have been taking this for many years now and for the most part, after the first year, I only have a few hits per year. I do avoid stuff, like Epinephrine given by doctors and dentists and MSG in food. You have had some great responses and have a lot to chew on now. Oh, in so far as long remissions? Yes. I had one for 10 years. I thought I was cured or outgrew them. Oh, soooo wrong.
  4. That is GREAT news Theresa!! Congratulations!!!!!
  5. Kat, I have lived on Whey protein for months when I was having bad gut issues. No effect on my head either way. Some soy can have a bad effect on you. Like can bring on a gout attack for those prone to that issue. I avoid soy, except the sauce - Mushroom Soy!! - always, due to it messing with our hormones and junk. A little goes a long way with tofu, etc.
  6. Smokey Mountains or Blue Ridge Mountains. This winter is whacky!! I am still sucking up the Asian Stink Bugs that I hate into January.They should have been gone prior to turkey day! Now it is finally going to freeze hard, so hopefully they will be gone for the year!!
  7. The exact reason that I try my very best not to leave my mountain from September thru March!! Going down is fine. Returning home is most certainly NOT. 'Down' for me is over 2000'. I have only flown once and that was in September. Scared the shite out of me, but I only had one hit after I landed!! Air is less dense and lower pressure up here, that is the problem. As it is with weather fronts. We are prepping for 8"s of snow in the next 24 here. Now yesterday, it was 65*. In less than 24 hours, we will hit single digits!!
  8. When I was going through a 'work-up' the first time, it was 1971. I had an EKG done. They were wigged out with the results and I was given an explanation. "Your Delta Waves are messed up. Here, look.' Was it the hit or not? I do not know. When I told them that I had had a concussion that knocked me out for 20 minutes three months prior, I was told 'We will provide whatever you need.' So, yeah, weirded them out. I was told the that time frame for post knockouts was prime for severe headaches. Might be something else today of course. Twas a few lifetimes ago.
  9. Bosco, I removed the post for political content. I did have a complaint. It was warranted.
  10. That is awesome to read Freud. Sounds like the storm is settling and the sunshine can move in! I am very happy for you.
  11. Juss, you are referring to a FB Group that is well known by many here. They are not 'us' and push/prefer Pharma for money reasons. You click, they make money. That group, is not any part of our group here and we were around for about a decade before they formed. And they will throw you out for mentioning MM. Please, take a step back, reread some of our responses to your posts and think about it. We, as a group, have tried to understand you, help you, and support you. For BPD, Dialectical Behavior Therapy has proven highly effective. It was developed for BPD. My child, with this disorder, has had only one meltdown in 8 months since she finished BPD Therapy. Normally, she would have had at minimum 10-12 meltdowns. Her IQ, is above 150. As I suspect yours is. Which makes the disorder even more difficult. I have seen it for decades now. It is horrid. My heart hurts for you. I wish you health and happiness. I wish you peace. I know that peace might be the most difficult thing to attain. For your posts on the board, please be kind and positive, or just scroll on by the post. spiny
  12. It would be fantastic to know the cause. Yes, they have found a genetic link for migraine and supposedly CH too. The search goes on.
  13. They did state beck in the 70's that DNA was deformed by taking it. But, that has not been proven out. Living can and does distort/deform it. The original 'war on drugs' where we were fed a long line of garbage unfortunately. I don't see CH as a histamine issue, but as a hypothalamus issue. I am not saying that histamine is not an issue, but that it originates in the hypothalamus. The theory is that we have deficiency of Serotonin. The holes for the Serotonin molecule are filled by the busting process. Is this fact? Don't know. Is it a theory? Yes. Happy hunting Sue, it is a conundrum.
  14. Jeebs, I have decided to avoid ALL of Amazon's 'favorites'. They are a crock and most of what I have returned to them was from their 'favorites' list. Best toaster!!!! Did not work. At all. That was my last time trusting their favs! Just BS.
  15. That three month adjustment in your work schedule will be a great help!! Mentally being hit all night and going to work is incredibly hard. Nocturnal here too. Really hard to maintain a house, job, etc for months Do they allow O2 at home for you in The Netherlands? Laws are so different in different places! Have you considered Busting? If you want to discuss that, start a thread on a closed board - Theory & Implementation or Share Your Busting Stories. You live in a darn good place for it. Also, what meds do you take for your CH? Often we get on so many and are hesitant to drop one when we are still in non-stop 'hitsville', even though it is obvious that they are not working.
  16. Ok. They used nmol/l instead of ng/ml. If you do the calculation 2.5nmol/l = 1ng/ml then you get a value of 164. Your target high number, for the medical field is 100ng/ml. So, yes, you are high, but not nearly as high as you think. Different countries use different units of measure. Go figure. I suspect that since you PTH and Calcium are good, Batch will likely say that you are actually fine. But to keep your doctor happy, the levels need to drop. He appears to have a good plan that he is asking you to follow. Dropping back to 10k per day would be wise for now. At then end of the month, see where the D stands. Or you could drop it all together, but I would want to keep taking it at a lower level if possible. Not like you are going to get much sunlight for the next few months. I agree that with those values, it makes you wonder why your CH is still bad??????? Batch could have some additional ideas to help get the CH under control. This is essentaily a loading dose and usually done for a short time only, not for daily maintenance. It might take a little bit of time due to the holidays, but Batch will provide input I am sure.
  17. Just a small thing to add here. Most of our Serotonin is in our gut, not our head. And we do target Serotonin. So that seems to say that there is some connection between the head and gut. As do all the foods many exclude when in cycle. It appears that what goes on in our gut affects our head to some extent. Or vice versa. It is a very interesting topic.
  18. Yup, From the bacon that is added to mine. Agreed!! Easy too. For the Ibuprofen, over the counter ones are 200mg. A 'therapeudic' dose is 800mg. So, double the OTC dose, just like anything that has gone from prescription to OTC. They whack it in half so people won't 'over do' it. And I also have used some of the suggestions Juss pointed out in the herbal treatment suggestions he mentioned. Some of that stuff has been in continuous use for eons it seems. After all original aspirin came from one! I hope that you feel a lot better soon!!! Did you get exposed to the flu or something? Hugs!!!
  19. So happy for your positive results Vipul! So very nice not to know how bad it would be, no?
  20. This was brought to me by my youngest. The video is cool and I have enjoyed this band ever since. Yes, an extinct style today I suppose, but they were so amazing in their ability to do some many different sounds from one group. Very talented group in my book
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