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Showing content with the highest reputation on 05/07/2023 in all areas

  1. Back home know. Just want to say a BIG thankyou to are vice president .Ainslie Course for a great weekend in Glasgow
    3 points
  2. 2 points
  3. Yes @Bejeeber thats me with Bob . I agree PRICELESS .The bloke is a GOD
    2 points
  4. 2 points
  5. I'm doing pretty good since incorporating food first. Still on a bit of a higher dose of D but have started to decrease that as well. I did another dose of RC the other day and seem to be responding well. Each day that I ate first the shadow lessened up so I really do think that the food was a major part in getting back to normal (if anyone believes I can be normal lol)..
    1 point
  6. Now that yer foot's OK @BoscoPiko , hoping you're keeping those shadows under enough control? These are the closest to a "terribly nervous" emoji I'm finding amongst the lot:
    1 point
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  8. I just use 2 scales in my head, cluster scale and everything else scale, outside of clusters is this the worst pain I have felt? Yes? 10 or whatever level it is outside of clusters. For example kidney stone on my cluster scale was about a 6, on my anything other than cluster scale it was a solid 9.
    1 point
  9. I know I'm I'm not alone in my utmost gratitiude to/admiration for this Bob Wold guy!!! ^^^^^ Glad to see you've taken the opportunity to be there in person @Shaun brearley - thanks for the pics, and please keep posting any ya snap.
    1 point
  10. Exciting to see clusterheads starting to file in, and the ultimate combo of snazzy T shirts plus candelabras. I'm still guarding (and occasionally wearing!) my 2012 Clusterbusters conference T Shirt. Recognizing a couple of American types in attendance so far.
    1 point
  11. I SHOW THEM THIS AND EXPLAIN IT GOES BEOND THE KIP SCALE SOMETIMES WHEN THE BEAST IS OUT TO DESTROY YOU
    1 point
  12. I know this is a late reply but I started my cluster cycle a day after my son was born and it was the first time I used oxygen as an abortive technique for the attacks. Although my frequency of attacks went up dramatically, I noticed that the pain never got quite as bad as it usually does. I was even able to use nasal sprays of Imitrex for some of my attacks and I somehow managed to take care of my little one through attacks. I don't know why the beast would be less severe while nursing, but your hormones and body are all out of whack and adjusting so maybe that plays into it? I did feel like I was physically beat down a little more than usual afterwards but the lack of sleep and having to recover from childbirth is exhausting enough so my recovery was very slow. About a week or two after my cycle was over I was finally able to 'let down' - I had to supplement w/ some formula for a little while b/c I didn't realize that my son was having to work so hard for barely anything. So I am not sure how your nursing is going but I know the attacks really made it difficult for my production and let down and it took me a while to be able to fully breastfeed. Hope all is going well with your little one!
    1 point
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