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Hey CH family, just wanted to check in. I am still managing my headaches pretty well. I haven’t had to bust in a while. I also haven’t had to use my O2 tank in over a year…YES I am serious. It’s been forever. I haven’t even renewed my script for it because my insurance doesn’t kick in til January…oh well. I dare to say I might even take a flight soon…I have been terrified to fly since my diagnosis in 2019. Also I have really bad anxiety when it comes to flying. Any advice on flying and Ch? I’ve asked this before, and I’ve read almost every post on it. Just wondering if anyone has any new advice or suggestions. anyway, I hope everyone has a safe holiday month coming up. Things are crazy out there. Still eternally grateful for you all and this site. Cheers kat

That was a very nice post to read. I wasn't around in 2019 as I was still in the mess of figuring out what was wrong with me so I dont really know you'r story but I can imagine. I am also terrified to fly and have read all the threads on it as well, but I don't recall seeing anything new in the way of tips, tricks etc. It sure would be nice to hear back from you with how the flight went for you (hopefully seamless) and if I missed any new info on altitude success etc. I would love for our CH community to post here on it.

Hey @jon019 Good to hear from you too. I hope you are ok. I am out of cycle and your response answers my question especially knowing I'm not losing organs lol. But yeah the smell is on and off and is really for me, scary. I also tried some research on it and how ironic that it is only a few people that are affected and is quite rare just like Ch. I must stress that it is a "ghostly" smell. otherwise, I am good. The reloading worked wonders and I was snatched back to life as @xxx reloading schedule is extremely effective. Been pain free for few months now. Sticking to maintaining and just trying to tapper off antidepressants and pain killers which I abused by force over the last good couple of years. It is difficult but I am trying really hard. Just find myself relapsing just as I am nearing my goal because of incidents that occur like my mum got sick and ended up with shingles inside her ear which is rare but I can imagine the pain at her age, then my dad had who also has both his hips replaced as well as both his knees, ended up not long ago in hospital to have his ankle bone scraped down however the wound is taking forever to heal since it's on a movable part, no my brother came down yesterday from Johannesburg to see a specialist to remove a growth on the side of his face which is rather large and near the ear. He goes in on Monday to be admitted to hospital and Tuesday is the rather intricate operation as they need to bring in ENT specialists as well to see which angle to approach this thing from. Then all our vehicles are troubling at once. So all this stress is just making me grab more meds to cope since I don't drink alcohol so the go to thing for me are pills unfortunately. sorry for the long read and take care buddy

...hi Snowflake....good to hear from you but sorry it's because the beast is screwing with you... ...i don't know how common this is with CH, but have seen it mentioned several times, mostly as a side note in research and medical articles/papers....and on occasion in discussion by clusterheads.....you aint any more cracked than the rest of us! it's a thing, but apparently moreso with migraineurs. not reported to be harmful beyond annoyance in anything i've read... ...i made my living with my nose so it was more intriguing than alarming for me...tho i must admit it pissed me off and i used to hunt down the source until i finally figured out "And no one else can smell it. It feels like it is coming from within myself even exhaling through the nose senses it." thankfully transient, so never interfered with the job. multiple variations but burnt plastic, manure, and sewage were the most common and yuckiest. it IS the weirdest damn thing..... ...never could associate with any particular med and not recalling at what point in cycle it was prevalent...or even when ECH, if only during cycle...

She has blown my mind with her strength and determination @Bejeeber

Home PERMANENTLY before Christmas??!! What incredibly good news Shaun, so glad to hear it. Does she continually astound with her progress or what?!!

Well everything went to plan . We worked really hard to get the house safe for daughter to come home . Also had to move her bedroom down stairs . As it stand we could have her home permanently the week b4 Christmas.