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Showing content with the highest reputation on 11/12/2021 in all areas

  1. Not at all... I don't claim to know even half of the info you've posted..I do believe you misread my post. Was just a simple question as I was curious due to the amount of info you seem to know about the disorder also I've never attempted busting to scared to try...
    3 points
  2. Just curious Juss, with all this research you have done have you ever reached CH painless? There is so much information that you have posted I'm just curious if you have ever reached cessation of CH? I do believe that most cluster heads have done a shit ton of research in an effort to become and or rid ourselves of excruciating pain.. Your research seems to be on a diffrent level but still I wonder if you have managed to stop the thunder?
    3 points
  3. I will hire an attorney if I get rejected but as you said it’s not enough to live just at or above the poverty line. I have no doctors now, aside from the ketamine and psych meds I have no major issues other than a bulging C5. I have no medication side effects. So no doctors to fire. I just moved and have an appointment w a Neuro listed on this site. I don’t need a change to my meds except increasing my ketamine/ adding intranasal. Sounds like you’ve been through the ringer. I think I’m going to look for a job training dogs. I apprenticed a dog trainer years ago and it seems like from all my options that would be the best w my CH. I have had 3 good days in a row. Slept 12+ hrs 3 days ago. First time I’ve slept for more than 5 hrs in 4 years. It’s usually 30-60min at a clip abd I get whacked. I think it’s bc I used up my ketamine early and suppressed my CH. I really want to try an infusion but that’s unaffordable.
    3 points
  4. The trend continues! My city tolerates just about everything. https://www.freep.com/story/news/local/michigan/detroit/2021/11/06/detroit-psychedelic-mushrooms-proposal-e-entheogenic-plants/6303402001/
    2 points
  5. Affective disorders suck. Also being stuck with one means that busting is not a good option, right Juss? And yet, it is thought that the lack of Serotonin is part of the cause of them along with CH!!! But those with a mild form, say SAD, can successfully bust. I suppose that means it adds up to low Serotonin can wreak havoc in many ways for many people. Additionally it bites for any CHer to have one with their CH!!!
    2 points
  6. There's a hole in daddy's arm where all the money goes...
    2 points
  7. Great group . Big lose when freddie passed , but your man Mr Lambert is doing a unbeilivable job
    1 point
  8. Agreeing with the advice and info you have received so far. D3 and oxygen are where you want to be. In the meantime, if you have any old Imitrex, it will probably still work, even from three years ago. But you ought to be splitting doses. See this file: https://clusterbusters.org/forums/topic/2446-extending-imitrex/ Once you get O2 set up, you will be using a lot less triptan. There are some things that work for some people when they don't have standard abortives. If you look in this file -- https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ -- under "Treatments without O2" (down toward the end), there a bunch of things to try, including energy drinks/shots (often works), voluntary "brain freeze," standing in superhot water (this seems to help a lot of people), and inhaling cold air from a home or car air conditioner. You might also try starting on some Benadryl (4 tablets/day, or what you can handle and still function), because allergies have been shown to have a big effect on CH. Also in that file, there's a long discussion of oxygen and maybe some other things you'd want to know. Busting is also something you want to have as an option. There's a summary of busting principles at the end of that file.
    1 point
  9. https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 This link will get you started on the D3 Regimen. It is the first one and what I follow mostly. You will find that 8k of D3 is insufficient. More is needed. Along with the co-factors. I use this year round for my CH. It works. ATB!!!
    1 point
  10. Hi Ta, There is a plethora of info on this site specific to the D3 regimen. In the top search bar of the forum just type in D3 and be sure to follow the instructions from a user named Batch (handle XXX) there is more to making the D3 be effective than just taking the D3 (you need to take the co-factors). You never mentioned oxygen so I am unsure if you have a scrip or have tried it or not but many on here swear by it to abort. It works for me from time to time. There is a video on here that goes over the breathing techniques that seem to be effective with a non rebreather mask. I was able to get the intensity of attacks to be manageable without the triptans on the D3 reg. I so understand the frustration with folks mentioning migraine etc. I think a majority of us have gotten that response a time or 2..
    1 point
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