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The Beast is back. Have had 5 clusters in a week now, and they have been proper strong ones too, not my normal KIP 2-3. These have been in the 5-6 range, and lasting much longer than normal, e.g. 15 minutes instead of 1-5 minutes, but still! Was woken up in the middle of the night this past week, and that's extremely rare for me, even when in the full depths of Hell. So, just tracking things for now. Trying to get clear enough away from triptans so I can power up a fresh busting routine. Think I have enough meds on hand for 6-7 busts, at least. Time to dig my farming gloves out. Stay safe everyone. Mox

If you are in Facebook there's also "Australia New Zealand Cluster Headache Support" group which has to be ok since I am still a member (there are the non-ok groups too) Feels odd writing this but I currently have this great gratitude for having cluster headache and thankful of everything it has brought me in life.

I hope you get some good help with getting O2. I would also check in at the Facebook group "Cluster Headache (trigeminal autonomic cephalagia)". A pretty strong international representation there. There's a link to D3 regimen basics in this post, which might also have some other ideas for you: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

Hey @its okay welcome to the forum I was on relpax for my “‘migraines” for a while. I put migraines in quotes because I don’t gave migraines I have CH. And I’ve been to 6 neurologists so you can imagine my frustration. I even had a neurologist tell me to get a massage! For a $200 co pay I was told to get a massage. Gotta love it. The only thing that has helped me manage these headaches is this forum. I’d be lost without it. No matter how much research and googling my loved ones do, they will never fully understand. This is a safe space, post frequently and any time you have a question. I am still considered a newbie with Ch but I will help if I can. I would immediately start on the d3 regimen if I were you. It’s cheap (er) than most meds. And you can find most of the supplements in the grocery store. I would check amazon for the bio tech water soluble D3-50. There is a document on the forum somewhere with all the details. Possibly ask ur doctor about starting verapamil. Some people have success with that. Also, it is important with the vitamin regimen to drink tons of water! Keep us posted kat

I have the same, drooping eye outside of an attack, diminished sensory around the affected eye/forehead/temple, constricted pupil, puffiness and darker circling under/around that eye. All things my neuro, who specialized in clusters, said are normal for chronic and bouts of episodic and most should fade if/when the clusters cut back or are gone for a while. I do not have constant pain, just occasional shadows when not having an attack.

Myhed', you might want to look into the condition called Horner's syndrome, I think. People with CH can have it outside of their cycles. The main characteristics, as listed Mayo Clinic are droopy eyelid (ptosis), a persistently small pupil (miosis), slight elevation of the lower lid (sometimes called upside-down ptosis), sunken appearance to the eye, and little or no sweating (anhidrosis) either on the entire side of the face or an isolated patch of skin on the affected side. As I understand it, though, Horner's is rarely painful unless there's a more serious underlying condition. I think your symptoms probably are not a sign that your CH is returning (maybe others will correct me about that), but I think you should have them checked out by a doctor to rule out other causes. An opthalmologist, I would imagine.