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OK, so it sounds like maybe the rest of us who aren't currently on verap can just go jump in the (icy) lake. @spiny please let us know your results with this. Actually, if I had a cold pool and needed to abort an attack I think I would totally try this.

...oh wow....YES! i've run into that problem with other scripts....the droids working in insurance offices are all about the coding now... ....one other note. the word "intractable" can be powerful as if it makes CH more "real". when my neuro used that word (in a delightfully harsh and offended letter) for a previously denied triptan script, i all of a sudden got 18/mo approved....(no, i never used that much, but knowing i could get that many was a mental assist)....

Hit the share icon under the video. Then copy link option and then paste into message

Id replace the “ 25 of “to “15-25LPM.” Otherwise you need a diagnostic code on it and you’re golden. Please don’t forget the code they will refuse to pay. It’s called a ICD 10 code.

Oh, nice! In that case let me add Perturbator. That retro synth is huge right now.

Thank you for this, Merle. Dr. Robbins has been a good friend to people with CH. He has spoken at annual ClusterBuster conferences and published some valuable papers. Was there a particular way in which they were helpful to you (a new prescription; some good advice; etc.)?

.... ...i open the youtube link...play the "song", go up to the address bar and highlight the address, copy, then paste here. a black bar pops up asking if i just want to post a link only....i do not click this, though i wonder if i'm using up my upload allotment this way. oddly, sometimes the opening ads play, sometimes not. unsure how that happens tho it might be by watching whole way thru before the copy/paste...

Probably on a phone? I'm always on a desktop.

HI, while I live in Colorado, I am 59 and have CH since around 19- uggg I have gone to SO many dr and tried everything- except micro dosing- ( will next time) but I have gone to Dr Robbins in Northfield ILL- and his office is great. Brooke, his PA has been very helpful. I didnt see them on your dr list- Dr Robbins Headache Clinic I think is the full name. hope this helps people

I clicked on the image and took the first selection below 'loop' and you see what posted. This was up, so I tried it.

@jon019 @Bejeeber full submersion. I do think that vasoconstriction needs to take place on the whole body, with a partial on only the head exposed is maybe not efficient enough and still allows the rest of the blood vessels to be expanded. think it can be compared with a short of sumatriptan that also affects all the blood vessels. the Wim Hof ice baths work in a similar way, but can only take the cold submersion, not the ice baths. neuro said I need to have clearance from the cardiologist as the amount of verap I take is quite high and ice baths may have an adverse effect on my heart

Oh boy.. The nose blowing had me dying!!! Half expected to see a big booger come flying out

Thank you for all the input and motivation to pursue o2 again. I saw a new OB yesterday who had actually treated mothers with CH before! I was shocked to say the least and relieved about being understood. She agreed with increasing caffeine intake to mimic a steroid and suggesting visiting an ER during an attack for high flow oxygen too. I've only sought emergency help for CH that lasted longer than a few hours. I'm just not keen on an ER visit for relief when I will have another headache roll around in a matter of hours. Im in a rural area outside of Pittsburgh and there are drs. On the list on this website that I'm working on getting in to see but you guys are making me think maybe I can get my OB to prescribe o2 since they suggested it.

Here is the first early D3 Regimen protocol: https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Batch's kids and grands are all taking the vitamins for general well being. I personally use this Regimen to prevent my clusters and have not had a full cycle in years thanks to it!! All healthy stuff.

God my spelling is s__t must be the Topiramate

Hahaha

As ive said in a previous post on a different subject when im at home my attacks are regular every 3 hours but im relaxed at home . When im at work im highly stressed and that seems to keep the beast away . So I'd say that changes the times of my attacks for some reason . I have stayed awake all night to try to reduce my attacks as that when i get hit with my worst attacks but it didn't wirk for me 0135 every morning the beast would hit me with aa 3 hour kipp 10 kicking me round my bedroom . Got to the stage where I'd set my arlarm for midnight so i could go down stairs so didnt wake the rest of family up