spiny

Potter and Jeebs, Thanks!!! Did not figure it would be worth a lot since I have not heard of it before. Dr. is just trying since Trex is out. Perhaps I should just make a cutout between the seats of my car into the trunk to stick the valve and hose thru so Mr. O2 can go everywhere with me! The bastard dragon showed up early yesterday! It is NOT the Equinox yet damnit!!!!! Anyway, it was perfect timing since my annual appt. was yesterday too. On a better note, he introduced me to V8 Fusion Energy!! Get your veggies/fruit and caffeine and B vits all in one. 8-) Should be a relief from coffee for me. And I had the pleasure of telling him about Autonomic Tech. new device!!! Sent him the info today, so trying to educate some more. He was actually bemoaning the fact that there was nothing new or effective for CH. Off to throw out some trash. spiny

Hi All! Has anyone been prescribed this drug for CH? The nasal spray was prescribed. It is for use in an emergency for me, which would be when my O2 is not available. I have never taken or heard of it. So, not too sure I want to try it. Mountain of side effects too. thanks!! spiny

siouz, The anesthesia I had before surgery last summer was a blessing!!! I got hit while waiting because they denied me coffee prior to surgery. They brought two caffeine pills which were too late to help. Then, they gave me the pre-op. It killed the hit in just a few minutes!!! Like about two!!!! The list of everything in the shot is quite long, so I don't know which part helped, but I sure was glad it worked. All the best! spiny

Wow. That is a terrific paper. Thank you for all your work and effort!!! As THMH said, : You rock!!!

I read up on some of his bio. when I saw this. He was a real character!!! He will be missed.

Complete.

Ok. Time for an update. Started mj on Apr 3rd. It went like this: Apr 3: 3 K7 wake up hits                 Apr 4: 2 K7 wake up hits                 Apr 5: 5 K7 wake up hits                 Apr 6: Stopped mj. Tried a shot for an afternoon hit and it just went on forever, low level.                         2 K7 wake up hits                 Apr 7: PF night!!!!! So, it did not work for me. But, I would be happy to send someone my spare pack of mj for them to try. I have now had two PF nights in the last month! 8-)

THMH: You are too kind. Ton: I quit playing with bread boards 20 years ago! I studied robotics and automation in the 80's. I might still be able to count in binary though. 8-)

You guys are just too freaking smart! 8-)

razor, I just started taking it yesterday, so don't worry about results yet for me. Last night I had two hits. Both aborted with O2 in RECORD time! No wake up at 5am hit though! I slept till 6:30!!!! Wheeeee. No shadows yet today, but it is early for them to start. It does make you feel odd for about an hour after taking the am shot. Pm did not give that feeling. I am also being conservative since I have many plant allergies and mj gave me hives yesterday morning. They only lasted an hour or two thankfully. None last night though. Since it is made from plants I could be allergic to something in it. We will see. But that is why I am sticking to two shots per day for now. I will stick it out for at least a week to give it time. Well, that is the plan at this point. Cheers! spiny

DrTy2, Perhaps it is just my point of view, but I do not find Cher's to be weak people!!!!!! Cher's are some of the strongest people in the world. If we were ''weak' in any sense of the word, there would be a lot fewer of us. Desperate would be a better word I think. all the best, spiny

Ok. I started the mamajuana yesterday. Took a shot for an early morning hit, but didn't really trust it, so I drank coffee too. Then, I took a jigger last night. Since last summers surgery, I have not had two pf weeks consecutively yet. That is not a good sign because normally my cycle starts later and ends before now. No such luck this year. I had one pf day and night last week. Otherwise, I am getting 2-6 hits per day. Night before last was 5, starting at 11pm and ending at 10am. Last night, I just had two. Well, if you don't count the wake-up hit. So, better than some nights. I will keep you posted on how this goes from here forward. If I make a week pf it will be party time! Well, without alcohol. I mixed my batch using the recipe packed with the herbs. They are making a liqueur and so add a lot of sweet. I used red wine, molasses, honey, and vodka. Nasty sweet! bleech. This time I just used one oz honey and vodka so hopefully that tastes better. spiny

Hi Moxie, It does not matter if I killed the hit in 10 minutes with O2, I also experience exhaustion. I am not cranky, but just don't want to do anything! Drained is the proper word. So, even if I endure a full 2hr plus hit or kill it quick with O2, I am not up for much more for several hours. I may scan the net (no posting) or watch mindless TV, but that is about it. Sleep is a no no since it will trigger another hit. As for hypoglycemia: I have had it since childhood. Two of my kids have it as well. My mother had it. It will: cause shakes, make me cold, give me a headache, confuse my brain (as in I can't make a logical decision about anything at that moment) and make me cranky as hell. Yes, you can prevent the drop with cheese and nuts. Protein. But, once tanked, I need sugar or easily available carbs. I always found a beer to be the quickest recovery agent. Much faster than OJ. Candy will also give the needed boost. But, any of these are followed within 20 minutes by a meal. Otherwise, I just tank again when the sugar is gone. I had the old several hour blood test as a 20 year old. They would give you a horrible sugary drink and then start drawing blood at regular intervals for the next several hours. It was horrible. But, it was positive too. That is when I learned to eat peanut butter or cheese or similar between meals to prevent it. When my kids get cranky, I always look at their hands. If they are shaky, I shove food in their hands. They have finally learned to recognize their symptoms and fix the issue. Sorry to be late to this thread, but life is a bitch at the moment. No need to worry about your post. We all go thru hell don't we? So we do understand the hell others are going through. Hugs! spiny

Interesting. I have had Thyroid checks several times over the last few years. Also, when they did the MRI it was to see if anything was impinging on the nerve. Came back negative. But, this does point out the necessity of the MRI!!!!!

Ricardo, I use the Valkee. Ting recommended it a few months ago. It has ear buds so you don't have to look to the side of the light. With Macular Degeneration, I can't use the full spectrum SAD lights. It has helped with the run down all over feeling. But, I am going to up the time a bit to see if that helps more. Now I know not to go to hours!!!!! ;D

Equinox is my trigger. With Potter on this, I don't change when I get up or anything!!!!! Of course, I never had a Ch wake me from a nap till this year, so, who knows anymore. >

Starting my batch tomorrow. So, results start in a week!! My reading says it is an alcohol tincture. I hate rum, so will be using vodka.

Hey razor, Where on the net are you finding the info? I received my herbs Friday and plan to start a batch today. Just need to know/decide what kind of alcohol to use. White wine is definitely out!!! Pain from that stuff, CH or not! The only alcohol I drink is potato vodka. Can't wait to see if this works for me!!!! thanks, spiny

That is terribly sad to read. It points out that there can be a terrible outcome to this disease. Finding this board and the wonderful people here has been a sanity saver for me. It has let me know that I am not a wimp nor am I alone. I think that you are right Psiloscribe when you say the patient needs to reach out and make contact personally if at all possible. Thank you.

Thanks DD! Just ordered two. One to use and one to save. It will be awesome if this does the trick!!!!!!! Even if it works part time! [smiley=tekst-toppie.gif] I used to use a Chinese herb ball that you mixed with booze for medical stuff. That stuff was wonderful. But, no longer available. I believe in herbs!!! : spiny

I took two double shot Starbucks and my O2 with me. He doesn't use nitrous or have O2. I sucked down the coffee when he went into the next room. I will definitely not have any dental work done from Aug till April from now on. > It has been a slice of hell since he did the work. Dentists should all have O2 for an allergic reaction!!!!!

razor, Are you using the Don Ramon brand? The auction you listed is now gone and Ramon is the one I found on ebay thanks, spiny

alley, Thank you so very much. I will research epi directly for anything else I can find. If I never have to see a Dr. or dentist again I will be happy. spiny

Does anyone have a document that I can show to my dentist regarding this stuff and CH? He thinks that I am nuts! He slipped some in last visit and started a viscous cycle! I still have to return for the crown and want a paper to hand him. Of course, he has no idea what Ch is, so I need a short form of that description too. thanks! spiny

markd, Do you have O2? You don't mention it. O2 and an energy drink are the best abortives that I am aware of. spiny