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I just posted myself that I'm so done. I'm 6 plus years and chronic only max 2 week break... ever. I come here...I realize I'm not alone!!! Although most people with us don't know just how bad it is....I remember what I am and how strong I am and hang on to that. I hope you feel better soon!!!

It is hard on your body. It might cause bigger issues down the line. Many reasons to limit the drug. Triptans can do really bad things to your heart. So, too many, is too many. There are better ways to treat your head actually. Please type 'D3 ' into the search bar at the top of the page. A really great way to get relief without sacrificing your body. It is just vitamins and very safe. Good for you stuff. Triptans are not good for you. That is why they are limited. Read the 'New Users' Banner at the top of the page for other info. Welcome and we are here to help!! <3 Read, read, read and ask questions. We re here to help you navigate this disease.

I understand. No apologies needed! It's important to vent in a safe and supportive place. The beast lives for those ass-kicking days - keep on fighting and I hope you kick it right back!

Do not apologize. WE all need to rant on occasion! I cannot take trex in any form. But, you will find a paper on the site that tells you how to split those injections. You can get 2 to 3 doses out of one auto-dose. Most only need 2-3mg, not the full 6mg in the injector. So, that can be a huge help when you do need them. Many 'stockpile theirs when out of cycle to have enough for the next cycle. Building your arsenal is a good thing! You appear to be past the point of needing your O2, but we have a paper and many who will help you to optimize it for best relief. Neuros seem to just hand it to you with no instructions on how to use it because they don't know. With proper technique, you will be able to kill most hits in 5 to 10 minutes and then do about 5 minutes of 'post hit' breathing to assure that hit stays g.o.n.e.! Owning the Cluster-mask will improve your aborts on O2 a lot too!!! And we do understand the terror it brings. Better than our doctors do for certain. We are always here for rants and all. When you get dealt a $hit hand, it is nice to have others in the same boat to talk to when wanted or needed. They are the ones who understand what you mean and why you are worried. ATB!!!

Wow...yes! ...for many years now... from many sources I've seen that meditation (and other "mind tools") is useless for ch. sometimes the dismissal is aggressive. I find this to be short of sight and narrow of mind. meditated every day for every year I've had ch... didn't reduce or alleviate one single hit... but instrumental in maintaining my sanity and will to carry on between the hits...

Always been chronic, the frequency has simply changed for me, the fear seems part and parcel with ch, fear of the pain, fear of the next, fear it will be worse, fear when you get a longer break than normal because you think it will come back worse, fear a treatment will not work, fear it will then stop working. On and on they go, many of these are the same mind treadmills that you get with ptsd, I mean subjected to unimaginable pain for upwards of hours, to get a respite, knowing it is coming agai, sometimes with no rhyme or reason, sometimes fearing the simplest things could trigger. For me, trying to focus on the now, helps in between attacks, guided meditation helps calm me, even the mindset that this could be as good as it gets helps in some ways then you turn to coping with what it is right now and not what it might be later.

....been both episodic and chronic.....the fear of changing from one to the other was constant and oppressive...then it happened and i learned it's really the same beast in different form... and strategies must and can be adjusted. there is ongoing discussion on which is "better"...i could make arguments on either side...but it really doesn't matter cuz ya don't get to choose. personally, upon reflection, i think the basis of the fear was "change". had a similar gut wrenching fear of hits changing side...why would that be "worse"?..dunno and never found out. ...the beast is hard enough to deal with...making yourself nuts with worry about how he changes the "rules' is kinda pointless....attitude, a plan, and the right tools are the key.. best jonathan

Get plugged into healthcare for oxygen and start the vitamin D protocol ASAP. Give more information on dosing past and present. hope to help

I wouldn’t be discouraged just yet! If the Mm don’t stop the headaches completely they might make them at least be tolerable. Try and see if you can find some more. We have all been here, that feeling of discouragement. I am chronic and I have had many depressing days just accepting this into my life. Just try to do what makes you happy any time you are pain free. This is a life long condition. There is no cure. Accept it and enjoy ANY pain free time you get. Kat