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Posts
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Joined
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Last visited
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Days Won
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Everything posted by xBoss
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Glad to be here! Almost six years for me.
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Since 98 here. One thing clusters are well known for is changing and stuff that used to work does not work anymore.
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Awesome, mine are right on schedule. Last year was oct- mid december. Shadows have been happening lately. Ah well, time to start busting.
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Any help and ideas for treatment ? Hemicrania continua + hEDS
xBoss replied to Tony Only's topic in General Board
It's def suspect as being spammy for a first post at the very least. -
Never had that happen. My daughter has schizophrenia though and describes that kind of stuff happening to her.
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Yup. It's basically 90 days off the beer when the CH drops. A good break!
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I know mine is coming very soon. The beers will let me know! Hoping to skip it though. Did A few L trips this year to push it back...
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I guess it is to help with bleeding. My dentist refused to use zero epi but he did cut it way down. It sure does trigger them!
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Any headache condition is terrible. I hope you can get to the bottom of it. You had me thinking of my first experiences with cluster headache back in 1998ish. I had no idea what was going on and I went through it with no doctors thinking I was finally feeling a headache like people always complain about since I never had any type of headaches before that. Either way it will be OK though, just something to deal with. You got this.
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Smelling burning cooking oil can be a major trigger.
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Yeah, those are a price gouge. Crazy how it could work forever but they set it to self destruct. I don't think I have seen too many positive experiences here with gamma core. Hopefully more people chime in.
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I go off into the higher realms of consciousness during cycles. It's pretty easy to do when you are exhausted from no sleep and been tripping on stuff for weeks. During the worst attack in my life I heard dancing queen playing in my head note for note like it was really playing. That one was weird!
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I get those. They come and go. Doing decent right now but wow, they suck!
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Stress has put me into cycle a couple few times for sure. Sorry for your loss.
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I drank a 6'r tonight and gave the beast the middle finger. Smoke em if you got em warriors. I don't let the beast dictate my shiz. Hi all!
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Developed cluster headaches after giving up caffeine?
xBoss replied to manu08's topic in General Board
When my CH started it was only 20 minute attacks and just a couple few hits per week. It has progressed to more of a classic full blown CH since. With grandma being diagnosed it def smells like CH or combo migraine ch. I hope you can get it figured out! Great forum you are on. GL! -
They can be pretty random. It seems like the remission periods drop more often in the first 10-15 years of having CH.
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It's amazing how predictable CH can be. I was surprised though with nitrates being the same trigger. Never really was until the last time.
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I like beers and do fine outside of a cycle. When the cycle is near I will get kip 5 pain about an hour after drinking some for about a week then it's full blown attacks if I drink a beer in cycle.
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Happy new year my fellow warriors!
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Lorn is still one of my fav's https://www.youtube.com/@Lornnn
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Hey Hey! Welcome to the forum. It's a battle brother, I have 25 years under my belt and I still start to lose my mind after about week 5 or so. The no sleep part is what does it for me. You seem to be very informed about all things CH! I wish you well fellow warrior.