Psiloscribe Posted May 2, 2012 Share Posted May 2, 2012 A Cluster Headache Medication Survey ClusterBusters, a non-profit cluster headaches advocacy and education group, is now offering cluster headache patients the opportunity to participate in an on-line survey regarding the treatment effectiveness of the various medications and strategies used to treat cluster headaches. You do not need to have tried or used any specific treatment to participate and the survey is applicable to both episodic and chronic persons. This survey will include commonly prescribed traditional medicines (including abortive and preventative medications), various surgical procedures non-traditional medications to alleviate cluster headache. The link to the survey is below. Cluster headache is a rare disorder and poorly understood and there are very few studies/surveys regarding the effectiveness of the medications or treatments. The data from this survey will be summarized by a neurologist specializing in cluster headaches, will be submitted to a medical journal and will be used for presentations at medical conferences to educate other medical professionals. If you are a cluster headache patient, please complete the survey as your participation could potentially assist other cluster headache patients and medical professionals in determining the most effective treatment for cluster headache patients. Please note, it will take 25 to 40 minutes to complete this survey, as it is extensive. Once started you will be unable to save and return later, so please allow sufficient time to complete the survey in one sitting. Survey Link: http://survey.constantcontact.com/survey/a07e5lc5y7agyhhgd2b/start All survey answers and information will be held in strict confidence. For further information please contact us: Email: info@clusterbusters.com Web Site: clusterbusters.com Message Board: http://clusterbusters.clusterheadaches.com/ Quote Link to comment Share on other sites More sharing options...
1961mom Posted May 2, 2012 Share Posted May 2, 2012 DONE! This was by far the least confusing CH survey I've taken. It's such a difficult task to include in question form all the possible permutations CH patients may have experienced. Quote Link to comment Share on other sites More sharing options...
Cassidy Posted May 2, 2012 Share Posted May 2, 2012 Me too----done. Very easy. Leslie Quote Link to comment Share on other sites More sharing options...
alleyoop Posted May 2, 2012 Share Posted May 2, 2012 Got R Dun! 8-) Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted May 3, 2012 Share Posted May 3, 2012 Tag... Quote Link to comment Share on other sites More sharing options...
kaboom Posted May 4, 2012 Share Posted May 4, 2012 This is our chance to make a difference in the medical community! Quote Link to comment Share on other sites More sharing options...
shaggyparasol Posted May 4, 2012 Share Posted May 4, 2012 check and mate people! the shaggy has completed the survey Quote Link to comment Share on other sites More sharing options...
Psiloscribe Posted May 6, 2012 Author Share Posted May 6, 2012 Thank you everyone for an outstanding response so far. The great numbers of responders has our medical professionals excited. I know there are a lot of surveys out there. Thank you all again for taking the time to complete the survey. As to what was and what wasn't included; that was all decided upon with the advice of those medical professionals that are involved. One thing (among many) we are looking to see is how the "real life" numbers compare with "published" and advertised efficacy rates. Especially when it comes to clusters, much of the published rates and even the clinical trial data was taken from small sample sizes. This is the first in what will be a series of surveys that we hope will produce some very specific improvements in cluster headache treatment. Bob Quote Link to comment Share on other sites More sharing options...
Stump BeefKnob Posted May 6, 2012 Share Posted May 6, 2012 Done! Quote Link to comment Share on other sites More sharing options...
Brew Posted May 6, 2012 Share Posted May 6, 2012 Dun. Quote Link to comment Share on other sites More sharing options...
Coop Posted May 7, 2012 Share Posted May 7, 2012 Done! Quote Link to comment Share on other sites More sharing options...
Whooligun Posted May 7, 2012 Share Posted May 7, 2012 Finito Benito Quote Link to comment Share on other sites More sharing options...
Hipshot Posted May 8, 2012 Share Posted May 8, 2012 I took the test, and passed with flying colors Quote Link to comment Share on other sites More sharing options...
domino Posted May 8, 2012 Share Posted May 8, 2012 I received mine via email and just finished it. I am always glad two help anyway i can with these damned things. Quote Link to comment Share on other sites More sharing options...
FunGuy Posted May 22, 2012 Share Posted May 22, 2012 The response to the ClusterBuster online medication survey has been remarkable. To those that have already completed the survey, a huge thank you. For those that have not yet completed the survey, we ask that you please make the time to do so. The information gathered from the survey will be complied into a journal article. Your input is needed to make this a comprehensive and complete review of the commonly prescribed traditional medicines (including abortive and preventative medications), various surgical procedures non-traditional medications to alleviate cluster headache. (*note - the survey will take 25 - 40 minutes to complete and must be completed in one sitting) We can make a difference.  Help to make that possible. Survey link is: http://survey.constantcontact.com/survey/a07e5lc5y7agyhhgd2b/start Thank you ClusterBusters Survey Team Quote Link to comment Share on other sites More sharing options...
FunGuy Posted July 4, 2012 Share Posted July 4, 2012 bump last chance, closing the survey soon. FG Quote Link to comment Share on other sites More sharing options...
weatherman Posted July 4, 2012 Share Posted July 4, 2012 Done, wish us all luck!!! weatherman Quote Link to comment Share on other sites More sharing options...
Ripper Posted July 8, 2012 Share Posted July 8, 2012 Hope I got it done in time. 7/9/12 Dave Quote Link to comment Share on other sites More sharing options...
FunGuy Posted July 11, 2012 Share Posted July 11, 2012 The survey has now been closed and we are beginning to sift through the data and compiling the results. There is a ton of info there, it's going to be slow to process. Sorry. To everyone that took the survey, a huge thank you. :-) FG Quote Link to comment Share on other sites More sharing options...
Hipshot Posted July 15, 2012 Share Posted July 15, 2012 Backtoya Bob. I hope to see you in Vegas and again thank you in person for being the man I aspire to be. Reminds me of a saying I say in my vets office the other day. It said: I hope I'm as good as my dog thinks I am. You, bob, are the best among us, and there are a lot of fantastic people here. You should take a moment to pat yourself on the back. There should be a special place in heaven for folks like you Dan Quote Link to comment Share on other sites More sharing options...
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