Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 12/11/2019 in all areas

  1. As preparation for the big reveal, folks might want to put the word parasite into the search bar at the top of the page. The post-reveal follow-up assignment will be "Compare and contrast …."
    3 points
  2. so we need a 100 people to blow there noses? ugh. I was hoping the cure was chicken pot pie. my three favorite things.
    3 points
  3. Four hours of typing to say nothing. The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”. Being withholding and secretive is the stuff of attention seeking and manipulators. Folks with quality information are generous and forethcoming. Batch set the standard for this and many others have done so to a lesser degree . I am happy you have resolved you CH issue but it seems you have other things to work on.
    3 points
  4. The MRI and seeing a headache clinic are a good start. You will want to read up on this site for a few days and come up with your own plan. I would recommend getting oxygen as your abortive for your attacks. You can find a tun of information on this topic by searching it in the upper corner. You will need a script from the doc to get medical but you can also get a welding setup. You will need a higher flow rate then normal so you may need to buy your own regulator. You can down any type energy drink with caffeine and taurine in it like a 5hr drink or redbull. You will want to reach out to Batch about the D3 but it is pretty straight forward in what vitamins you need to take and a blood test is recommended so you have an idea on your starting levels. You can read up on all the different busting options people have used in the past. Read and ask all the questions you have, you are in a good place for help
    2 points
  5. 4 hours for this? man.. and I was hoping your book was going to be on Amazon for Christmas this year.
    2 points
  6. Forward this post to 10 of your friends or the "cure" will disappear forever.
    2 points
  7. Sounds like one of those "I'll only tell ya if you beg, plead and recognize me." type posts. I've seen many through the years. I know that if one of the many people I know with CH were to somehow stumble on to a real cure for this crap we have, they would be shouting it from the treetops. No one that lives with this shit would withhold information that could bring relief to others that suffer. The desire for personal gain causing a closed mind??? Here???? Seriously????? The fact the you even suggest such a thing shows how off target your sales pitch is. This place is a direct result of Bob's quest to help others. Because of that, many others here have spent far more than they'd care to admit trying to educate people on options, advocate for our collective and lending a helping hand when needed. To suggest a profit motive here of all places is beyond asinine....at best. I'd better stop here before I earn a posting vacation for my non-PC, obscenity laced tirade kicks in to high gear.
    2 points
  8. D'K, What you are saying is not sensible. There is no one person here who has some kind of huge following that could produce the results you say you want. You post what you have learned, one person at a time tries it (or doesn't), they report on the results, and that either inspires others or doesn't. Why would you not want to help just one person, if that's all you reached? And very few people here have the clout with a doctor to get an off-brand prescription. This site was created because one person tried an alternative treatment that probably 95% of people with CH ridiculed and/or attacked. He put it out there, and some other people tried it, and it worked for them as it had for him. They really did have to "BELIEVE," to use your word, because it involved obtaining and consuming illegal, hallucinogenic substances. Whatever you have to offer has much better odds of being tried and adopted than that did, if it works. So, I say with no real disrespect, you either have to put up or shut up. That's how it works here. I doubt that anyone is going to beg you.
    2 points
  9. I can't say whether you have CH or not (as you note, you have some typical characteristics such as the regularity of the attacks and their location and nature, but not all of the physical symptoms), but here are a few answers to your questions. Amitryptiline (Elavil) is sometimes used to treat CH. In a 2015 study, the results were like yours -- pain reduction but not complete elimination. It might have been prescribed to you also because of the stress in your life that you mention. It's not a first-line treatment for CH, but it's not completely unusual. As you say, 15mg is a pretty low dose. You can start the D3 regimen without the blood test. Measuring D levels in the blood is part of a standard bloodwork panel, so it might show up in the tests your doctor ordered. I'm going to bet that Batch will be here soon enough to show you the simplified version of the regimen, or someone else will (or I will when I have more time). The most important abortive treatment for CH is oxygen. Between the D3 regimen and O2 -- and busting, if you choose to try that -- it's very likely that you can avoid being on any substantial medications for the rest of your life, as you fear. You should also have something, most typically injectable sumatriptan, for breakout pain if you experience that. Verapamil might help you as a preventive (D3 is better for most people, and healthier), but it takes a while (a week to 10 days, maybe) to take effect, and usually the initial dosages aren't high enough to be fully effective. I'd urge you to look over this file and pursue the links to get a pretty full sense of the treatment landscape, including the basics of busting: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
    1 point
  10. In a different post I've seen you cut up a 10mg Rizatriptan. I have looked at the side effects from that, and as for me it sure looks like a drug most people would like to stay away from. strictly for Migraines. as CHF has mentioned. buck says we scared you away for good. hope I'm wrong and you can give someone something worth while to ponder. will see. if it worked for you chances are it may work for others. Merry Christmas.
    1 point
  11. ...hi d-rock...glad ya found what works...this is such an odd affliction that while many have found your same success with vigorous exercise (at least aborting a hit) for some the same is a trigger...go figure! have you tried oxygen?... it's way more convenient... best jonathan
    1 point
  12. Congratulations on your long "REMISSION"!! But, I have to agree with Chf and BOF....there is no "CURE" for ch to date and your post is highly suspect by saying you're cured and then not elaborating.....but then again, it would be hard for you to elaborate since a "cure" doesn't exist!! DD
    1 point
×
×
  • Create New...