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Showing content with the highest reputation on 12/08/2021 in all areas
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Have you tried Benadryl or melatonin? Do you normally struggle with Ch at night? Chronic or episodic? I take Benadryl every night for allergies and it helps me sleep.1 point
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I understand and have crap days, but I refuse anything new and without substantial backing. And on that note, I refuse all abortive medications. I'm trying to avoid taking any medication unless it is to prevent me from going mental. My parents are in their 70s and have impeccable health because they refuse medications unless essential, and then only on the shortest duration as possible. That is the philosophy I am taking, and the results are impressive. I use nutraceutical approaches (not herbal medicine and snake oil) to treat my issues as much as possible, to each its own. Good luck in finding relief. Sometimes it is a process and sometimes it is a vicious circle.1 point
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Well last night had a pretty bad migraine. It is a little depressing but like every thing else we deal with I need to look at the positive. 1 migraine in a month is way better than at least 3 per week!1 point
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To be fair, folate deficiency does run in women, as does iron. That could be the possible link. Otherwise, it is kind of funny. I did read a lot of batches stuff years ago, say 2013 (or was it 2014?) thru 2015 and I would have to review it again. It’s been some time. I used to be all on board the megadose wagon until I started seeing far to much conflicting evidence, and that evidence did not come from competing interests. As I was taught everything in moderation. If it is that bad, IV looks like the best recourse (if that option exists). My issue with that option is purely cost. The Nemechek Protocol is $1,000 for the first visit and that doesn't include the travel and lodge. By law, this doc can't do telehealth for the first visit, and neither can Dr. Jacob Teitelbaum, who charges $2,000 for an initial visit. A local functional trained under his protocol charges $650. It is not cheap. Naturopaths are nothing short of voodoo Doctors like chiropractors. Strike that option dead. Both have gone under scrutiny. I don't know where to find the money, but I will have to. Western Medicine has nothing short of a terrible track record. And ask anyone with a history like mine, they are in the business of keeping you barely functioning by proxy of pharmaceuticals. I got 50% better by avoiding doctors and quitting meds by secretly tapering (I knew what I was doing). I used to get meds and throw them in the wastebasket. I finally told the docs and quit. Problem partially solved.1 point
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It was a valid and honest question and there is nothing to be ashamed about. What I need to review in the Vitamin D protocol is if Vitamin K is included. You can't have D synthesis without K. Well, proper. And for that matter, I need to continue research on where the hell these doctors are purchasing their Vitamin D from, as their 25 Hydroxy Levels are at 100 nano consuming just 3,000 IU per day. And I guess that they consume Vitamin K as well. It would be the same disaster as taking zinc w/o copper. If you take zinc alone, you deplete your copper levels and a dead ringer is that it will be 90 degrees and you will have a pea coat on.1 point
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Never mind... I did not realize that folate was a B vitamin. I suppose it's important for your cells to be able to divide.1 point
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I am a bit skeptical about the info this company touts. It is incredibly hard and time consuming to do this research (how long has the Yale study been recruiting) and yet looking at what they report, there are no references to scientific journals to support their claims. A search or govermenttrial.gov yields only one LSD and CH study underway since 2019 and still recruiting 30 patients. The D3 study Batch is part of a cluster headache search and still recruiting. It is unlikely to claim expertise and therapeutic results (LSD/Mescaline/psilocybin/etc) in all of these areas. MDMA has been studied by a large group worldwide (led by MAPS) and they are still at least a year away from final results. The time frame is so accelerated and the lack of references is concerning. A slick website, lots of unsubstantiated claims and improbable timelines would suggest great caution. This seems like a financially motivated group trying to piss on every bush in the psychedelic world to claim patent rights1 point
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Just wanted to come back to this forum after 5 years of being pain free from clusters. I have taken 5-10,000 IU of D3 daily and have not suffered from a single Cluster. It may not work for everyone but if you have yet to try this you might be missing out on something wonderful. Thanks an best of luck!1 point
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I will do as best as possible to answer your question. Depersonalization is a milder form of dissociation which is conducive to Borderline Personality Disorder (DSM V), also referred to as emotional dysregulation disorder (ICD 10) in Europe and UK. Depersonalization is an aspect of disassociation and is a detachment from one's self and identity. On the other hand, dissociation is detachment from several things. Please be patient, as not always is this psychiatric/psychological. There is Menieres Disease, Organic (Psychoactive), and other nebulous factors. If psychiatric and of and related to Borderline, this is a defense mechanism when one who suffers from said illness feels a threat or the need to escape. Contrary to mainstream literature, this is not an acquired habit only from trauma (typically sexual assault). Post Traumatic Stress Disorder can contribute. That logic isn't sound, because EMDR doesn't even mitigate the disassociation after treating PTSD. To make all of us nutjobs to the psychopharmaceutical industrial complex, the spin doctors added a few new diseases, frankly putting lipstick on a pig: Depersonalization-Derealization Disorder, Dissociative identity disorder. The brutal truth is this person’s experience is organic (induced by a psychoactive or by migraine) or it is more severe and they don't want to stigmatize them with Borderline Personality Disorder. Not diagnosing someone with Borderline is a disaster. They could be cutting, mutilating, have multiple suicide attempts, a criminal record (possible felonies), and numerous 20+ inpatient hospitalizations. I can put my money where my mouth is. Next, on the nature of the organic: Ketamine: Ketamine stimulates glutamate release in the prefrontal cortex and this releases some cells that I can't remember the name of. And this all targets the amygdala which has structures critically involved in depersonalization. I have read about infusion for depression, anyone in the know in the psych community that stays active in neuro-psych conferences understands to run like hell. That is the translation. Cannabis: Do I need to explain this? Smoking grass in certain Manic Depressives can induce psychotic mania or mania. That and depersonalization was known by Dr. Depaulo-founder of DRADA, the mood disorder clinic at Johns Hopkins (my mind fixer in the 90s)-in the 80s. It could go back further. If you have any axis 1 it's not just grass, any psychoactive or mind-altering substance that breaks the blood-brain barrier. There is a 6 fold increase in developing schizophrenia if you smoked grass more than 50 times (Andreasson Et Al 87). Hallucinogens: All of these target NMDA receptors, disrupting the action of glutamate (dissociative drugs). Glutamate is fundamental to cognition, emotion, and the perception of pain. The use of dissociative drugs causes psychomotor retardation, anxiety, memory loss, even body tremors, and numbness. Even something mild like Robotrippin, you know DXM in it causes profound changes in sensory perception. On the extreme dippers, or what you guys may call Angel Dust, I have seen dudes finish that jack and be butterball butt naked and jump in front of a car. That shit is a ticket to insanity. Migraines: That is a complex subject. This is a good primer: https://www.researchgate.net/profile/Abduelkadir-Tunc/publication/329074859_Psychoform_and_somatoform_dissociative_experiences_in_migraine_relationship_with_pain_perception_and_migraine_related_disability/links/5bf448f64585150b2bc4a7d4/Psychoform-and-somatoform-dissociative-experiences-in-migraine-relationship-with-pain-perception-and-migraine-related-disability.pdf Benzos: Xanax is a guarantee to a shit show. The half-life is shorter than cocaine, coming down is legendary for perceptual disturbances. Lorazepam has a half-life I think of 6 hours. Heavy prolonged use can cause the same problem. Coming off with taper takes months and is hell. Oh, all benzo use foment chronic deep disturbing depression. Use an H1 anxiety medication (Please). I hope that this was the answer that you were seeking.1 point
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Juss, When I first joined this board, almost exactly eleven years ago, I was desperate to help my daughter (the person in my family who has CH). That's why I picked the screen name that I have. There was a guy who was furious with me, and let me know that in a very harsh PM, because he thought I was trying to make myself sound like something special, I guess like the "father" of CB or something. Farthest thing from my mind, but he wasn't having it. (He was generous enough to write me an apology, a few years later, for that and some other irritations he had with me. I have always been touched by that decency on his part (Brian, if you're listening. . . )) I mention this because I think you might have me confused with the guy who is indeed the "father" of this board, Bob Wold, whose screen name is Psiloscribe, and who perhaps is a genius in terms of knowing things about CH. I have no knowledge about Botox, and don't think I have posted anything about Botox, except maybe to point someone to the research here and there. If I were to need anything to convince myself that I am not a genius, it would be your posts, which I ponder from time to time, not only because of their content, which I generally can't grasp (but which I am glad to see that others, such as Bosco', Shaun', Jeebs, and jon' are learning from, so they can help teach me/us), but because they illustrate to me that I only know "a lot" about the most conventional things related to CH -- oxygen, meds, RC seeds, and a couple of others -- and the advice I share is nowhere as sophisticated as it perhaps could be. I have been telling myself to go back and thoroughly read your posts and links so I could at least be a little smarter, and with some free time I hope to undertake that project. (You reminded me of one of my favorite lines from a novel I liked quite a lot, by John Lanchester. The narrator, who one slowly comes to realize is completely nuts, is very jealous of his brother, who many consider to be a genius. The narrator says, "I myself have always disliked being called a 'genius.' It is fascinating to notice how quick people have been to intuit this aversion and avoid using the term."1 point