Davemk1 Posted January 18, 2022 Share Posted January 18, 2022 Hi anyone dealt with the problem of flying and the low flow of portable oxygen concentrators ?? Quote Link to comment Share on other sites More sharing options...
Shaun brearley Posted January 18, 2022 Share Posted January 18, 2022 I've never taken my portable o2 on a flight , but when I do fly I always take a samitriptan injection with me in my hand luggage, plus a hand full in my suitcase 3 Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted January 19, 2022 Share Posted January 19, 2022 Other common and recently advised flying tactics have included energy shot(s) in pocket, SPUT (Small Piece Under Tongue - of psilocybe mushroom), triptan nasal spray in pocket, and triptan pill one hour prior to take off. @xBoss also just advised hot soaks for aborts, but OK that could be challenging on a plane - unless you're in First Class. 1 2 Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted January 19, 2022 Share Posted January 19, 2022 16 hours ago, Davemk1 said: Hi anyone dealt with the problem of flying and the low flow of portable oxygen concentrators ?? I have this fear and haven't flown since CH. I received some pretty cool info when I posted about it (flying). Here is a quick overview of the info I received: 1. Make sure you have abortive meds in your carry on (imatrex injections, Sumatriptan tablets, nasal spray abortive in hand if you don't inject. 2. Have caffeine tablets at the ready and or 5 hour energy, red bull or a monster if the hostist can't serve black strong coffee (most air line coffee is weak) 3. Try and fly when out of cycle if possible 4. Make arrangements for O2 at the destination you will be going to. 5. Take an abortive prior to boarding 6. Cross your heart and don't hope to die 7. Make sure to tell all of us cluster heads how you fare. Ok ok I hope none but the best for you even if I sound like a joker. I have to go to a wedding here soon and um well I'm terrified as it's when I will be in cycle. I'm not going to fly but the terrain (elevation) terrifies me. Here's to your success!! 4 Quote Link to comment Share on other sites More sharing options...
jon019 Posted January 19, 2022 Share Posted January 19, 2022 ...really good stuff! my favorites being: 47 minutes ago, BoscoPiko said: 6. Cross your heart and don't hope to die 7. Make sure to tell all of us cluster heads how you fare. 3 Quote Link to comment Share on other sites More sharing options...
mit12 Posted January 20, 2022 Share Posted January 20, 2022 Flying is bad but I find that flights with layovers are the worst, I almost always ends up getting hits. For me its zomig. I try not to use triptans except for vacations this is the only way I have found to keep from ruining trips and vacations for my wife. I hate this condition we have been lucky enough to be born with! Can’t win the lottery but sure as hell can win a condition that only effects .01% of the population! Quote Link to comment Share on other sites More sharing options...
Sue mcdonald Posted January 21, 2022 Share Posted January 21, 2022 On 1/18/2022 at 6:03 PM, Bejeeber said: @xBoss also just advised hot soaks for aborts, but OK that could be challenging on a plane Wondering... could the hit soaks, showers, hot min pool, etc... thinking back to the pick up truck covered in pollen - cld it be that it helps because u/we r dealing w an allergen?? Hot water wld take it out of the air. My (own) post abt steamin up the hotel rooms? Struck me as odd. Quote Link to comment Share on other sites More sharing options...
Davemk1 Posted January 24, 2022 Author Share Posted January 24, 2022 Thanks all for the great info,,I have been saving for a long time to take the children (of which i may be the biggest).Two weeks in april staying on disney world property if i was ever hoping to catch a break with the beast its for then,fingers crossed. 4 Quote Link to comment Share on other sites More sharing options...
Sue mcdonald Posted January 25, 2022 Share Posted January 25, 2022 4 hours ago, Davemk1 said: ....Two weeks in april staying on disney world property ... Sounds like expensive but great fun! Good Luck. Quote Link to comment Share on other sites More sharing options...
Inno Posted September 24 Share Posted September 24 On 1/19/2022 at 5:03 AM, BoscoPiko said: I'm not going to fly but the terrain (elevation) terrifies me. I'm off to Tenerife tomorrownight and I'm pretty scared for the flight. When I drove to the south of France this summer I definitely felt the elevation while driving through the pre-Alpes. What was your experience during that trip? I'm going to take Imitrex and caffeïne-gum on board. I hope it'll keep me on my feet for the entire flight in case the bunny shows up. Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted September 24 Share Posted September 24 My experience worked out that time without my head acting up. I made a point to take some treatments prior which I believe made the difference. Quote Link to comment Share on other sites More sharing options...
Inno Posted September 25 Share Posted September 25 We’re taking off… OMG I’m terrified, see you guys in a couple of hours Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 25 Share Posted September 25 Looking forward to a report of a smoooooth flight, no CH issues! Flight fingers crossed. 2 Quote Link to comment Share on other sites More sharing options...
Inno Posted September 26 Share Posted September 26 13 hours ago, Bejeeber said: no CH issues! Exactly All good, I got really scared while taxiing but it all turned out to be fine IMG_2659.mov 2 Quote Link to comment Share on other sites More sharing options...
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