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Indeed! And this forum has been of great help. Last time your ( @spiny), @Bejeeber's , @ThatHurtsMyHead's and @Pebblesthecorgi's words were very sincere and impactful. Also in the beginning messages of @xxx were also helpful. As @Pebblesthecorgi said " Conversely to defeat depression you must pass back through anxiety" If life tread on my toes i will be here, crying for help. However, i will try to check here, this forum, without any interests just like you people. CU

Hi and providing a bit of comparison.... before I purchased my demand valve from "Divers Alert Network" (DAN.org) I asked for some specs and this is what they provided. The cover sheet started "Life Support Products" by Allied. A late edit here with a few details that may help others. A fellow CH suggested this particular demand valve and I purchased it in late 2019 in preparation for my "normal upcoming cycle;" however, the cycle never showed up. At the end of the last cycle I had started the D3 regime and am giving that credit for the missed cycle. (I am very glad to have the new valve unused!) I tested the valve and could not get it to limit the flow and it stopped all flow as expected. From reading the spec sheet, it appears to be 160 LPM model, but I am sure I would be satisfied with 40 LPM. My transaction with DAN.org was easy, no script, no questions. The link is: https://apps.dan.org/dive-store/?id=39. The current cost is $205. Again, I have tested it, but have had little need for it. Others with more experience with this particular valve may offer comment. Be safe.

I overheard at a conference that the inventor tried to find a use of its invention for quite a while before zooming in on CH and read that it is working on some of us but is pretty much a hit or miss. IMO there is so many things that could help the vagal nerve before trying the « zapper ».

Yes, I do believe the more you learn about the condition and how it afflicts you individually is huge!

Just came across a study done in Italy testing keto diet on CCH not responding to other treatments. I'm going to give it the old college try. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5816269/

Support from friends and family, enjoying the moment whenever i can (trying blocking anxio/depression), watching comedy shows and movies, walks in nature, self-compassion, music, grattitude that i’m more knowledgeable now than ever about the condition and some kind of hope that one day a cure will come our way.

@KmanTexas So, I've been using weld ox since 2009....the guys on ch dot com who schooled me had been using it for several years at that time.....I personally know several clusterheads that have been using it for years and I know of no one who's had any issues. Welding requires "pure" O2 for good welds....med ox and weld ox come out of the same faucet.....med ox tanks are vacuumed prior to refilling while they just do a "sniff test" on welding tanks in case there's been an acetylene crossbleed contamination due to a faulty regulator. And yes, they just exchange empties. The biggest hurdle with weld ox is that the cylinders are big and heavy so ease of mobility is a problem but crossfill adapters are readily available on ebay and you can pick up used E and D tanks on ebay and Craigslist fairly reasonable. As to O2 concentrators....they only grab around 95% O2....we see reports of success from a relatively small number of folks....they're of value only to the supplier as another avenue to bilk you and the insurance companies outta more bucks!! Dallas Denny

.....fixed it for you...

FYI Fe+ aka iron deficiency is the number one cause of restless leg syndrome...

B1 back to is suppressing the ch, fantastic day yesterday, slept all night .

I was told by several oxygen providers in the Dallas area that they would not supply me with oxygen, even with a doctor's prescription, unless it was to treat Covid. I finally found a small supplier close to me that didn't ask. I had to buy two E tanks for $125 each, and then I could exchange tanks to get refills for $40 each. This works the same as when I buy propane for the outdoor grill, so it kind of made sense. I'm going through about half a tank per day, and I'm 4 weeks into my episodic cycle. Today I went to get a refill, and the price is now $100 to exchange an E tank for refill. They said their oxygen supplier, Airgas, raised the rates over the weekend. Holy wow, that's expensive!!! At this rate it will run about $1500/month for oxygen. Anyone else experiencing this a$$-rape for a simple refill?